Patients that have taking Riluzole for longer than 2 years

Showing 1 to 15 of 56 public patients that have taking Riluzole for longer than 2 years

236 members have decided to share their profiles only with other members of PatientsLikeMe.

Table of patients and their summary data

Who
Conditions
Updated
nacona
Sex: M
Data Quality: 3 stars
ALS: 10 yrs
Wheelchair Feeding tube
Bulbar: mild
Arms: severe
Chest: none
Legs: moderate
27310 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, Relationships, Research, and Working with my Condition
Updated
fonchi
Sex: M
Data Quality: 1 star
ALS: 15 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
45830 thumb
Conditions:
Interests:
Research, and Working with my Condition
Updated
colinmoss
Sex: M
Data Quality: 1 star
ALS: 17 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
2016 thumb
Conditions:
Updated
newtons1971
Sex: M
Data Quality: 3 stars
ALS: 4 yrs
Bulbar: none
Arms: none
Chest: none
Legs: mild
104917 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, Faith, Research, Veterans' Issues, and Working with my Condition
Updated
mzooms
Sex: F
Data Quality: 2 stars
ALS: 25 yrs
Wheelchair
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
3239 thumb
Updated
swhite.geo
Sex: M
Data Quality: 2 stars
ALS: 15 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
7 thumb
Conditions:
Interests:
Alternative Medicine, Faith, and Veterans' Issues
Updated
ALSguySweden
Sex: M
Data Quality: 2 stars
ALS: 14 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
4300 thumb
Conditions:
Interests:
LGBTQ Issues
Updated
Mike_Sypniewski
Sex: M
Data Quality: 2 stars
ALS: 5 yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
67803 thumb
Conditions:
Interests:
Research
Updated
josepescado
Sex: M
Data Quality: 1 star
ALS: 12 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: moderate
3799 thumb
Conditions:
Updated
Criss02
Sex: F
Data Quality: 2 stars
ALS: 4 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
84779 thumb
Conditions:
Interests:
Advocacy, Research, and Working with my Condition
Updated
Gudjon
Sex: M
Data Quality: 2 stars
PLS: 15 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: mild
Chest: mild
Legs: moderate
118 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, Fundraising, Relationships, Research, and Working with my Condition
Updated
jr42
Sex: M
Data Quality: 2 stars
PMA: 15 yrs
Bulbar: none
Arms: severe
Chest: mild
Legs: moderate
4037 thumb
Conditions:
Interests:
Research, and Working with my Condition
Updated
Tommy Maker
Sex: M
Data Quality: 2 stars
ALS: 9 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
21803 thumb
Conditions:
Interests:
Advocacy, Parenting, and Working with my Condition
Updated
sheronemus
Sex: M
Data Quality: 2 stars
ALS: 13 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: moderate
8881 thumb
Updated
DannyD
Sex: M
Data Quality: 2 stars
ALS: 20 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
13 thumb