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Rainbowlady
Sex: F
Data Quality: 0 stars
ALS: 5 yrs
Bi-Pap
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: mild

Rainbowlady

Female, 67 years
Flint, MI

Primary Condition
ALS
First symptom
Diagnosis

About Rainbowlady

this has bee very hard for me to accept, as I was never sick, not even a cold. I was a racewalker with lots of awards. always finishing in the top 3, until last year. I also run my own crochet business where I make baby clothes and lots of animals. I ran a daycare and still teach arts and crafts, but it really is becoming hard to do,they say I still have my talent it's just in my head now. I now have problems zipping up my coat, putting gloves , tying shoes, and anything else that uses my hands, I am finding new ways to do things, I have been my husbands caregiver for a long time.

It is great knowing I am not alone, and that I can talk to others for help in dealing with this. I just wish someone could tell me how to deal with the fact I can't be me.  All of the things and friends are very active.  What now?  I really don't like having to ask for help in doing anything.

Profile Activity
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Member since: Feb 21, 2009
Last Login May 21, 2010