Patients that have taking Riluzole for longer than 2 years

Showing 1 to 15 of 56 public patients that have taking Riluzole for longer than 2 years

250 members have decided to share their profiles only with other members of PatientsLikeMe.

Table of patients and their summary data

Who
Conditions
Updated
newtons1971
Sex: M
Data Quality: 3 stars
ALS: 4 yrs
Bulbar: mild
Arms: mild
Chest: none
Legs: mild
104917 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, Faith, Research, Veterans' Issues, and Working with my Condition
Updated
1492
Sex: M
Data Quality: 1 star
ALS: 21 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
17259 thumb
Conditions:
Interests:
Advocacy, and Veterans' Issues
Updated
nacona
Sex: M
Data Quality: 3 stars
ALS: 10 yrs
Wheelchair Feeding tube
Bulbar: mild
Arms: severe
Chest: none
Legs: moderate
27310 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, Relationships, Research, and Working with my Condition
Updated
colinmoss
Sex: M
Data Quality: 1 star
ALS: 17 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
2016 thumb
Conditions:
Updated
Gudjon
Sex: M
Data Quality: 2 stars
PLS: 15 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: mild
Chest: mild
Legs: moderate
118 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, Fundraising, Relationships, Research, and Working with my Condition
Updated
Ragingbear
Sex: M
Data Quality: 1 star
ALS: 24 yrs
Ventilator Wheelchair
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
80 thumb
Conditions:
Updated
mzooms
Sex: F
Data Quality: 2 stars
ALS: 25 yrs
Wheelchair
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
3239 thumb
Updated
Mike_Sypniewski
Sex: M
Data Quality: 2 stars
ALS: 5 yrs
Ventilator Wheelchair
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
67803 thumb
Conditions:
Interests:
Research
Updated
CombatALS
Sex: F
Data Quality: 1 star
ALS: 25 yrs
Ventilator Wheelchair
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
10618 thumb
Conditions:
Interests:
Advocacy, Alternative Medicine, and Faith
Updated
kayaker
Sex: M
Data Quality: 1 star
ALS: 23 yrs
Wheelchair
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
1845 thumb
Conditions:
Interests:
Advocacy, and Research
Updated
sheronemus
Sex: M
Data Quality: 2 stars
ALS: 14 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: moderate
8881 thumb
Updated
TipaCow
Sex: F
Data Quality: 2 stars
ALS: 21 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
22637 thumb
Conditions:
Interests:
Faith
Updated
josepescado
Sex: M
Data Quality: 1 star
ALS: 12 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: moderate
3799 thumb
Conditions:
Updated
Criss02
Sex: F
Data Quality: 2 stars
ALS: 4 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
84779 thumb
Conditions:
Interests:
Advocacy, Research, and Working with my Condition
Updated
Wayne Lampe
Sex: M
Data Quality: 3 stars
ALS: 12 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
247 thumb