1. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain stopped taking Riluzole

    ReasonExpense
  2. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain updated his weight

    • Weight: 145 lb
    • BMI: 21.4
  3. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  4. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  5. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain updated his symptoms

    BetterCoughing while eating, Weakness in legs
    WorseChoking on food, Claw-like cramps in hands, Constipation, Falls, Foot drop See more
  6. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  7. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  8. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain completed the FRS survey

    • FRS: 18
    • mild Head
    • moderate Arms
    • mild Torso
    • moderate Legs
  9. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain started taking Claritin Allergy 24 Hour

    Dosage10 mg daily (starting )
  10. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain updated his weight

    • Weight: 145 lb
    • BMI: 21.4
  11. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  12. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  13. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain updated his symptoms

    BetterClaw-like cramps in hands, Constipation, Loss of coordination, Swollen feet
    WorseDifficulty standing, Excess saliva, Fingers curl
  14. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain updated his weight

    • Weight: 145 lb
    • BMI: 21.4
  15. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  16. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain completed the FRS survey

    • FRS: 17
    • mild Head
    • moderate Arms
    • moderate Torso
    • moderate Legs
  17. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain updated the condition ALS (Amyotrophic Lateral Sclerosis)

    • First symptom: September 1, 2007
    • Diagnosis: June 1, 2008
  18. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain added a new Forced Vital Capacity Percentage value

    • Forced Vital Capacity Percentage21 % on
  19. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain updated his symptoms

    BetterDifficulty standing, Emotional lability, Loss of manual dexterity, Neck pain, Spasms in jaw, Stiffness/Spasticity
    WorseBalance problems, Claw-like cramps in hands, Coughing while eating, Fingers curl, Foot drop See more
  20. 13547 thumb
    mountainrain
    Sex: M
    Data Quality: 1 star
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: vg
    I have:
    ALS

    mountainrain became a 3 star data donor! star earnedstar earnedstar earned

  21. Show more