1. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the QOL survey

  2. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her weight

  3. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik added a treatment evaluation for Range of Motion Exercises from

    • Perceived effectiveness for Stiffness/Spasticity: Major
    • Side Effects: Mild
    • Adherence: Never
    • Burden: Very
    • Dosage: Daily
    • Advice & Tips: No time to do this on a regular schedule anymore because I now need to make all my meals when meals-on-wheels stopped delivering.
    • Cost: < $25 monthly
  4. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik added a treatment evaluation for Valerian Root from

    • Perceived effectiveness for Stiffness/Spasticity: Slight
    • Side Effects: Moderate
    • Adherence: Sometimes
    • Burden: Somewhat
    • Dosage: Daily
    • Advice & Tips: had to take 3 capsules daily to get a slight relief, but then had to put up with a persistent mild headache
    • Cost: < $25 monthly
  5. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik added a treatment evaluation for Botox

    • Perceived effectiveness for Stiffness/Spasticity: Slight
    • Side Effects: Mild
    • Adherence: Always
    • Burden: A little
    • Dosage: 100 units Every 3 months
    • Cost: $50-99 monthly
  6. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the FRS survey

    • FRS: 29
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  7. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  8. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated the treatment Range of Motion Exercises

    • Evaluated
    • Stopped
      • Date: Jan 15, 2013
      • Reason: Other
      • Jan 15, 2013
    • Added
      • Started: Jun 19, 2011
      • Dosage: daily
      • Purpose: Stiffness/Spasticity
      • Jun 19, 2011
    • Evaluated
  9. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated the treatment Valerian Root

    • Evaluated
    • Stopped
      • Date: Nov 15, 2013
      • Reason: Did not seem to work and Side effects too severe
      • Nov 15, 2013
    • Evaluated
    • Added
      • Started: Jul 16, 2013
      • Dosage: daily
      • Purpose: Stiffness/Spasticity
      • Jul 16, 2013
  10. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated the treatment Botox

    • Evaluated
    • Changed Dosage
      • Dosage: 100 units every 3 months
      • Apr 16, 2014
    • Changed Dosage
      • Dosage: 80 mg every 3 months
      • Jan 15, 2014
    • Evaluated
    • Evaluated
    • Added
      • Started: Oct 23, 2013
      • Dosage: 50 mg every 3 months
      • Purpose: Stiffness/Spasticity
      • Oct 23, 2013
  11. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik was feeling neutral

  12. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated the condition PLS (Primary Lateral Sclerosis)

    • First symptom:
    • Diagnosis:
  13. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her weight

  14. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated the condition Osteoporosis

    • First symptom:
    • Diagnosis:
  15. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her symptoms

    Anxious mood BetterAnxious mood, Balance problems, Excessive yawning, Panic attacks, Urinary frequency
    Nerve pain (neuralgia) WorseNerve pain (neuralgia), Pain
  16. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik added a treatment evaluation for Botox from

    • Perceived effectiveness for Stiffness/Spasticity: Moderate
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 50 mg Every 3 months
    • Cost: < $25 monthly
  17. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik added a treatment evaluation for Botox from

    • Perceived effectiveness for Stiffness/Spasticity: Slight
    • Side Effects: None
    • Adherence: Always
    • Burden: Somewhat
    • Dosage: 50 mg Every 3 months
    • Cost: < $25 monthly
  18. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the FRS survey

    • FRS: 30
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  19. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the QOL survey

  20. 3694-thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: mild
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  21. Show more