1. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his symptoms

    Constipation BetterConstipation, Depressed mood, Fasciculations
    Insomnia WorseInsomnia, Rotator cuff pain, Stiffness/Spasticity
  2. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 completed the QOL survey

  3. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 completed the FRS survey

    • FRS: 14
    • none Head
    • severe Arms
    • moderate Torso
    • severe Legs
  4. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his weight

  5. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated the condition ALS (Amyotrophic Lateral Sclerosis)

    • First symptom:
    • Diagnosis:
  6. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 added a treatment evaluation for ALS Phase 3 Study Dexpramipexole (KNS-760704) from

    • Perceived effectiveness for Participate in clinical trial: Can’t tell
    • Side Effects: None
    • Adherence: Always
    • Burden: A little
    • Dosage: 300 mg Daily
    • Advice & Tips: This was a drug trial, I did'nt know if I had the placibo or the real drug. October 11,2012 the trial ended. They are giving me the real drug while they are analyzing the trial data.
  7. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his weight

  8. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 completed the FRS survey

    • FRS: 17
    • none Head
    • severe Arms
    • mild Torso
    • severe Legs
  9. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 added a new Forced Vital Capacity Percentage value for

    • Forced Vital Capacity Percentage: 28 %
  10. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 added a new Forced Vital Capacity Percentage value for

    • Forced Vital Capacity Percentage: 29 %
  11. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS
  12. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated the treatment ALS Phase 3 Study Dexpramipexole (KNS-760704)

    • Evaluated
    • Stopped
      • Date: Oct 11, 2012
      • Reason: Course of treatment ended
      • Oct 11, 2012
    • Added
      • Started: Jun 16, 2011
      • Dosage: 300 mg daily
      • Purpose: Participate in clinical trial
      • Jun 16, 2011
  13. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his weight

  14. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 added a new Forced Vital Capacity Percentage value for

    • Forced Vital Capacity Percentage: 36 %
  15. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated his symptoms

    Pain BetterPain, Rotator cuff pain
    Weakness in right thumb WorseWeakness in right thumb, Insomnia, Weakness in right index finger, Constipation, Fasciculations
  16. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 added a new Forced Vital Capacity Percentage value for

    • Forced Vital Capacity Percentage: 32 %
  17. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    Stopped PEG-Percutaneous Endoscopic Gastrostomy

    • Stopped:
  18. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated the treatment PEG-Percutaneous Endoscopic Gastrostomy

    • Stopped
      • Date: Feb 15, 2012
      • Feb 15, 2012
    • Added
      • Started: Feb 15, 2012
      • Dosage: one time
      • Purpose: FVC was low, 50% and ALS (Amyotrophic Lateral Sclerosis)
      • Feb 15, 2012
  19. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 updated the treatment Stool Softener

    • Started:
    • Current Dosage: 100 mg daily
  20. 20396-thumb
    fki2001
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: n
    I have:
    ALS

    fki2001 completed the FRS survey

    • FRS: 20
    • none Head
    • severe Arms
    • none Torso
    • severe Legs
  21. Show more