1. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik was feeling neutral

  2. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik became a 3 star data donor! star earnedstar earnedstar earned

  3. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her labs and tests

    • Forced Vital Capacity1.5 Liters on
  4. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her symptoms

    BetterStiffness/Spasticity, Weakness in legs
    WorseBowel problems, Excessive yawning, Fatigue, Nerve pain (neuralgia), Sweating
  5. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her weight

  6. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the QOL survey

  7. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  8. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the FRS survey

    • FRS: 28
    • mild Head
    • moderate Arms
    • none Torso
    • moderate Legs
  9. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik was feeling good

    I've had some progression of my disease since the beginning of 2015, however I still feel upbeat and positive.

    3 comments from other members. Only showing public users' comments. Sign up to see all comments!
  10. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her labs and tests

    • Forced Vital Capacity1.75 Liters on
  11. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her labs and tests

    • Forced Vital Capacity1.6 Liters on
  12. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her weight

  13. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik increased her Botox dosage

    Dosage200 units every 3 months (was 100 units every 3 months until )
  14. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik was feeling very good

    got Botox to my legs today after 4 months, and my brother came to visit

  15. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the QOL survey

  16. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  17. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik became a 3 star data donor! star earnedstar earnedstar earned

  18. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her symptoms

    BetterNerve pain (neuralgia), Pain
    WorseBalance problems, Depressed mood, Shortness of breath (dyspnea), Slurred speech, Weakness in legs
  19. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her weight

  20. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the FRS survey

    • FRS: 28
    • mild Head
    • moderate Arms
    • none Torso
    • moderate Legs
  21. Show more