3720 full
Sex: F
Data Quality: 2 stars
MS: 15 yrs
Type: Relapsing-Remitting
Sensation: Mild
Overall: None
Cognition: mild
Vision: mild
Speech: none
Swallowing: none
Upper limb: moderate
Walking: mild


Female, 37 years
Livingston, West Lothian

Primary condition
MS and 2 more
First symptom
Faith, and Working with my Condition
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About babybunny

I am an ex dental nurse, I was working full time until I had a disabling relapse in August 2007 leaving me unable to walk for a while, I have not been able to return to my work due to the nature of that relapse and combined with more recent relapses affecting my hands; this left me unable to hold a pen let alone small instruments, you could say I am medically retired, but without a pension; I will not quit. My husband is reasonably supportive. 

UPDATE JAN 2011, I passed my 1st English course, I am about to start my next Course in Grammar, which will give me the diploma in English language (2012 after 3 attempts, I could not finish the course due to sleepieness and residual problems with cognition and tremors and lack of concentration, I may attempt it again in due course).

I got bored being stuck at home all the time and my recent letter from the DWP tells me that I am not being medically reviewed until 2012 (2013 review determined that I was still not fit for work period. I will work on my crafting cards and such).

5th May 2010: just been diagnosed with another condition, this one is called hydradenitis suppurativa, it is an inflammatory skin disease. As with MS, it has no cure and also no definitive cause! It causes boils Cry Looks like I will end up on long term AB's for their anti-inflammatory action. UPDATE, Things with the boils are under control, to a good extent Smile


23rd Oct 2011 - My neighbour passed away, and I was very moved at her funeral, I ended up on a journey of soul searching. I was, up to the point of the funeral, an Athiest who had some belief in God, but something made me search, something compelled me to reach deep inside my beliefs to a point I ended up contacting a Priest. I am now on the Rights of Christian Initiation for Adults (RCIA) course at my local Roman Catholic Church. The first time I attended Mass I cried through the whole sermon, I don't know if that was my emotional lability caused by my MS or not, but I cried, wept to be more precise. I know that my faith has nothing to do with my conditions (MS and Hidradenitis suppuritiva), but I do feel a weight has been lifted and I am now on the offensive with my health rather than the defensive. I have been given these conditions because I am strong, NOT because I have sinned. I am ready for whatever my health throws at me next!!! (my confirmation and first  communion was  communion 2013)

Oct 2013, I have yet another diagnosis, this time it is Obstructive Sleep Apnoea. I have started on the CPAP machine and I feel so much better, I am no longer sleepy all the time, but I am now relearning what is Fatigue and what is sleepiness.


Comments: 203 updates, 3 for others
Member since: May 21, 2008
Last Login Jul 31, 2014

Other conditions

  1. hidradenitis suppurativa
    First symptom
  2. obstructive sleep apnea
    First symptom