1. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik started taking Turmeric

    Dosage500 mg daily (was 2 capsule(s) daily until )
  2. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik was feeling neutral

  3. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the QOL survey

  4. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her weight for

    • Weight: 118 lb
    • BMI: 17.9
  5. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  6. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the FRS survey

    • FRS: 27
    • mild Head
    • moderate Arms
    • none Torso
    • moderate Legs
  7. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated the condition ALS (Amyotrophic Lateral Sclerosis)

    • First symptom: ?
    • Diagnosis: ?
  8. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her symptoms

    BetterUnrefreshing or poor sleep, Sweating, Shortness of breath (dyspnea), Panic attacks, Frequent urination See more
    WorsePain, Nerve pain (neuralgia), Fatigue, Excessive yawning
    NewExcessive daytime sleepiness (somnolence)
  9. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her labs and tests

    • Globulin, calculated2.7 g/dL on
    • Albumin/Globulin Ratio1.5   on
    • White Blood Cell, blood6.3 WBCs 10^3/mcL on
    • Red Blood Cell count4.5 million (10^6) cells/cumm on
    • Hematocrit42.5 % on
    • Mean Corpuscular Volume94 fL on
    • Mean corpuscular hemoglobin 32 pg/cell on
    • Mean Corpuscular Hemoglobin Concentration 34 % on
    • Red Blood Cell Distribution Width13 % on
    • Mean Platelet Volume8.3 fL on
    • Neutrophils absolute4.1 thousand cells/mcL on
    • Neutrophils65.2 % on
    • Lymphocytes Absolute1.5 thousand cells/mcL on
    • Lymphocytes24.6 % on
    • Monocytes absolute0.5 thousand cells/mcL on
    • Monocytes7.8 % on
    • Eosinophils Absolute0.1 thousand cells/mcL on
    • Eosinophils percent1.5 % on
    • Basophils absolute0.1 thousand cells/mcL on
    • Basophils0.9 % on
    • Thyroid Stimulating Hormone2.29 uIU/mL on
    • Color, urine2 on
    • Appearance, urine0 on
    • pH, urine7   on
    • Urine Specific Gravity1.02 on
    • Protein, urine0 on
    • Glucose, urine0 on
    • Ketones, urine0 on
    • Blood, urine0 on
    • Nitrite, urine0 on
    • Bilirubin, urine1 on
    • Urobilinogen, urine0.2 mg/dL on
    • Leukocyte Esterase, urine0 on
    • Ceruloplasmin16.3 mg/dL on
    • Copper, blood0.7 mcg/dL on
    • D-dimer469 ng/mL DDU on
    • Bilirubin Direct0 mg/dL on
  10. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated the condition PLS (Primary Lateral Sclerosis)

    • First symptom: May 1, 1996
    • Diagnosis: September 1, 1997
  11. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her symptoms

    BetterExcessive yawning, Nerve pain (neuralgia), Pain
    WorseAnxious mood, Bowel problems, Emotional lability, Panic attacks, Shortness of breath (dyspnea), Sweating
    NewMuscle cramps, Unrefreshing or poor sleep
  12. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik became a 3 star data donor! star earnedstar earnedstar earned

  13. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik started taking Baclofen

    Dosage10 mg twice daily (was 10 mg daily until )
  14. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her symptoms

    BetterAnxious mood, Bowel problems, Constipation, Depressed mood, Dizziness and feeling faint See more
    WorseExcessive yawning, Weakness in legs
  15. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her weight

    • Weight: 119 lb
    • BMI: 18.1
  16. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  17. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the FRS survey

    • FRS: 28
    • mild Head
    • moderate Arms
    • none Torso
    • moderate Legs
  18. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the QOL survey

  19. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik was feeling neutral

  20. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the FRS survey

    • FRS: 27
    • mild Head
    • moderate Arms
    • none Torso
    • moderate Legs
  21. Show more