Patients taking Riluzole for longer than 2 years

Showing 1 to 15 of 63 public patients taking Riluzole for longer than 2 years

168 members have decided to share their profiles only with other members of PatientsLikeMe.

Table of patients and their summary data

Who
Conditions
Connect
Updated
Tommy Maker
Sex: M
Data Quality: 2 stars
ALS: 7 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
21803 thumb
Conditions:
Interests:
Advocacy, Parenting, and Working with my Condition
Updated
mzooms
Sex: F
Data Quality: 3 stars
ALS: 22 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
3239 thumb
Updated
speechlessinseattle
Sex: F
Data Quality: 3 stars
PLS: 8 yrs
Bulbar: mild
Arms: none
Chest: none
Legs: moderate
12164 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, and Research
Updated
ALSguySweden
Sex: M
Data Quality: 3 stars
ALS: 12 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
4300 thumb
Updated
nacona
Sex: M
Data Quality: 3 stars
ALS: 7 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
27310 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, Relationships, Research, and Working with my Condition
Updated
TipaCow
Sex: M
Data Quality: 2 stars
ALS: 19 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
22637 thumb
Conditions:
Interests:
Faith
Updated
DannyD
Sex: M
Data Quality: 3 stars
ALS: 18 yrs
Bi-Pap
Bulbar: moderate
Arms: mild
Chest: moderate
Legs: moderate
13 thumb
Updated
jr42
Sex: M
Data Quality: 3 stars
PMA: 13 yrs
Bulbar: none
Arms: severe
Chest: mild
Legs: moderate
4037 thumb
Conditions:
Interests:
Research, and Working with my Condition
Updated
josepescado
Sex: M
Data Quality: 3 stars
ALS: 9 yrs
Bulbar: mild
Arms: none
Chest: mild
Legs: moderate
3799 thumb
Conditions:
Updated
manhattaner
Sex: F
Data Quality: 0 stars
ALS: 5 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Portrait default thumb
Conditions:
Updated
Engineer
Sex: M
Data Quality: 2 stars
ALS: 5 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
28414 thumb
Conditions:
Updated
MStone
Sex: M
Data Quality: 2 stars
ALS: 4 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: mild
Chest: mild
Legs: moderate
53364 thumb
Conditions:
Interests:
Advocacy, Fundraising, Relationships, Research, and Working with my Condition
Updated
Gerd-NF
Sex: M
Data Quality: 2 stars
ALS: 16 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
12488 thumb
Conditions:
Updated
Scamper
Sex: F
Data Quality: 2 stars
ALS: 7 yrs
Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: mild
Legs: moderate
44564 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, Faith, Relationships, and Research
Updated
blue star
Sex: F
Data Quality: 1 star
ALS: 8 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Portrait default thumb
Conditions:
Interests:
Faith, Relationships, and Working with my Condition