1. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    Just ache but thank God I am still here.

  2. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit updated the condition COPD (Chronic Obstructive Pulmonary Disease)

    • First symptom:
    • Diagnosis:
  3. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit updated her symptoms

    BetterVitamin D deficiency, Muscle spasms
    WorseInsomnia, Headaches, Depressed mood, Brain fog, Balance problems
    NewViral syndrome, Limited range of motion, Joint pain, Joint crackling (crepitus), Chronic Epstein-Barr Virus
  4. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit completed the PFRS survey

    • PFRS: 43
    • Fatigue: All
    • Sleep: All
    • Stiffness: All
    • Pain: All
    • External Stress: Severe
  5. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  6. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  7. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    Just totally worn out. Will fine out about mammogram results today.

  8. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    PAIN!!!!!! See Dr Bender today.

  9. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  10. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  11. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit updated the condition Spondylosis

    • First symptom:
    • Diagnosis:
  12. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    The same, stressed and being depressed about being sick.

  13. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  14. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Kids REALLY DON'T LIKE this BACTRIM syrup, Dr. Bender so fibbed about this antibiotic I have to take until I clear up the MRSA in my breasts and nodes. I hurt like hell.

  15. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  16. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  17. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    I seem to be doing better the Oxycodone but then again it could honeymoon period after being my breakthrough pain meds for weeks Just read concerned about MRSA being in both breast and my lymph nodes...AND having take yet another antibiotic along with the Keflex I take everyday already. aa well could be worse.

  18. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    Had my appointment with Dr Bender yesterday and were able to switch, to oxycodone 5 mg no Tylenol, two tablets every 4-6 hours and that was Hugh improvement over having no breakthrough medications at all. He also told me that pain in my breasts and lymph nodes is MRSA so more antibiotics sulfa type too big swallow so he gave me the children's syrup saying "the kids just love the syrup" I personally I have eaten better hagis then this syrup. He also put me on Hydroxyzine Pam 25mg for my body hates my body rash and work very well. He did say he would watch webinar on Palliative Care. So I see him again in two week have a mammogram, then meet for office to see where we are.

    It's just like it is never over...I find myself depressed and feeling hopeless about anything helping anymore. I still have kidney stone and need a hernia repair but with more MRSA popping up no one will operate now.

  19. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit started taking Oxycodone

    Dosage240 x 5 mg/5 mL four times daily (starting )
  20. 67555 thumb
    SisterHermit
    Data Quality: 1 star
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 10 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit started taking Carisoprodol

    Dosage350 mg four times daily (starting )
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