1. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his weight for

  2. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his weight for

  3. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS
  4. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 shared details about Hospice

    Scheduleweekly (starting )
  5. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated the condition ALS (Amyotrophic Lateral Sclerosis)

    • First symptom:
    • Diagnosis:
  6. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 was in the hospital for Breathing difficulty, Sinus congestion, and Aspiration Pneumonia

    Dates
    -
  7. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated the condition Aspiration Pneumonia

    • First symptom: ?
    • Diagnosis: ?
  8. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his basic information

  9. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his symptoms

    decrease better BetterConstipation, Depressed mood, Fasciculations
    increase worse WorseInsomnia, Rotator cuff pain, Stiffness/Spasticity
  10. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 completed the QOL survey

  11. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 completed the FRS survey

    • FRS: 14
    • none Head
    • severe Arms
    • moderate Torso
    • severe Legs
  12. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his weight for

  13. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 added a treatment evaluation for ALS Phase 3 Study Dexpramipexole (KNS-760704) from

    • Perceived effectiveness for Participate in clinical trial: Can’t tell
    • Side Effects: None
    • Adherence: Always
    • Burden: A little
    • Dosage: 300 mg Daily
    • Advice & Tips: This was a drug trial, I did'nt know if I had the placibo or the real drug. October 11,2012 the trial ended. They are giving me the real drug while they are analyzing the trial data.
    This was a drug trial, I did'nt know if I had the placibo or the real drug. October 11,2012 the trial ended. They are giving me the real drug while they are analyzing the trial data.
  14. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his weight for

  15. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 completed the FRS survey

    • FRS: 17
    • none Head
    • severe Arms
    • mild Torso
    • severe Legs
  16. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 added a new Forced Vital Capacity Percentage value for

    • Forced Vital Capacity Percentage28 % on
  17. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 added a new Forced Vital Capacity Percentage value for

    • Forced Vital Capacity Percentage29 % on
  18. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS
  19. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his weight for

  20. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 added a new Forced Vital Capacity Percentage value for

    • Forced Vital Capacity Percentage36 % on
  21. Show more