1. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg became a 3 star data donor! star earnedstar earnedstar earned

  2. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg updated his symptoms

    Depressed mood, Excessive yawning, Pain, Stiffness/Spasticity, Weakness in hands
    Back pain, Constipation, Muscle twitching (fasciculations), Hyperreflexia, Low potassium (hypokalemia) See more
  3. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg updated his weight

    • Weight: 220 lb
    • BMI: 30.7
  4. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg completed the QOL survey

    • moderate Social
    • moderate Mental
    • severe Physical
  5. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg completed the FRS survey

    • FRS: 21
    • mild Head
    • moderate Arms
    • mild Torso
    • moderate Legs
  6. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg updated the condition ALS (Amyotrophic Lateral Sclerosis)

    • First symptom: July 1, 1993
    • Diagnosis: October 1, 2001
  7. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg completed the FRS survey

    • FRS: 20
    • mild Head
    • moderate Arms
    • mild Torso
    • moderate Legs
  8. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg was feeling neutral for

    Just another day sitting around & wishing summer was here!

  9. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg added a new Forced Vital Capacity Percentage value for

    • Forced Vital Capacity Percentage51 % on
  10. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg completed the QOL survey

    • moderate Social
    • moderate Mental
    • severe Physical
  11. Show more