Patients taking Riluzole for longer than 2 years

Showing 1 to 15 of 60 public patients taking Riluzole for longer than 2 years

168 members have decided to share their profiles only with other members of PatientsLikeMe.

Table of patients and their summary data

Who
Conditions
Connect
Updated
Scamper
Sex: F
Data Quality: 3 stars
ALS: 8 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: none
Legs: severe
44564 thumb
Conditions:
Interests:
Alternative Medicine, Fundraising, Relationships, and Research
Updated
Mike_Sypniewski
Sex: M
Data Quality: 2 stars
ALS: 3 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
67803 thumb
Conditions:
Interests:
Research
Updated
speechlessinseattle
Sex: F
Data Quality: 3 stars
PLS: 9 yrs
Bulbar: mild
Arms: none
Chest: none
Legs: moderate
12164 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, and Research
Updated
Tom M
Sex: M
Data Quality: 2 stars
ALS: 8 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
3089 thumb
Updated
Tommy Maker
Sex: M
Data Quality: 2 stars
ALS: 8 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
21803 thumb
Conditions:
Interests:
Advocacy, Parenting, and Working with my Condition
Updated
mzooms
Sex: F
Data Quality: 3 stars
ALS: 23 yrs
Bulbar: mild
Arms: severe
Chest: none
Legs: moderate
3239 thumb
Updated
Bill01
Sex: M
Data Quality: 3 stars
ALS: 10 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: mild
Chest: moderate
Legs: moderate
13018 thumb
Conditions:
Interests:
Advocacy, Faith, Fundraising, and Research
Updated
swhite.geo
Sex: M
Data Quality: 2 stars
ALS: 14 yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: severe
Legs: moderate
7 thumb
Updated
TipaCow
Sex: M
Data Quality: 3 stars
ALS: 20 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
22637 thumb
Conditions:
Interests:
Faith
Updated
BeachPower
Sex: M
Data Quality: 3 stars
ALS: 11 yrs
Ventilator Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
13950 thumb
Conditions:
Interests:
Research, Veterans' Issues, and Working with my Condition
Updated
nacona
Sex: M
Data Quality: 3 stars
ALS: 8 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
27310 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, Relationships, Research, and Working with my Condition
Updated
ALSguySweden
Sex: M
Data Quality: 2 stars
ALS: 13 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
4300 thumb
Conditions:
Interests:
LGBTQ Issues
Updated
donhing
Sex: M
Data Quality: 3 stars
ALS: 11 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
154 thumb
Conditions:
Interests:
Advocacy, and Alternative Medicine
Updated
CombatALS
Sex: F
Data Quality: 1 star
ALS: 24 yrs
Ventilator Wheelchair
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
10618 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, and Faith
Updated
Gudjon
Sex: M
Data Quality: 2 stars
PLS: 14 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
118 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, Fundraising, Relationships, Research, and Working with my Condition