1. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Doctors tested all antifungal drugs and is doing me no effect. I also implemented immunoglobulin are not working for me.
    I really feel hopeless

  2. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras is in the hospital for Infectious disease specialist consult

    Admitted
  3. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras stopped taking Amphotericin B

    ReasonDid not seem to work
  4. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras shared details about Nystatin

  5. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras stopped taking Caspofungin

    ReasonDid not seem to work
  6. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras updated the condition Candidiasis (yeast infection)

    • First symptom:
    • Diagnosis:
  7. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras stopped taking posaconazole

    ReasonDid not seem to work
  8. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras added a treatment evaluation for posaconazole from

    • Perceived effectiveness for Oral thrush (candidiasis): None
    • Side Effects: None
    • Adherence: Always
    • Burden: A little
    • Dosage: 40 mg Twice daily
    • Advice & Tips: I haven't any positive response
  9. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras updated his basic information

  10. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras updated his symptoms

    BetterPneumonia symptoms, Pain, Fatigue
    WorseInsomnia
  11. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras updated his weight

  12. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras completed the QOL survey

    • moderate Social
    • moderate Mental
    • moderate Physical
  13. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras updated the condition SCID (Severe Combined Immunodeficiency Disease)

    • First symptom:
    • Diagnosis: ?
  14. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras was in the hospital for Pneumonia symptoms

    Dates
    -
  15. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras became a 3 star data donor! star earnedstar earnedstar earned

  16. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras updated his weight

  17. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras updated his symptoms

    NewInsomnia, Pain, Pneumonia symptoms, Anxious mood, Depressed mood, Fatigue
  18. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras started taking Trimethoprim

    Dosage100 mg daily (starting )
  19. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras started taking Ipratropium Inhalant

    Dosage0.018 mg daily (starting )
  20. Portrait default thumb
    Dieborras
    Data Quality: 1 star
    • Gender: M
    • Age: 28
    Condition: SCID 2 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    SCID

    Dieborras updated the condition Bronchiectasis

    • First symptom:
    • Diagnosis:
  21. Show more