1. 26962 thumb
    Whimsical
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: severe
    Legs: severe
    I am: vg
    I have:
    ALS

    Whimsical updated her bio

    Retired teacher/school counselor, diagnosed in July 2007. I live alone so have to make sure I reach out. My friends and family are wonderful. I use a power chair full time since my fall and broken hip in April/09. My legs, hands,arms,shoulders, and speech, are all weak. My plan is to stay busy and do the things I love while I can. With the help of my ALS Clinic in Vancouver, my close friends, siblings and care workers, I hope to remain in my apartment forever. Thanks to all of you who share your knowledge, stories, worries and joys. UPDATE: I now have "live in" Caregiver.
    September 2015 UPDATE: I am on ventilator and feeding tube but feeling okay and still enjoying life. 
    3 comments from other members. Only showing public users' comments. Sign up to see all comments!
  2. 26962 thumb
    Whimsical
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: severe
    Legs: severe
    I am: vg
    I have:
    ALS

    Whimsical updated her weight

    • Weight: 190 lb
    • BMI: 29.8
  3. 26962 thumb
    Whimsical
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: severe
    Legs: severe
    I am: vg
    I have:
    ALS

    Whimsical completed the FRS survey

    • FRS: 7
    • moderate Head
    • moderate Arms
    • severe Torso
    • severe Legs
  4. 26962 thumb
    Whimsical
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: severe
    Legs: severe
    I am: vg
    I have:
    ALS

    Whimsical updated her weight

    • Weight: 175 lb
    • BMI: 27.4
  5. 26962 thumb
    Whimsical
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: severe
    Legs: severe
    I am: vg
    I have:
    ALS

    Whimsical updated her weight

    • Weight: 38756 lb 3 oz
    • BMI: 6069.4

    wrong entry...should be 79.5kg

  6. 26962 thumb
    Whimsical
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: severe
    Legs: severe
    I am: vg
    I have:
    ALS

    Whimsical added a new Forced Vital Capacity Percentage value

    • Forced Vital Capacity Percentage21 % on
  7. 26962 thumb
    Whimsical
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: severe
    Legs: severe
    I am: vg
    I have:
    ALS

    Whimsical updated her weight

    • Weight: 199 lb
    • BMI: 31.2
  8. 26962 thumb
    Whimsical
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: severe
    Legs: severe
    I am: vg
    I have:
    ALS

    Whimsical completed the FRS survey for

    • FRS: 20
    • mild Head
    • moderate Arms
    • mild Torso
    • severe Legs
  9. 26962 thumb
    Whimsical
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: severe
    Legs: severe
    I am: vg
    I have:
    ALS

    Whimsical added a new Forced Vital Capacity Percentage value for

    • Forced Vital Capacity Percentage30 % on
  10. 26962 thumb
    Whimsical
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: severe
    Legs: severe
    I am: vg
    I have:
    ALS

    Whimsical completed the QOL survey for

  11. 26962 thumb
    Whimsical
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: severe
    Legs: severe
    I am: vg
    I have:
    ALS

    Whimsical was feeling very good

    everything under control