1. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: vg
    I have:
    MS

    Sapphyr was feeling very good

    Although still tired from a weekend away, it was a LOT of fun and we met up with some old friends and some new... time to catch up with the TV now emoticon smile

  2. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: vg
    I have:
    MS

    Sapphyr was feeling very good

    It's a lazy Sunday afternoon and my beloved is relaxing by doing the ironing while he watches stuff about wars and things on the telly; for me it's some head-banging new music while I do my writing - what's not to like?

  3. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: vg
    I have:
    MS

    Sapphyr was feeling very good

    Last night we booked a cruise - the Eastern Med, and this morning I made the next batch of bread which is always hard work on a fasting-day! 5:2 diet

    2 comments from other members. Only showing public users' comments. Sign up to see all comments!
      7883 thumb
      Sapphyr about 2 weeks ago

      We're waiting to receive the final confirmation/itinerary now so, day ticking-off time emoticon smile Last night, according to my resident bread-expert - because I specifically asked him, it's as good as usual; which is reassuring to know after a few years of practice!

  4. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: vg
    I have:
    MS

    Sapphyr was feeling very good

    Och, greet mon emoticon smile
    I bought a week's supply of Macsween haggis and we had the first chunk tonight, with a nip, of course - Glenfiddich
    We'll have the next chunk on wee Robbie's night, 25th

  5. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: vg
    I have:
    MS

    Sapphyr was feeling very good

    A very weird and very cold day! As it was gloriously sunny, just before 10:00, I attempted to drive across town to a meeting but, nowadays, typically, I had to give up the moment I encountered two buses flirting with each other and causing a jam emoticon sad
    My brain can't cope with that sort of confusion so, I returned home to recover - five hours later, I'm just tired.
    Such is life but I am still alive emoticon smile

  6. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: vg
    I have:
    MS

    Sapphyr was feeling very good

    Despite it or, perhaps because, being damned cold, I've managed to get lots done today and. in a moment, I'll make us one of my husband's fave dishes - bacon, potato and onion hotpot - we'll have that later with peas and cabbage

  7. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: vg
    I have:
    MS
  8. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: vg
    I have:
    MS

    Sapphyr evaluated Potassium Citrate

    • StartedSep 7, 2013
    • DosageAs needed
    • Effectiveness Major (for Bladder infection)
    • Side effects None
    • Adherence Always
    • Burden A little hard to take
    • Cost< $25 monthly
    • View complete treatment history
  9. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: vg
    I have:
    MS

    Sapphyr was feeling very good

    Despite another dire start to the day's weather, the rest of the day was fine and I managed to get a lot done - shame about the news about Bowie though emoticon sad

  10. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: vg
    I have:
    MS

    Sapphyr completed the QOL survey

  11. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: vg
    I have:
    MS

    Sapphyr completed the MSRS survey

    • MSRS: 60
    • Moderate disability that requires some help from others Cognition
    • Moderate disability that requires some help from others Vision
    • Moderate disability that requires some help from others Speech
    • Aware of symptoms but no functional disability Swallowing
    • Mild disability but not requiring help from others Upper limb
    • Total disability and help always required Walking
    • Aware of symptoms but no functional disability Sensation
  12. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: vg
    I have:
    MS

    Sapphyr was feeling good

    Good, but still very wobbly emoticon sad
    It's been like this for a few months now; if I'm rested, I'm fine but, as the day passes, I become wearier and wearier.
    Sadly, for both of us, my beloved has had to go off and do the week's shopping again emoticon sad
    The upside is that, last weekend, he bought a coat/anorak in the sale emoticon smile
    What will he find today? emoticon smile

    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: moderate
      Walking: severe
      I am: vg
      I have:
      MS

      Sapphyr was feeling very good

      The start of the day was dire when I said goodbye to my beloved in the pouring rain - him, not me!
      As compensation, I popped out, all of 200m, and bought some mush to make him is fave dish, risotto a funghi.
      We've just eaten it and, he and, hence, I am a LOT better emoticon smile
      Curl up on the settee time now to watch a DVD

    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: moderate
      Walking: severe
      I am: vg
      I have:
      MS

      Sapphyr was feeling very good

      When I popped over to collect the paper at 07:02, it was as though a bomb had dropped! Where was everyone and what had they been up to? emoticon smile
      Happy New year!

    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: moderate
      Walking: severe
      I am: vg
      I have:
      MS

      Sapphyr was feeling very good

      A gorgeous morning shared with great company... what's not to like? emoticon smile

    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: moderate
      Walking: severe
      I am: vg
      I have:
      MS

      Sapphyr was feeling very good

      Lunch - pizze, at Pizza Express, with a good friend and lots of goss and catching up with her world, and sharing secrets. Now, afterbathing, an evening of telly (recorded ad-free programmes) for the evening for the pair of us but NO MORE alcohol... until tomorrow, of course emoticon smile

    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: moderate
      Walking: severe
      I am: vg
      I have:
      MS

      Sapphyr was feeling very good

      Great food, great company and great entertainment and the day's not yet over... what's not to like emoticon smile

    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: moderate
      Walking: severe
      I am: vg
      I have:
      MS

      Sapphyr was feeling very good

      We bought an XBox360 to have something other than interminable mawkiness to do over Christmas and I actually manged to configure it emoticon smile

    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: moderate
      Walking: severe
      I am: vg
      I have:
      MS

      Sapphyr updated her symptoms

      WorseEmotional lability, Stiffness/Spasticity, Muscle weakness in arms
    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: moderate
      Walking: severe
      I am: vg
      I have:
      MS

      Sapphyr updated her weight

      • Weight: 80 kg
      • BMI: 24.6
    • Show more