I was DX in Nov. 06 with leg onset. I can no longer walk, and both hands and arms effected now, my FVC was 47 on last check. I was on Lithium for 6mos., did not notice much difference and stopped. I am on hospice care now. I am 65, married with one daughter and a grand daughter 16 and grandson 5. I have a Permobil 300, Newport HT50 NIV, cough assist, nebulizer, hospital bed.
God has blessed me with many friends that pray for me. I have told God I am ready to go when He wants to take me home, but that I will stay as long as He can use me. God is good despite the ALS. He loves you too.
277 for others
Nov 10, 2006
Sep 27, 2010