1. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Enough said and someone took. my meds again so I only have enough to get to Thursday and my refill will not happen again until the 26th.

  2. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    Just feeling generally bad...fatigue and aching all over.

  3. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    No sleep, pain, pain, pain.

  4. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    abdominal/pelvic cramps absolutely horrible this evening along with nausea...oh boy, some fun...some reason for staying on this mortal coil.

  5. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  6. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit became a 3 star data donor! star earnedstar earnedstar earned

  7. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  8. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Still grieving had to tell a mutual friend that my God mother, Elaine had passed away...it reopened the wound.

  9. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    in bed but not feeling at all comfortable...hips, thighs, legs and feet aching. Dr. Bender is on vacation, 4eally need to hi but he will not get back until my appointment w with him on the 17th. This week has been one of asking myself it the pain is worth...if life is worth going on living this pain.

  10. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit completed the PFRS survey

    • PFRS: 43
    • Fatigue: All
    • Sleep: All
    • Stiffness: Most
    • Pain: All
    • External Stress: Moderate
  11. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  12. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Took shower but was almost. touch to move let alone shower. I jus t don't understand why they don't find a way to help with domestic things.

  13. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit became a 3 star data donor! star earnedstar earnedstar earned

  14. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis
  15. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  16. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  17. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    beyond very bad I should be in the ER but this is a very. small town and while I am very blessed in so many ways living here...MEDICAL is NO t. my GP is great but generally. if. he is working his shift or going too. to continuing education he is not working ER.

  18. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  19. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  20. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Gender: F
    • Age: 60
    Condition: Neurofibromatosis 9 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Cramping from phleboliths (?), nauseous, itching from my lovely body attack on itself rash on my back, and no sleep last night and an hour nap.

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