1. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB completed the QOL survey

    • moderate Social
    • moderate Mental
    • moderate Physical
  2. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB completed the MSRS survey

    • MSRS: 35
    • Moderate disability that requires some help from others Cognition
    • No symptoms or disability in the specific area Vision
    • Aware of symptoms but no functional disability Speech
    • Aware of symptoms but no functional disability Swallowing
    • No symptoms or disability in the specific area Upper limb
    • Mild disability but not requiring help from others Walking
    • Moderate disability that requires some help from others Sensation
  3. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  4. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB shared details about Ultram

    Stopped
  5. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB added a treatment evaluation for Ultram from

    • Perceived effectiveness for Fibromyalgia: Major
    • Perceived effectiveness for Chronic pain: Moderate
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 300 mg Daily
    • Advice & Tips: Def recommend taking this along with Baclofen (for muscle pain/spasms) and Plaquenil (joint pain) for Fibromyalgia
    • Cost: < $25 monthly
  6. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB updated the condition Dermatomyositis

    • First symptom:
    • Diagnosis:

    Will update after Sept 8th when I finally get all the answers I have been looking for, finally...

  7. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB became a 3 star data donor! star earnedstar earnedstar earned

  8. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB completed the QOL survey

    • severe Social
    • moderate Mental
    • moderate Physical
  9. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB updated her weight for

  10. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB updated her symptoms for

    NewSwallowing difficulty (dysphagia)
  11. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB updated her symptoms

    BetterAnxious mood, Balance problems, Bruxism (teeth grinding), Burning sensation in face, Chest pain See more
    WorseAcid reflux, Brain fog, Memory problems, Muscle weakness, Nerve pain (neuralgia) See more
    NewAnticipatory anxiety, Avoidance of situations, Chest tightness, Cough, Dizziness and feeling faint See more
  12. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB updated the condition Asthma

    • First symptom:
    • Diagnosis: ?

    Been having symptoms since around March 2013, have gone to hospital from it. Supposed to be from my dermatomyositis that is causing it. When I am breathing at my best i was diagnosed with mild asthma. We need to test again in winter to show how bad it gets.

  13. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB updated the condition Fibromyalgia

    • First symptom:
    • Diagnosis:

  14. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB updated her basic information

  15. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB added a new 25-Hydroxyvitamin D value for

    • 25-Hydroxyvitamin D19.8 ng/mL on
  16. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB added a new 25-Hydroxyvitamin D value for

    • 25-Hydroxyvitamin D7.7 ng/mL on
  17. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB added a new C-Reactive Protein value for

    • C-Reactive Protein6.2 mg/L on
  18. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB added a new C-Reactive Protein value for

    • C-Reactive Protein0.5 mg/L on
  19. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB added a new Erythrocyte Sedimentation Rate value for

    • Erythrocyte Sedimentation Rate20 mm/hr on
  20. 49855 thumb
    KatB
    Data Quality: 1 star
    • Gender: F
    • Age: 40
    Condition: Dermatomyositis 42 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Dermatomyositis

    KatB added a new Erythrocyte Sedimentation Rate value for

    • Erythrocyte Sedimentation Rate35 mm/hr on
  21. Show more