Riluzole

About Riluzole (Prescription Drug)

Riluzole is a drug used to treat amyotrophic lateral sclerosis (ALS). Riluzole does not cure ALS or improve symptoms, but may extend survival or the time to tracheostomy.

Learn more about Riluzole in our Riluzole Community Report.

Persevering's Riluzole History (Stopped)
100 mg Daily Mar 12 - Jun 30, 2010
50 mg Daily Sep 17 - Oct 05, 2010
Stopped Side effects too severe Jun 30, 2010
Stopped Side effects too severe Oct 5, 2010

Persevering's Riluzole is for…

  • Amyotrophic lateral sclerosis

Persevering's side effects of Riluzole…

  • Tiredness Mar 26, 2010

Evaluations


Oct 5, 2010

Dosage
50 mg Daily
  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (tiredness)
  • Adherence
    Always
  • Burden
    Somewhat hard to take
Cost
$25-49 monthly

Jun 30, 2010

Dosage
100 mg Daily
  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    Severe (tiredness)
  • Adherence
    Always
  • Burden
    A little hard to take
Advice & Tips
I made a decision that 10% increased lifespan from onset was not worth being very sleepy all the time. I would rather require far less sleep each day than live slightly longer. I am typing this about 10 days after stopping and have enjoyed being far less tired. I wasn't sure if tiredness was a symptom of ALS or side effect of Rilutek. I have now confirmed it was a side effect of Rilutek.
Cost
$25-49 monthly

Apr 12, 2010

Dosage
100 mg Daily
  • Effectiveness
    Can't tell (for amyotrophic lateral sclerosis)
  • Side effects
    None
  • Adherence
    Always
  • Burden
    Not at all hard to take
Cost
$25-49 monthly