I’m one of the founders of PatientsLikeMe, which we started to help patients learn from our family's experience after my brother Stephen was diagnosed with ALS. I’m now heading up product strategy and the UX and engineering teams for the site. These roles help ensure that PatientsLikeMe meets patient needs now and in the future, and brings the patient voice to research and development. I am also our Chief Privacy Officer and overseer of PatientLikeMe Openness Philosophy - feel free to reach out if you have any questions. I’d love to hear from you if you have any suggestions or improvements for the site. If you’d like to know more about our family story, watch the documentary SO MUCH SO FAST, which aired on PBS's Frontline.