1. 334 thumb
    Howdy
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: none
    Chest: none
    Legs: none
    I am: g
    I have:
    ALS

    18 people posted in the ALS/MND forum

    Latest posts:
    jerry5412 in Eyegaze/ Communication device

    Hi, anybody else can recommend eye gaze devices you use?They are quite expensive and want to buy something that works well.Thanks.j.

    prfnn1 in Travel

    Diane, thanks!Great advice!

    yunfang in Not tolerating the bipap well

    I have exactly the same feeling as you. Can't use it more than 1 hour and couldn't sleep with it.

  2. 334 thumb
    Howdy
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: none
    Chest: none
    Legs: none
    I am: g
    I have:
    ALS

    Howdy updated the condition ALS (Amyotrophic Lateral Sclerosis)

    • First symptom: January 1, 2000
    • Diagnosis: January 1, 2001
  3. 334 thumb
    Howdy
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: none
    Chest: none
    Legs: none
    I am: g
    I have:
    ALS

    Howdy updated his basic information

  4. 334 thumb
    Howdy
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: none
    Chest: none
    Legs: none
    I am: g
    I have:
    ALS

    Howdy was in the hospital for Laser ablation

    Dates
    -
  5. 334 thumb
    Howdy
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: none
    Chest: none
    Legs: none
    I am: g
    I have:
    ALS

    Howdy updated his labs and tests for

    • Forced Vital Capacity Percentage78 % on
  6. 334 thumb
    Howdy
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: none
    Chest: none
    Legs: none
    I am: g
    I have:
    ALS

    Howdy became a 3 star data donor! star earnedstar earnedstar earned

  7. 334 thumb
    Howdy
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: none
    Chest: none
    Legs: none
    I am: g
    I have:
    ALS

    Howdy updated his symptoms

    Insomnia, Pain, Stiffness/Spasticity
    Anxious mood, Constipation, Dry mouth at night, Excess saliva, total body fatigue in waves with anxiety and flushed feeling
  8. 334 thumb
    Howdy
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: none
    Chest: none
    Legs: none
    I am: g
    I have:
    ALS

    Howdy completed the QOL survey

  9. 334 thumb
    Howdy
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: none
    Chest: none
    Legs: none
    I am: g
    I have:
    ALS

    Howdy updated his weight

    • Weight: 182 lb
    • BMI: 26.1
  10. 334 thumb
    Howdy
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: none
    Chest: none
    Legs: none
    I am: g
    I have:
    ALS

    Howdy completed the FRS survey

    • FRS: 44
    • none Head
    • none Arms
    • none Torso
    • none Legs
  11. Show more