1. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 added a treatment evaluation for Sodium chlorite from

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Moderate
    • Side Effects: Mild
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 950 mL Daily
    • Advice & Tips: Nauseated all day. Still getting headaches right after dosage, but they go away about 45 minutes later. The chills also seem to last about an hour, but then go away. Today is our last dosage day. Pat will begin a 16 day rest starting tomorrow. Overall this first round of OSC has been positive, with mild side effects and a huge unexpected effect of Pat being able to lift his arms (with the two arm lift) to rub his eyes!!!
    • Cost: $25-49 monthly
  2. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 added a treatment evaluation for Sodium chlorite from

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Moderate
    • Side Effects: Mild
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 950 mL Daily
    • Advice & Tips: Nauseated all day, but the gassy feeling has passed (!) Tired today and took a nap in the afternoon...not typical for Pat. Observable (to the eye and to the touch) muscle twitching in upper arms. Pat hasn't had muscle twitching in his arms for at least 3 years. Pat was able to rub his left eye today with the two arm lift.
    • Cost: $25-49 monthly
  3. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 added a treatment evaluation for Sodium chlorite from

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Moderate
    • Side Effects: Mild
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 950 mL Daily
    • Advice & Tips: Pat has been nauseated all day and very gassy (!). But tonight, Pat was able to itch his forehead and rub his right eye. He was using his right hand and using the two arm lift technique but he was able to do it!!! We know he hasn't been able to rub his eye for over a year.
    • Cost: $25-49 monthly
  4. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 added a treatment evaluation for Sodium chlorite from

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
    • Side Effects: Mild
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 950 mL Daily
    • Advice & Tips: Slight headache in the AM, none in the evening. No observed effects.
    • Cost: $25-49 monthly
  5. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 added a treatment evaluation for Sodium chlorite from

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
    • Side Effects: Mild
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 950 mL Daily
    • Advice & Tips: Pat experienced a slight headache upon dosage intake, but it resolves itself in about 45 minutes.
    • Cost: $25-49 monthly
  6. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 added a treatment evaluation for Sodium chlorite from

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
    • Side Effects: Mild
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 950 mL Daily
    • Advice & Tips: Pat experienced a slight headache upon dosage intake, but it resolves itself in about 45 minutes.
    • Cost: $25-49 monthly
  7. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 added a new Forced Vital Capacity Percentage value for

    • Forced Vital Capacity Percentage26 % on
  8. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 added a treatment evaluation for Sodium chlorite

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Can’t tell
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 950 mL Daily
    • Advice & Tips: Pat just took his first "dose" of OSC. Will take another before bed. Because he wasn't able to start until 6:30pm tonight, he will only be taking 1/2 of the recommended amount tonight. (We mixed 6ml of SC into 1 gallon of distilled water, with 1 gram of kosher salt. He will be drinking 950ml a day for 5 days)
    • Cost: $25-49 monthly
  9. 957 thumb
    pdwyer1986
    Sex: M
    Data Quality: 2 stars
    Bulbar: none
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: g
    I have:
    ALS

    pdwyer1986 started using Sodium chlorite

    Schedule950 mL daily (starting )