1. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr completed the QOL survey

  2. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr was feeling very good

  3. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr was feeling very good

    Early start to a lovely day.
    Lots of singing/vocal practice...see *
    A bit of (screeching cat) violin practice
    Baked two loaves - black olive and sun-dried toms in granary/wholemeal
    * Much better guitar noodling

  4. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr was feeling very good

    It's dull, dull, wet and miserable but, thankfully, that's just the weather emoticon smile cold is GOOD!

  5. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr completed the MSRS survey

    • MSRS: 53
    • Moderate disability that requires some help from others Cognition
    • Moderate disability that requires some help from others Vision
    • Moderate disability that requires some help from others Speech
    • Aware of symptoms but no functional disability Swallowing
    • Aware of symptoms but no functional disability Upper limb
    • Moderate disability that requires some help from others Walking
    • Aware of symptoms but no functional disability Sensation
  6. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr was feeling very good

    Yet another glorious day and, as my beloved is working locally today, we had a lie-in and, better still, he gets home two hours earlier - just right for a BH w/e emoticon smile

    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: mild
      Walking: moderate
      I am: vg
      I have:
      MS

      Sapphyr updated the condition Multiple Sclerosis

      • First symptom:
      • Diagnosis:
    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: mild
      Walking: moderate
      I am: vg
      I have:
      MS

      Sapphyr was feeling very good

      Woke at 03:00, like you do, and after doing a spot of admin and writing, did some exercise (100 toe-touches - that's 'times', not the number of toes!) in the car park, like you do emoticon smile - it was so warm. After having brekkie with my husband, saw him off at 05:50 and came back to bed to sleep like a log until 10:00 emoticon smile Just spent 45 minutes collecting the paper which should take 5 mins but, due took a lot longer to chatting in the SUN with the locals and my neighbour... someone has to put the world right! Toast, coffee and reading the paper now - what's not to like? emoticon smile

    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: mild
      Walking: moderate
      I am: vg
      I have:
      MS

      Sapphyr was feeling very good

      Perversely, given that it's a dull, dull day and it's a bit chilly, I feel better than I have done for the past few days because... it's a bit chilly emoticon smile

    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: mild
      Walking: moderate
      I am: vg
      I have:
      MS
    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: mild
      Walking: moderate
      I am: vg
      I have:
      MS

      Sapphyr added a treatment evaluation for Tiger Woods Golf on Wii

      • Perceived effectiveness for Personal enjoyment / entertainment: Can’t tell
      • Perceived effectiveness for Balance problems: Can’t tell
      • Side Effects: None
      • Adherence: Sometimes
      • Burden: Somewhat
      • Dosage: 1 other Weekly
      • Advice & Tips: It takes a LONG time for the Wii to get its act together which reduces the time I use it :(
    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: mild
      Walking: moderate
      I am: vg
      I have:
      MS
    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: mild
      Walking: moderate
      I am: vg
      I have:
      MS

      Sapphyr added a treatment evaluation for Heat avoidance

      • Perceived effectiveness for Heat intolerance: Major
      • Side Effects: Severe
      • Adherence: Usually
      • Burden: Somewhat
      • Dosage: As needed
      • Advice & Tips: Find something vaguely sociable to do when avoiding the heat - I play the guitar and other listen :) ...as if they have a choice!
    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: mild
      Walking: moderate
      I am: vg
      I have:
      MS
    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: mild
      Walking: moderate
      I am: vg
      I have:
      MS

      Sapphyr added a treatment evaluation for Handicap/Disability Parking Permit

      • Perceived effectiveness for Walking problems: Major
      • Perceived effectiveness for Improve mobility: Major
      • Perceived effectiveness for Fatigue: Major
      • Perceived effectiveness for Balance problems: Major
      • Side Effects: None
      • Adherence: Always
      • Burden: Not at all
      • Dosage: As needed
      • Advice & Tips: The availability of disabled spaces gets better every year :)
      • Cost: Not specified monthly
    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: mild
      Walking: moderate
      I am: vg
      I have:
      MS
    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: mild
      Walking: moderate
      I am: vg
      I have:
      MS

      Sapphyr added a treatment evaluation for TENS Transcutaneous Electrical Nerve Stimulation from

      • Perceived effectiveness for General health: Moderate
      • Side Effects: None
      • Adherence: Sometimes
      • Burden: Not at all
      • Dosage: As needed
      • Cost: Not specified monthly
    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: mild
      Walking: moderate
      I am: vg
      I have:
      MS
    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: mild
      Walking: moderate
      I am: vg
      I have:
      MS

      Sapphyr added a treatment evaluation for Potassium Citrate

      • Perceived effectiveness for Bladder infection: Moderate
      • Side Effects: None
      • Adherence: Usually
      • Burden: Not at all
      • Dosage: As needed
      • Cost: Not specified monthly
    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 3 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: moderate
      Swallowing: mild
      Upper limb: mild
      Walking: moderate
      I am: vg
      I have:
      MS
    • Show more