1. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr completed the QOL survey

    The weather emoticon smile

  2. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr updated her symptoms

    BetterAnxious mood, Depressed mood, Emotional lability, Excessive daytime sleepiness (somnolence), Heat and cold exacerbate symptoms See more
    Worseexercise, Feel very relaxed, Increased shopping, Relaxation
  3. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr completed the MSRS survey

    • MSRS: 57
    • Total disability and help always required Cognition
    • Moderate disability that requires some help from others Vision
    • Moderate disability that requires some help from others Speech
    • Aware of symptoms but no functional disability Swallowing
    • Aware of symptoms but no functional disability Upper limb
    • Moderate disability that requires some help from others Walking
    • Aware of symptoms but no functional disability Sensation

    Thankfully, summer has not arrived... yet!

  4. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS
  5. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr added a treatment evaluation for Handicap/Disability Parking Permit

    • Perceived effectiveness for Improve mobility: Major
    • Perceived effectiveness for Balance problems: Major
    • Perceived effectiveness for Walking problems: Major
    • Perceived effectiveness for Fatigue: Major
    • Side Effects: Severe
    • Adherence: Always
    • Burden: A little
    • Dosage: As needed
    • Cost: < $25 monthly
  6. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr became a 3 star data donor! star earnedstar earnedstar earned

  7. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr updated her weight

  8. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr completed the QOL survey

  9. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr updated her symptoms

    BetterIncreased shopping, Feel very relaxed
    WorseAnxious mood, Depressed mood, Lack of flexibility
  10. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr was feeling very good

    I'm married to a wonderful man emoticon smile

  11. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr updated the condition Urge Incontinence

    • First symptom: ?
    • Diagnosis: ?
  12. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr was feeling very good

    We've just had a lovely weekend away and met lots of new friends emoticon smile

  13. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr became a 3 star data donor! star earnedstar earnedstar earned

  14. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr updated the condition Multiple Sclerosis

    • First symptom:
    • Diagnosis:
  15. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr completed the MSRS survey

    • MSRS: 60
    • Total disability and help always required Cognition
    • Total disability and help always required Vision
    • Total disability and help always required Speech
    • Mild disability but not requiring help from others Swallowing
    • No symptoms or disability in the specific area Upper limb
    • Moderate disability that requires some help from others Walking
    • No symptoms or disability in the specific area Sensation
  16. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr completed the QOL survey

  17. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr updated her symptoms

    WorseDifficulty doing chores, Mood swings, Word fishing
  18. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr updated her weight for

  19. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr completed the MSRS survey

    • MSRS: 67
    • Total disability and help always required Cognition
    • Moderate disability that requires some help from others Vision
    • Total disability and help always required Speech
    • Aware of symptoms but no functional disability Swallowing
    • Mild disability but not requiring help from others Upper limb
    • Total disability and help always required Walking
    • Aware of symptoms but no functional disability Sensation

    Thank goodness I have a caring, understanding husband emoticon smile

  20. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: moderate
    Speech: moderate
    Swallowing: mild
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    Sapphyr updated her bio

    I live with my husband/carer in Cambridge, UK I am registered disabled and the 'Blue Disc' parking scheme has helped me enormously as I now manage to do far more things that were, previously, very awkward.

    My professional profile is at http://www.jayne-crean.com/

    Although I steadily experienced symptoms that were later diagnosed as MS, my initial, severe, flares were in early 2001 and futher tests established that this was MS.

    My ability to work rapidly deteriorated through the year until I was forced to resign from 85% of the positions I previously held.

    Through 2002 to 2004, I walked 11km to the gym and back three times a week which helped to defer the physical restrictions of MS; my physiotherapist, at that time, worked with recovering stroke victims at a local hospital which was en route to the gym and we discovered how similar the effects of a damaged brain are... and aren't!

    I also studied a Creative Writing course which helped to overcome the mental restrictions and this gave me some new interests like Metaphysical Poetry!In 2004, I moved to Cambridge and met the man who is now my husband and, very willing, carer.

    I studied an Eng. Lit. course and still write contemporary fiction when I can.

    I used to play baroque recorder, piano, synthesisers and guitar but, sadly, I now go through the the motions as I was scaring the cats and the neighbours to much!

    I have three daughters who have left home and, in January, 2008 I became a grandmother now to a grandson and a granddaughter

     

     

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