1. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    dixie pixie updated her symptoms

    BetterStumbling, Sinus infection, Restless feeling in legs, Pain in shoulder blades, Pain in arms See more
    WorseSlowness, Memory problems, Freezing of feet, Cramps in feet
  2. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    dixie pixie updated her weight

  3. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's
    I am 80 years young. I was diagnoised with PDF in 2003. The biggest trouble I have is masking of the face, dry eyes, and nor as coordinated as I use to be. I am on sinemet. I know I am fortunate not to have the shakes and other symptoms, but it stillis hard not knowing what will happen in the years to come/ however I an an optomist and am determined not to let this get me down. I am a widow , but haven't given up on a friendly relationship. I am a Tennessee hillbilly=relocated to Cleveland to be near my son. This is me, as my brother calls me The Dixie Pixie.

    I am very much a people person. I know I have let down some of my PLM people by not keeping up with them and not keeping my three stars up.

    I would love to say that I have Parkinson"s but my doctor just told me a month ago , he feels like I do not have Parkinson"s, and it is like Parkinism"s, but again it isn"t.
    How would I describe myself to someone with my medical condition. I first would ask him what is his diagnosis. then I would tell him about mine. Then I would try to keep his spirits up, by being me what ever that is! This is what I would do.  MY NEW DOCTOR SEEMS TO THINK I DO HAVE PARKINSON'S.  OH WELL-- WHAT EVER IT IS IT IS STILL DEBILATATING TO A DEGREE.  I SHALL NOT BECOME DEPRESSED THO!

    4 comments from other members. Only showing public users' comments. Sign up to see all comments!
      1100 thumb
      dixie pixie about 1 year ago

      That is a hard thing to do. if some one does not want to go to the doctor it is hard to get them to go. You might try the caring daughter role. "Mom, I love you and do not want to see you go down hill as you are doing." Or just telling her you had someone you wanted her to see. I wish I had the answer, but I so not. Good luck and please keep me posted. love , Dixie pixie

  4. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's
  5. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    dixie pixie added a treatment evaluation for Carbidopa-Levodopa 25-100

    • Perceived effectiveness for Parkinson's Disease: None
    • Side Effects: None
    • Adherence: Usually
    • Burden: Not at all
    • Dosage: 25 mg-100 mg Daily
    • Cost: < $25 monthly
  6. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's
  7. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    dixie pixie added a treatment evaluation for Carbidopa Levodopa ER

    • Perceived effectiveness for Parkinson's Disease: Major
    • Side Effects: Mild
    • Adherence: Usually
    • Burden: Not at all
    • Dosage: 2 x 25 mg-250 mg Daily
    • Cost: < $25 monthly
  8. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    dixie pixie completed the QOL survey

  9. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    dixie pixie was feeling very good

    iI am at In Motion and plan to take with a Song in my heart and Boxing ,plus a special Dance Class this evening .

  10. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    dixie pixie was feeling good

    Because it is a new year and things have to be better.

  11. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    dixie pixie was feeling good

  12. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    dixie pixie was feeling very good

    I feel my attitude has gotten much better.

  13. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    dixie pixie updated her basic information

  14. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    dixie pixie updated her basic information

  15. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    dixie pixie completed the QOL survey

  16. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    dixie pixie became a 3 star data donor! star earnedstar earnedstar earned

  17. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    dixie pixie completed the PDRS survey

    • PDRS: 26
    • On treatment
    • mild Mouth/throat
    • mild Arms
    • mild Chest
    • mild Legs
  18. 1100 thumb
    dixie pixie
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: mild
    I am: vg
    I have:
    Parkinson's

    dixie pixie updated the condition Parkinson's Disease

    • First symptom:
    • Diagnosis:

    I have had Parkinsons or Parkinsonisms for over 6 years./ sometimes I feel as if it is getting better ==then all of a sudden it tends to get worse. I really wish I knew what I have,. my Doctor says he is not certain. IT does not act like true Parkinson's, but it does not have all the things Parkinsonisms have. it is really a puzzle tome , but I wish
    I knew. I am going to get another opinion next month. will let every one know what is said.

    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 1100 thumb
      dixie pixie
      Sex: F
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: mild
      I am: vg
      I have:
      Parkinson's

      dixie pixie updated her symptoms

      BetterPain, Constipation
      WorseStumbling, Stiffness/Spasticity, Sinus infection, Pain in arms, Fatigue See more
    • 1100 thumb
      dixie pixie
      Sex: F
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: mild
      I am: vg
      I have:
      Parkinson's
    • Show more