1. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr completed the MSRS survey

    • MSRS: 67
    • Total disability and help always required Cognition
    • Total disability and help always required Vision
    • Total disability and help always required Speech
    • Aware of symptoms but no functional disability Swallowing
    • Aware of symptoms but no functional disability Upper limb
    • Total disability and help always required Walking
    • Aware of symptoms but no functional disability Sensation

    The usual, the heat emoticon sad

  2. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr was feeling good

  3. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr was feeling good

    Er, because I didn't feel bad? emoticon smile

  4. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr became a 3 star data donor! star earnedstar earnedstar earned

  5. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr updated her weight

  6. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr completed the QOL survey

  7. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr updated the condition Urge Incontinence

    • First symptom: ?
    • Diagnosis: ?
  8. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr updated her symptoms

    Betterexercise, Feel very relaxed, Increased shopping, Relaxation
    WorseEmotional lability, Excessive daytime sleepiness (somnolence), Heat and cold exacerbate symptoms, Heat intolerance, Stiffness/Spasticity
  9. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr updated the condition Multiple Sclerosis

    • First symptom:
    • Diagnosis:
  10. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr completed the QOL survey

    The weather emoticon smile

  11. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr updated her symptoms

    BetterAnxious mood, Depressed mood, Emotional lability, Excessive daytime sleepiness (somnolence), Heat and cold exacerbate symptoms See more
    Worseexercise, Feel very relaxed, Increased shopping, Relaxation
  12. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr completed the MSRS survey

    • MSRS: 57
    • Total disability and help always required Cognition
    • Moderate disability that requires some help from others Vision
    • Moderate disability that requires some help from others Speech
    • Aware of symptoms but no functional disability Swallowing
    • Aware of symptoms but no functional disability Upper limb
    • Moderate disability that requires some help from others Walking
    • Aware of symptoms but no functional disability Sensation

    Thankfully, summer has not arrived... yet!

  13. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS
  14. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr added a treatment evaluation for Handicap/Disability Parking Permit

    • Perceived effectiveness for Improve mobility: Major
    • Perceived effectiveness for Balance problems: Major
    • Perceived effectiveness for Walking problems: Major
    • Perceived effectiveness for Fatigue: Major
    • Side Effects: Severe
    • Adherence: Always
    • Burden: A little
    • Dosage: As needed
    • Cost: < $25 monthly
  15. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr became a 3 star data donor! star earnedstar earnedstar earned

  16. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr updated her weight

  17. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr completed the QOL survey

  18. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr updated her symptoms

    BetterIncreased shopping, Feel very relaxed
    WorseAnxious mood, Depressed mood, Lack of flexibility
  19. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr was feeling very good

    I'm married to a wonderful man emoticon smile

  20. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: severe
    Swallowing: mild
    Upper limb: mild
    Walking: severe
    I am: g
    I have:
    MS

    Sapphyr was feeling very good

    We've just had a lovely weekend away and met lots of new friends emoticon smile

  21. Show more