1. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his weight for

    • Weight: 110 lb
    • BMI: 17.2
  2. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his weight for

    • Weight: 106 lb
    • BMI: 16.6
  3. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his weight for

    • Weight: 104 lb
    • BMI: 16.3
  4. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS
  5. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 started using Hospice

    Scheduleweekly (starting )
  6. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated the condition ALS (Amyotrophic Lateral Sclerosis)

    • First symptom: June 15, 2009
    • Diagnosis: April 29, 2010
  7. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his weight for

    • Weight: 109 lb 3 oz
    • BMI: 17.1
  8. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his weight for

    • Weight: 110 lb
    • BMI: 17.2
  9. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 was in the hospital for Breathing difficulty, Sinus congestion, and Aspiration Pneumonia

    Dates
    -
  10. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated the condition Aspiration Pneumonia

    • First symptom: ?
    • Diagnosis: ?
  11. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his basic information

  12. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his symptoms

    BetterFasciculations, Depressed mood, Constipation
    WorseStiffness/Spasticity, Rotator cuff pain, Insomnia
  13. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 completed the QOL survey

  14. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 completed the FRS survey

    • FRS: 14
    • none Head
    • severe Arms
    • moderate Torso
    • severe Legs
  15. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his weight for

    • Weight: 120 lb
    • BMI: 18.8
  16. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS
  17. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 evaluated ALS Phase 3 Study Dexpramipexole (KNS-760704) from

    • StartedJun 16, 2011
    • Dosage300 mg Daily
    • Effectiveness Can’t tell (for Participate in clinical trial)
    • Side effects None
    • Adherence Always
    • Burden A little hard to take
    • Advice & TipsThis was a drug trial, I did'nt know if I had the placibo or the real drug. October 11,2012 the trial ended. They are giving me the real drug while they are analyzing the trial data.
    • View complete treatment history
  18. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his weight for

    • Weight: 143 lb
    • BMI: 22.4
  19. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 completed the FRS survey

    • FRS: 17
    • none Head
    • severe Arms
    • mild Torso
    • severe Legs
  20. 20396 thumb
    fki2001
    Sex: M
    Data Quality: 1 star
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 added a new Forced Vital Capacity Percentage value for

    • Forced Vital Capacity Percentage28 % on
  21. Show more