1. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Am in so much pain then yesterday morning at 8:40am my precious friend, Spiritual Director, and Godmother/sponsor into the Church died from complication from throat cancer. She will sorely missed by me...she was so supportive me, my health and generally always there to boost my spirits. I am just lost and my is worse.p

    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 9 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      SisterHermit was feeling very bad

    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 9 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      SisterHermit was feeling very bad

      I must have pulled some scar tissue because I am just burning with pain.

    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 9 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      SisterHermit was feeling very bad

      Pain, Pain, Pain

      1 comment from other members. Only showing public users' comments. Sign up to see all comments!
      • 67555 thumb
        SisterHermit
        Data Quality: 2 stars
        • Sex: F
        • Age: 60
        Condition: Neurofibromatosis 9 additional condition(s)
        Quality of Life:
        • Mental: Moderate
        • Physical: Moderate
        I am: vb
        I have:
        Neurofibromatosis

        SisterHermit was feeling very bad

        Pain everywhere...see surgeon 6/1/15 to fix hernia and make repairs. I am having really bad nausea, gas, and unable to eat my yogurt without feeling worse. Thank God I can still drink cafe lattes.

      • 67555 thumb
        SisterHermit
        Data Quality: 2 stars
        • Sex: F
        • Age: 60
        Condition: Neurofibromatosis 9 additional condition(s)
        Quality of Life:
        • Mental: Moderate
        • Physical: Moderate
        I am: vb
        I have:
        Neurofibromatosis

        SisterHermit was feeling very bad

      • 67555 thumb
        SisterHermit
        Data Quality: 2 stars
        • Sex: F
        • Age: 60
        Condition: Neurofibromatosis 9 additional condition(s)
        Quality of Life:
        • Mental: Moderate
        • Physical: Moderate
        I am: vb
        I have:
        Neurofibromatosis

        SisterHermit was feeling very bad

      • 67555 thumb
        SisterHermit
        Data Quality: 2 stars
        • Sex: F
        • Age: 60
        Condition: Neurofibromatosis 9 additional condition(s)
        Quality of Life:
        • Mental: Moderate
        • Physical: Moderate
        I am: vb
        I have:
        Neurofibromatosis

        In hospital taking tests...not fun.

      • 67555 thumb
        SisterHermit
        Data Quality: 2 stars
        • Sex: F
        • Age: 60
        Condition: Neurofibromatosis 9 additional condition(s)
        Quality of Life:
        • Mental: Moderate
        • Physical: Moderate
        I am: vb
        I have:
        Neurofibromatosis

        SisterHermit was feeling very bad

        going into hospital for two days for tests. Very tired.

      • 67555 thumb
        SisterHermit
        Data Quality: 2 stars
        • Sex: F
        • Age: 60
        Condition: Neurofibromatosis 9 additional condition(s)
        Quality of Life:
        • Mental: Moderate
        • Physical: Moderate
        I am: vb
        I have:
        Neurofibromatosis

        SisterHermit completed the PFRS survey

        • PFRS: 43
        • Fatigue: Most
        • Sleep: All
        • Stiffness: Most
        • Pain: All
        • External Stress: None
      • 67555 thumb
        SisterHermit
        Data Quality: 2 stars
        • Sex: F
        • Age: 60
        Condition: Neurofibromatosis 9 additional condition(s)
        Quality of Life:
        • Mental: Moderate
        • Physical: Moderate
        I am: vb
        I have:
        Neurofibromatosis

        SisterHermit was feeling very bad

        Just so sick.

      • 67555 thumb
        SisterHermit
        Data Quality: 2 stars
        • Sex: F
        • Age: 60
        Condition: Neurofibromatosis 9 additional condition(s)
        Quality of Life:
        • Mental: Moderate
        • Physical: Moderate
        I am: vb
        I have:
        Neurofibromatosis

        SisterHermit updated the condition MRSA (Methicillin-Resistant Staphylococcus Aureus)

        • First symptom:
        • Diagnosis: ?
      • 67555 thumb
        SisterHermit
        Data Quality: 2 stars
        • Sex: F
        • Age: 60
        Condition: Neurofibromatosis 9 additional condition(s)
        Quality of Life:
        • Mental: Moderate
        • Physical: Moderate
        I am: vb
        I have:
        Neurofibromatosis

        SisterHermit was feeling very bad

        Saw Dr Bender yesterdar. , got fluids, Pamie nd, somthing nausea and muscle relaxer. Go into hospital Monday am for overnight stay and tests.

        1 comment from other members. Only showing public users' comments. Sign up to see all comments!
        • 67555 thumb
          SisterHermit
          Data Quality: 2 stars
          • Sex: F
          • Age: 60
          Condition: Neurofibromatosis 9 additional condition(s)
          Quality of Life:
          • Mental: Moderate
          • Physical: Moderate
          I am: vb
          I have:
          Neurofibromatosis

          SisterHermit became a 3 star data donor! star earnedstar earnedstar earned

        • 67555 thumb
          SisterHermit
          Data Quality: 2 stars
          • Sex: F
          • Age: 60
          Condition: Neurofibromatosis 9 additional condition(s)
          Quality of Life:
          • Mental: Moderate
          • Physical: Moderate
          I am: vb
          I have:
          Neurofibromatosis

          SisterHermit was feeling very bad

          Pain above level 10, fatigue, depression due to the pain, itching from New skin condition, hot and miserable.

        • 67555 thumb
          SisterHermit
          Data Quality: 2 stars
          • Sex: F
          • Age: 60
          Condition: Neurofibromatosis 9 additional condition(s)
          Quality of Life:
          • Mental: Moderate
          • Physical: Moderate
          I am: vb
          I have:
          Neurofibromatosis

          SisterHermit was feeling very bad

          Mood is good but pain is beyond unbearable.

        • 67555 thumb
          SisterHermit
          Data Quality: 2 stars
          • Sex: F
          • Age: 60
          Condition: Neurofibromatosis 9 additional condition(s)
          Quality of Life:
          • Mental: Moderate
          • Physical: Moderate
          I am: vb
          I have:
          Neurofibromatosis
        • 67555 thumb
          SisterHermit
          Data Quality: 2 stars
          • Sex: F
          • Age: 60
          Condition: Neurofibromatosis 9 additional condition(s)
          Quality of Life:
          • Mental: Moderate
          • Physical: Moderate
          I am: vb
          I have:
          Neurofibromatosis

          SisterHermit shared details about Marijuana

          Stopped
        • 67555 thumb
          SisterHermit
          Data Quality: 2 stars
          • Sex: F
          • Age: 60
          Condition: Neurofibromatosis 9 additional condition(s)
          Quality of Life:
          • Mental: Moderate
          • Physical: Moderate
          I am: vb
          I have:
          Neurofibromatosis

          SisterHermit added a treatment evaluation for Marijuana from

          • Perceived effectiveness for Pain: Major
          • Side Effects: None
          • Adherence: Always
          • Burden: Not at all
          • Dosage: 1 INH Four times daily
          • Advice & Tips: I was young and in pain and used it for recreation and pain control for 13 years. No effect at all on my daily life worked full-time and a part time job too.
          • Cost: $25-49 monthly
        • 67555 thumb
          SisterHermit
          Data Quality: 2 stars
          • Sex: F
          • Age: 60
          Condition: Neurofibromatosis 9 additional condition(s)
          Quality of Life:
          • Mental: Moderate
          • Physical: Moderate
          I am: vb
          I have:
          Neurofibromatosis

          Feeling one step above so that is better.

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