Patients taking Riluzole for longer than 2 years

Showing 1 to 15 of 66 public patients taking Riluzole for longer than 2 years

198 members have decided to share their profiles only with other members of PatientsLikeMe.

Table of patients and their summary data

Who
Conditions
Connect
Updated
Tommy Maker
Sex: M
Data Quality: 3 stars
ALS: 8 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
21803 thumb
Conditions:
Interests:
Advocacy, Parenting, and Working with my Condition
Updated
Mike_Sypniewski
Sex: M
Data Quality: 3 stars
ALS: 3 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
67803 thumb
Conditions:
Interests:
Research
Updated
nacona
Sex: M
Data Quality: 3 stars
ALS: 8 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
27310 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, Relationships, Research, and Working with my Condition
Updated
speechlessinseattle
Sex: F
Data Quality: 3 stars
PLS: 9 yrs
Bulbar: mild
Arms: none
Chest: none
Legs: moderate
12164 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, and Research
Updated
mzooms
Sex: F
Data Quality: 2 stars
ALS: 23 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
3239 thumb
Updated
ALSguySweden
Sex: M
Data Quality: 2 stars
ALS: 13 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
4300 thumb
Conditions:
Interests:
LGBTQ Issues
Updated
jr42
Sex: M
Data Quality: 3 stars
PMA: 14 yrs
Bulbar: none
Arms: severe
Chest: mild
Legs: moderate
4037 thumb
Conditions:
Interests:
Research, and Working with my Condition
Updated
Gudjon
Sex: M
Data Quality: 2 stars
PLS: 13 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
118 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, Fundraising, Relationships, Research, and Working with my Condition
Updated
Gerd-NF
Sex: M
Data Quality: 2 stars
ALS: 17 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
12488 thumb
Conditions:
Updated
tuscanboy
Sex: M
Data Quality: 1 star
ALS: 9 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
7142 thumb
Conditions:
Updated
DannyD
Sex: M
Data Quality: 3 stars
ALS: 18 yrs
Bi-Pap
Bulbar: moderate
Arms: mild
Chest: moderate
Legs: moderate
13 thumb
Updated
TipaCow
Sex: M
Data Quality: 2 stars
ALS: 20 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
22637 thumb
Conditions:
Interests:
Faith
Updated
cpt_c_pike
Sex: M
Data Quality: 1 star
ALS: 9 yrs
Bi-Pap
Bulbar: mild
Arms: severe
Chest: mild
Legs: moderate
36942 thumb
Conditions:
Updated
BeachPower
Sex: M
Data Quality: 3 stars
ALS: 11 yrs
Ventilator Wheelchair
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
13950 thumb
Conditions:
Interests:
Research, Veterans' Issues, and Working with my Condition
Updated
Scamper
Sex: F
Data Quality: 3 stars
ALS: 7 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: mild
Legs: severe
44564 thumb
Conditions:
Interests:
Alternative Medicine, Fundraising, Relationships, and Research