1. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her weight

    • Weight: 120 lb
    • BMI: 18.2
  2. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her symptoms

    BetterWeakness in legs, Sweating, Stiffness/Spasticity, Shortness of breath (dyspnea), Insomnia See more
    WorseExcessive yawning, Constipation
  3. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the QOL survey

  4. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  5. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik became a 3 star data donor! star earnedstar earnedstar earned

  6. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the FRS survey

    • FRS: 28
    • mild Head
    • moderate Arms
    • none Torso
    • moderate Legs
  7. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik started using Sunrise Medical Quickie

    Schedule1other as needed (starting )
  8. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik evaluated Sunrise Medical Quickie

    • StartedOct 14, 2016
    • DosageAs needed
    • Effectiveness Major (for Mobility decreased)
    • Effectiveness Major (for Improve mobility)
    • Effectiveness Major (for Fatigue)
    • Side effects None
    • Adherence Sometimes
    • Burden Not at all hard to take
    • View complete treatment history
  9. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik stopped using Pride Jazzy Power Chair

    ReasonOther (Outdated, unreliable. Got a new PWC)
  10. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik evaluated Pride Jazzy Power Chair from

    • StartedApr 30, 2002
    • DosageAs needed
    • Effectiveness Major (for Other)
    • Effectiveness Major (for Improve mobility)
    • Side effects None
    • Adherence Sometimes
    • Burden Not at all hard to take
    • Cost< $25 monthly
    • View complete treatment history
  11. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik started taking Gabapentin

    Dosage100 mg twice daily (was 300 mg daily until )
  12. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik started taking Baclofen

    Dosage10 mg daily (was 15 mg daily until )
  13. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik stopped taking Amitriptyline

    ReasonDoctor's advice
  14. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik evaluated Amitriptyline from

    • StartedApr 13, 1998
    • Dosage10 mg Daily
    • Effectiveness Slight (for Pain)
    • Effectiveness Can’t tell (for Nerve damage)
    • Side effects Moderate
    • Adherence Always
    • Burden Not at all hard to take
    • Cost< $25 monthly
    • Advice & Tipsunexpected benefit in reduced drippy nose in the morning and throughout the day from allergies.
    • View complete treatment history
  15. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her weight

    • Weight: 118 lb
    • BMI: 17.9
  16. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik was feeling neutral

  17. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated the condition PLS (Primary Lateral Sclerosis)

    • First symptom: May 1, 1996
    • Diagnosis: September 1, 1997
  18. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her weight

    • Weight: 118 lb
    • BMI: 17.9
  19. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her symptoms

    BetterPanic attacks, Fatigue, Excessive yawning, Constipation, Anxious mood
    WorseShortness of breath (dyspnea), Pain, Insomnia, Frequent urination, Fasciculations See more
    NewCentral sleep apnea
  20. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik started taking Baclofen

    Dosage15 mg daily (was 10 mg twice daily until )
  21. Show more