1. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry was feeling neutral

    My right hip and thigh hurts like my joint hurting this happens alot

    2 comments from other members. Only showing public users' comments. Sign up to see all comments!
    • 5514 thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: n
      I have:
      ALS

      papaw perry was feeling neutral

    • 5514 thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: n
      I have:
      ALS
      I'm papaw perry, 74  years old. I had a EMG Test done 4 Dec 2008 and was diagnosed with ALS and thought I had a slow Progression type. Had a EMG Test done 18 March 2010 showed worse.I'm under the care of the VA in Athens and Augusta, Ga. I must use a walker and wheel-chair. My balance is bad and my muscles are deteriorating. My speech is slurred and is slowly getting worse.I have spastisity in my legs ,arms, hands and shoulder's. I had to retire on disability Aug-07. My legs have cramped and spasticity mostly of the night since I came back from Vietnam in Jan. 68.

      I'm a retired, disability since Aug. 2006. My problems were first in my speech. It sounded slurred and as though I was speaking through my nose. My balance was next, I would drag my toe of my booth or shoe and would stumble. This started in 2000 and I began seeing a doctor. I was working in Augusta, Ga. and started seeing the doctors in Augusta Medical Center. I starting going to the VA which is in the same area. I live in Loganville, Ga. and transferred my Primary Care to Athens VA but I still see the neuro in Augusta the new facility in Athens is strictly Primary Care. I use a walker and wheel-chair. My balance is bad and will fall when not holding.My wife is a big help. She keeps my medicine straight and is my driver. My wife helps me with getting dressed. She prepares my food and uses a blender to help with not getting choked. I drink through a straw to help with not strangling myself.I beat Polio when I was ( 9 years old and I hope to beat this ALS. My legs have cramped and spasticity mostly of the night when in bed. They have hurt since Jan. 1968, when I came back from Vietnam. I believe the Agent-Orange was why I've got ALS. I was approved for a wheel-chair by the VA, and received it. I've had a appointment at the ALS Clinic in August, Ga. 1st week of June 09, and the Neurologist said he would work with my Neurologist at the VA. Scheduled to have lungs checked 24 Mar.2010. VA has been good to me with service's and I'm thankful for thier service.I'm using the Bi-Pap machine of the night and it's hard to get use to. I have a cough assist machine to use during the day as needed.I'm gein bt

    • 5514 thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: n
      I have:
      ALS

      papaw perry became a 3 star data donor! star earnedstar earnedstar earned

    • 5514 thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: n
      I have:
      ALS

      papaw perry completed the FRS survey

      • FRS: 23
      • mild Head
      • moderate Arms
      • mild Torso
      • moderate Legs
    • 5514 thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: n
      I have:
      ALS

      papaw perry updated his weight

      • Weight: 193 lb
      • BMI: 28.5
    • 5514 thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: n
      I have:
      ALS
    • 5514 thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: n
      I have:
      ALS

      papaw perry evaluated Amlodipine

      • StartedJul 2, 2008
      • Dosage10 mg Daily
      • Effectiveness Major (for Elevated blood pressure)
      • Side effects None
      • Adherence Always
      • Burden Not at all hard to take
      • View complete treatment history
    • 5514 thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: n
      I have:
      ALS
    • 5514 thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: n
      I have:
      ALS

      papaw perry updated the condition ALS (Amyotrophic Lateral Sclerosis)

      • First symptom: January 1, 1968
      • Diagnosis: December 1, 2008
    • 5514 thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: n
      I have:
      ALS

      papaw perry updated his symptoms

      BetterExcessive yawning, Endurance reduced (whole body)
      WorseWeakness in legs, Swelling in feet, Swelling in ankles, Stiffness/Spasticity, Spasticity See more
    • 5514 thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: n
      I have:
      ALS

      papaw perry was feeling neutral

      Cramps in legs

      1 comment from other members. Only showing public users' comments. Sign up to see all comments!
      • 5514 thumb
        papaw perry
        Sex: M
        Data Quality: 2 stars
        Bulbar: mild
        Arms: moderate
        Chest: mild
        Legs: moderate
        I am: n
        I have:
        ALS

        papaw perry was feeling neutral

      • 5514 thumb
        papaw perry
        Sex: M
        Data Quality: 2 stars
        Bulbar: mild
        Arms: moderate
        Chest: mild
        Legs: moderate
        I am: n
        I have:
        ALS

        papaw perry was feeling neutral

        Cramps of the night in my thighs

        1 comment from other members. Only showing public users' comments. Sign up to see all comments!
        • 5514 thumb
          papaw perry
          Sex: M
          Data Quality: 2 stars
          Bulbar: mild
          Arms: moderate
          Chest: mild
          Legs: moderate
          I am: n
          I have:
          ALS

          papaw perry was feeling neutral

        • 5514 thumb
          papaw perry
          Sex: M
          Data Quality: 2 stars
          Bulbar: mild
          Arms: moderate
          Chest: mild
          Legs: moderate
          I am: n
          I have:
          ALS

          papaw perry was feeling neutral

        • 5514 thumb
          papaw perry
          Sex: M
          Data Quality: 2 stars
          Bulbar: mild
          Arms: moderate
          Chest: mild
          Legs: moderate
          I am: n
          I have:
          ALS

          papaw perry was feeling neutral

        • 5514 thumb
          papaw perry
          Sex: M
          Data Quality: 2 stars
          Bulbar: mild
          Arms: moderate
          Chest: mild
          Legs: moderate
          I am: n
          I have:
          ALS

          papaw perry was feeling neutral

        • 5514 thumb
          papaw perry
          Sex: M
          Data Quality: 2 stars
          Bulbar: mild
          Arms: moderate
          Chest: mild
          Legs: moderate
          I am: n
          I have:
          ALS

          papaw perry was feeling neutral

        • 5514 thumb
          papaw perry
          Sex: M
          Data Quality: 2 stars
          Bulbar: mild
          Arms: moderate
          Chest: mild
          Legs: moderate
          I am: n
          I have:
          ALS

          papaw perry was feeling neutral

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