1. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo became a 3 star data donor! star earnedstar earnedstar earned

  2. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo completed the MSRS survey

    • MSRS: 75
    • Moderate disability that requires some help from others Cognition
    • Mild disability but not requiring help from others Vision
    • Moderate disability that requires some help from others Speech
    • Moderate disability that requires some help from others Swallowing
    • Moderate disability that requires some help from others Upper limb
    • Total disability and help always required Walking
    • Moderate disability that requires some help from others Sensation
  3. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo updated his symptoms

    BetterBack pain, Ballismus movements, Bladder problems, Brain lesions, Dizziness (vertigo) See more
    WorseDizziness, Mood swings, Pain in hips, Pain in legs, Seizures (partial focal), Sleeplessness
    NewBreathing difficulty, Relapse MS (exacerbation), Shortness of breath (dyspnea), Vision problems
  4. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo updated his weight

  5. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo updated his basic information

  6. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo updated his bio

    I became an Ordained Minister on July 20,2009 a day before my birthday. I am very passionate about life, my first and foremost is God, then my wife, and children our 5 sonś.

        We started a NEW Journey which began in Our lives from a TBI Traumatic Brain Injury.  With a head injury and from that it was determined that We have Secondary Progressive MS, diagnosed January 4, 2010.  Then Primary Progressive  MS, in June of 2010.

        I went from walking with a quad cane, Mobility Service Dog, Walker, Wheel Chair,  and now a Power Chair in 2011.  In 2012, during the summer I became very weak.  I entered Hospice Care, November 7,2012 this was a very rough period of my life where, I considered my life a Journey, I have a lot of people that care and depend on me so.  I made this as positive of a Journey in my life and I'm glad, I did !!!   July of 2013,  I was released from Hospice a 3 time Graduate. 

        April of 2013, we were able to go to Orlando, for a couple of weeks thanks to: The Dream Foundation and Memories of Love.  They are a Non Profit Organizations and would love Your donations and Air miles.  They work with Families where a Member is Terminally iLL.  September 7, 2014 I went to the Hospital very ill, stayed for 7 days at the hospital.  Then transferred to a long term care facility,  for rest and REHAB.  I had to learn a lot all over again.  Including Executive Cognative Skills.  Seven Weeks later I was able to come home. October and December where hard on me the cold, and fatigue.

        Welcome to 2015, I'm fatigued a lot and just crash.  trying to stay awake is hard. 


  7. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS
  8. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo added a treatment evaluation for Medical marijuana

    • Perceived effectiveness for Stiffness/Spasticity: Moderate
    • Perceived effectiveness for Pins and needles: Moderate
    • Perceived effectiveness for Pain: Moderate
    • Perceived effectiveness for Muscle spasms in back: Moderate
    • Perceived effectiveness for Multiple Sclerosis: Major
    • Perceived effectiveness for MS dementia (subcortical dementia): Moderate
    • Perceived effectiveness for Dizziness (vertigo): Major
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: As needed
    • Advice & Tips: POSITIVE SIDE EFFECTS: Helps with balance, speech, pain, spasms, and energy. I feel that it is also helping to slow down the Progression of the MS and healing the Myelin Sheath. I have had only some new lesions since 2011. And i feel that we have our meds in check for me..
    • Cost: < $25 monthly
  9. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo started taking Belsomra

    Dosage1 mg daily (starting )
  10. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo shared details about Ambien

  11. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo updated his basic information

  12. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS
  13. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo shared details about Not Driving

  14. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo was in the hospital for Seizures (grand mal or tonic-clonic), Todd's paralysis, Positional vertigo, Chorea movements, Complex post-traumatic stress disorder, Dysphasia, Huntington's Disease, TIA (Transient Ischemic Attack), and Hospice

    Dates
    -
  15. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo updated the condition Calcium Pyrophosphate Deposition Disease (Pseudogout)

    • First symptom: ?
    • Diagnosis: ?
  16. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo was in the hospital for Todd's paralysis, TIA (Transient Ischemic Attack), and Relapse MS (exacerbation)

    Dates
    -
  17. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo was in the hospital for Todd's paralysis, Paralysis of all four limbs (quadriplegia), TIA (Transient Ischemic Attack), and Multiple Sclerosis

    Dates
    -
  18. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo updated the condition Complex post-traumatic stress disorder

    • First symptom: ?
    • Diagnosis: ?
  19. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo updated the condition Dysphasia

    • First symptom: ?
    • Diagnosis: ?
  20. 17117 thumb
    Aturo
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: g
    I have:
    MS

    Aturo completed the MSRS survey

    • MSRS: 71
    • Moderate disability that requires some help from others Cognition
    • Mild disability but not requiring help from others Vision
    • Mild disability but not requiring help from others Speech
    • Moderate disability that requires some help from others Swallowing
    • Moderate disability that requires some help from others Upper limb
    • Total disability and help always required Walking
    • Moderate disability that requires some help from others Sensation

    Been feeling pretty good this week, working on OT, PT continue to have moderate energy. Dreams, PTSD TYPE... and a good one emoticon smile

       Had a Really cool dream,  Our son who is Autistic, went to check out a program that is right up his alley.  Electronics and Repairing game systems.
    

    In my dream, he was a Instructor, for Formula 1 racecars. in the repair shop as a schematics instructor for the car's. His class size was about 15 students. He asked me, " if you have a 110 volt electric stove, would plug in into 220 volt with an adapter kit." or
    " would plug into a 120 volt plugin, for which it may be designed for ?" Or check the schematics to see where the problem may be?" He said, " This is at times very frustrating because all they want to do is take the easy way out, without researching the problem." I said to him, " This is at times the way you were, and now you know how I felt, when you were growing up". I said to him, " remember slow and steady wins the race". I said, "Things take time son, you are a GREAT instructor, your students will be very successful, because they are learning from someone who cares about what they are doing, and YOU want them to be as successful as you are, as well." I asked, him if he would like to go to lunch with me. His response," I would love to dad, I have to get this done before the class comes back". Were, going to redo this schematics assignment, question, check this out and see hoe long it takes you to figure it out?" I said, Okay.

    He showed me the problem.  First, you had to go to the table of content's, flip to the page.  Read what section in the diagram, can help you in locating the problem.  follow the schematic and it will tell you page and diagram to look at.  Then follow, there was a small circuit chip that controlled the firing system for the car.  This took me about 15 minutes. " he said and he cant have his students to follow along".   He said, " you know, kid's today, are so spoiled...  I'm surprised that they can cook or go shopping, without assistance."  
    

    Well, son you have come along way, and I am VERY PROUD OF YOU !!!. "

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