1. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 2 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: severe
    Swallowing: moderate
    Upper limb: moderate
    Walking: severe
    I am: vg
    I have:
    MS

    Sapphyr was feeling very good

    Technically, it's a bit hard to tell at 09:55.
    I woke at 04:15 to sort out my beloved's brekkie and packed lunch.
    As usual, at 06:20, I popped back to bed for a post-prandial nap
    I woke again at 09:54.
    Now, it's time to collect the paper now and digest the news, and toast and coffee,

    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 2 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: severe
      Swallowing: moderate
      Upper limb: moderate
      Walking: severe
      I am: vg
      I have:
      MS

      Sapphyr was feeling very good

      A bit tired but gorgeous weather always helps emoticon smile

    • 7883 thumb
      Sapphyr
      Sex: F
      Data Quality: 2 stars
      Sensation: Mild
      Overall: Moderate
      Cognition: moderate
      Vision: moderate
      Speech: severe
      Swallowing: moderate
      Upper limb: moderate
      Walking: severe
      I am: vg
      I have:
      MS

      Sapphyr was feeling very good

      Despite having a disturbed night - too hot, I managed to get LOTS done emoticon smile
      Baked two loves and cleared up afterwards.
      Bought, another, summer skirt for our cruise - https://www.purecollection.com/clothing/womens-skirts/pencil_skirt_3.htm?showDefault=1
      Fiddled with my Abelton Push - https://www.ableton.com/en/push/
      Noodled on the gee-tar as my fingers know how to do that better than pressing buttons emoticon smile
      Did a lot more writing and editing.
      Waiting for the 'I'm on my way' SMS from my beloved so 90mins nap in a few mins for the interim
      Prep and eat noisettes of beef to add to the stir-fry - it's a fasting-day so a heap of foliage with that
      An evening of winding down... slowly emoticon smile

      1 comment from other members. Only showing public users' comments. Sign up to see all comments!
      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr was feeling very good for

        We're off on our hols soon emoticon smile

      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr was feeling very good for

        Managed to get lots done emoticon smile

      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr updated the condition Urge Incontinence

        • First symptom: ?
        • Diagnosis: ?
      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr was feeling very good for

        It was our wedding anniversary yesterday and we had a meal at our fave restaurant to celebrate - what's not to feel very good about? emoticon smile

      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr was feeling very good

        A lovely, lazy start doing nothing slowly emoticon smile
        My beloved is working at one of their local offices today so we started at 06:30 - as opposed to 04:45 - our usual time! emoticon smile
        As the radio nowadays is largely incomprehensible to me, I'll have brekkie part-II and more caffeine while I read the paper and, after that, lots more writing emoticon smile

        2 comments from other members. Only showing public users' comments. Sign up to see all comments!
          7883 thumb
          Sapphyr about 3 months ago

          TBH, most days are pretty damned good - life's too short to whinge and moan all the time! emoticon smile

      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr completed the QOL survey

      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr was feeling very good

        I've just made my husband ... and me, one of our fave dishes - bacon, potato and onion hot-pot - plus some chorizo to enhance the piggy emoticon smile

      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr completed the MSRS survey

        • MSRS: 67
        • Moderate disability that requires some help from others Cognition
        • Moderate disability that requires some help from others Vision
        • Total disability and help always required Speech
        • Mild disability but not requiring help from others Swallowing
        • Mild disability but not requiring help from others Upper limb
        • Total disability and help always required Walking
        • Aware of symptoms but no functional disability Sensation
      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr was feeling very good

        I managed to do a lot more than I expected emoticon smile

      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr was feeling very good for

        Despite still being a bit wobbly, I managed to do a lot of writing and playing the geetah emoticon smile

      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr was feeling good

        A LOT less wobbly than yesterday emoticon smile ...it seems we're both going down with a cold now and that generally hits me for six emoticon sad

      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr was feeling bad

        Cold + tired = very wobbly emoticon sad

      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr updated the condition Multiple Sclerosis

        • First symptom: August 1, 1998
        • Diagnosis: February 1, 2001
      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr was feeling very good

        OK, very good but very wobbly - however, by doing nothing, slowly, I'm bearing up and managing to do a lot of writing.
        The glorious weather helps too emoticon smile

      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr was feeling very good

        It's the usual paradox - overheating in the sun on one side of the house >23C but cooling down on the other <7C so: bake some bread; write; read; eat; knock-back; write, mail - note baking on the cool side and eating in the sun to make vitamin D and all that emoticon smile

      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr updated her weight

        • Weight: 80 kg
        • BMI: 24.6
      • 7883 thumb
        Sapphyr
        Sex: F
        Data Quality: 2 stars
        Sensation: Mild
        Overall: Moderate
        Cognition: moderate
        Vision: moderate
        Speech: severe
        Swallowing: moderate
        Upper limb: moderate
        Walking: severe
        I am: vg
        I have:
        MS

        Sapphyr updated her symptoms

        BetterRelaxation, Muscle weakness in arms
        Worseexercise
      • Show more