1. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom completed the QOL survey

    Minor adjustments made at work  - Swimming  - Slight change in diet.

  2. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom updated his symptoms

    BetterUnrefreshing or poor sleep, Pain, Emotional lability
    WorseExhaustion
  3. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom completed the MSRS survey

    • MSRS: 7
    • No symptoms or disability in the specific area Cognition
    • Aware of symptoms but no functional disability Vision
    • No symptoms or disability in the specific area Speech
    • No symptoms or disability in the specific area Swallowing
    • No symptoms or disability in the specific area Upper limb
    • No symptoms or disability in the specific area Walking
    • Aware of symptoms but no functional disability Sensation
  4. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  5. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom was feeling good

    Minor fatuige.

  6. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom was feeling bad

    Not the same fatuige as I normally get , this time the body just feels exhausted but I don't feel like sleeping. Balance is off more but walking ok.

  7. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom completed the MSRS survey

    • MSRS: 7
    • No symptoms or disability in the specific area Cognition
    • Aware of symptoms but no functional disability Vision
    • No symptoms or disability in the specific area Speech
    • No symptoms or disability in the specific area Swallowing
    • No symptoms or disability in the specific area Upper limb
    • Aware of symptoms but no functional disability Walking
    • No symptoms or disability in the specific area Sensation
  8. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom was feeling neutral for

    Feeling better from yesterday night , some aches pains in the morning - as if it's still lingering . Quite tired in the mind from the ups and downs of MS. Its been on the mind nearly constant for the past few days .

  9. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom was feeling bad for

    Bad in the evening - Aches and pains and very strong Fatigue . 

  10. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom was feeling neutral for

    MS related aches and pain from waking up - light weakness to legs - CO-codomal taken at 09:00- Fatuige hit at 10:51 ( noticed smell of fumes from burning / grinding in workshop ) 11:41 - Quite stonge fatuige. 12:15 - Fatuige tapering off. OK after work - No cat nap. Late niht Swimming 30min

  11. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom was feeling neutral for

    Aches and pains the night before. Some fatuige and weakness in the morning . Lifting tube with crane. Having to Neal down to put strop around the lift. Better towards noon.

    Swimming 18:30 for 20min - Facisulations in right arm at 21:00

  12. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom completed the QOL survey

  13. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom updated his symptoms

    BetterMood swings, Memory lapses (brain blinks), Exhaustion
    WorsePain, Emotional lability, Constipation
  14. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom completed the MSRS survey

    • MSRS: 7
    • No symptoms or disability in the specific area Cognition
    • Aware of symptoms but no functional disability Vision
    • No symptoms or disability in the specific area Speech
    • No symptoms or disability in the specific area Swallowing
    • No symptoms or disability in the specific area Upper limb
    • No symptoms or disability in the specific area Walking
    • Aware of symptoms but no functional disability Sensation
  15. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom was feeling neutral for

    Fasciculation in right leg for 4 hours. Painful. Can see the muscles moving. Documented these on camera.

  16. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom was feeling good

  17. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom was feeling neutral

    Fatuige hit at 11:25 - 12:15 , Fatuige hit 13:25 - 15:28 ( aprox 2 hours ) - Busy morning , quieter afternoon - No cat nap in afternoon - Swimming 30min.

  18. 13209 thumb
    mcewthom
    Sex: M
    Data Quality: 2 stars
    Sensation: Mild
    Overall: None
    Cognition: none
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: none
    Walking: none
    I am: g
    I have:
    MS

    mcewthom had a mild relapse

    Date
    -
    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 13209 thumb
      mcewthom
      Sex: M
      Data Quality: 2 stars
      Sensation: Mild
      Overall: None
      Cognition: none
      Vision: mild
      Speech: none
      Swallowing: none
      Upper limb: none
      Walking: none
      I am: g
      I have:
      MS

      mcewthom completed the MSRS survey

      • MSRS: 14
      • No symptoms or disability in the specific area Cognition
      • Aware of symptoms but no functional disability Vision
      • No symptoms or disability in the specific area Speech
      • No symptoms or disability in the specific area Swallowing
      • Aware of symptoms but no functional disability Upper limb
      • Aware of symptoms but no functional disability Walking
      • Aware of symptoms but no functional disability Sensation
    • 13209 thumb
      mcewthom
      Sex: M
      Data Quality: 2 stars
      Sensation: Mild
      Overall: None
      Cognition: none
      Vision: mild
      Speech: none
      Swallowing: none
      Upper limb: none
      Walking: none
      I am: g
      I have:
      MS

      mcewthom was feeling bad

      Bad night, had MS related aches/burning feeling all over the night before and also woke up at 2 am and my right hand, leg and chest were nearly numb - strange sensory problems the morning after with pins and needles in right hand. Pins and needles went away at 11 am but has come back slightly towards the end of tonight. I've been able to walk ok, and I tested my writing out which was fine. MS nurse advised me to wait another 24 hours before classing this as a relapse and also to take it easy. NB, I've noticed that these things come on in stages over a period of hours ...Fatigue > Aches and pains > Sensory problems/ numbness. It appears to me that I rarely get past the fatigue stage. It's the first time in a long time its got to the 3rd stage.

    • Show more