1. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik was feeling good

    I've accomplished a lot over the weekend and am fairly prepared for this week's doctor appointments, etc.

  2. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik updated her labs and tests

    • Bone Mineral Density Test, T-score - Spine-2 T-score on
    • Bone Mineral Density Test, T-score - Hip-2.6 T-score on
    • Aspartate Aminotransferase34 U/L on
    • Alanine Aminotransferase60 U/L on
  3. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  4. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik was feeling bad

    Just received disability paperwork to be filled out by the end of the month and had 2 bills in the mail with the wrong amounts. Had to call and straighten that all out. Such a time consuming waste of my precious day. SO FRUSTRATING!

    2 comments from other members. Only showing public users' comments. Sign up to see all comments!
      3694 thumb
      janik about 2 weeks ago

      Thanks for the encouraging thoughts. Tomorrow may be better, though I will have to spend my precious time filling out paperwork over the next week or two.

  5. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik was feeling bad

    Allergies bad today and lots of aches and pains.

  6. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik was feeling good

  7. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik was feeling neutral

  8. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik was feeling neutral

  9. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik was feeling neutral

  10. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik became a 3 star data donor! star earnedstar earnedstar earned

  11. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik updated her labs and tests

    • Forced Vital Capacity1.5 Liters on
  12. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik updated her symptoms

    BetterStiffness/Spasticity, Weakness in legs
    WorseBowel problems, Excessive yawning, Fatigue, Nerve pain (neuralgia), Sweating
  13. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik updated her weight

  14. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the QOL survey

  15. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  16. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey

    • FRS: 28
    • mild Head
    • moderate Arms
    • none Torso
    • moderate Legs
  17. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik was feeling good

    I've had some progression of my disease since the beginning of 2015, however I still feel upbeat and positive.

    3 comments from other members. Only showing public users' comments. Sign up to see all comments!
  18. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik updated her labs and tests

    • Forced Vital Capacity1.75 Liters on
  19. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik updated her labs and tests

    • Forced Vital Capacity1.6 Liters on
  20. 3694 thumb
    janik
    Sex: F
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik updated her weight

  21. Show more