1. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain stopped taking Riluzole

    ReasonExpense
  2. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain updated his weight

  3. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  4. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  5. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain updated his symptoms

    BetterWeakness in legs, Coughing while eating
    WorseLoss of coordination, Headaches, Foot drop, Falls, Constipation See more
  6. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  7. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  8. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain completed the FRS survey

    • FRS: 18
    • mild Head
    • moderate Arms
    • mild Torso
    • moderate Legs
  9. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain started taking Claritin Allergy 24 Hour

    Dosage10 mg daily (starting )
  10. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain updated his weight

  11. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  12. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  13. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain updated his symptoms

    BetterSwollen feet, Constipation, Claw-like cramps in hands, Loss of coordination
    WorseFingers curl, Excess saliva, Difficulty standing
  14. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain updated his weight

  15. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  16. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain completed the FRS survey

    • FRS: 17
    • mild Head
    • moderate Arms
    • moderate Torso
    • moderate Legs
  17. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain updated the condition ALS (Amyotrophic Lateral Sclerosis)

    • First symptom:
    • Diagnosis:
  18. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain added a new Forced Vital Capacity Percentage value

    • Forced Vital Capacity Percentage21 % on
  19. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain updated his symptoms

    BetterEmotional lability, Difficulty standing, Stiffness/Spasticity, Spasms in jaw, Neck pain, Loss of manual dexterity
    WorseLoss of balance, Inability to walk, Foot drop, Fingers curl, Coughing while eating See more
  20. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  21. Show more