1. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: b
    I have:
    PLS

    janik updated her symptoms

    BetterPanic attacks, Insomnia, Frequent urination
    WorseWeakness in legs, Excess saliva
  2. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: b
    I have:
    PLS

    janik updated her labs and tests

    • Peak Expiratory Flow319.8 Liters/min on
    • Expiratory Reserve Volume0.66 Liters on
    • Maximum Expiratory Pressure35 cm water on
    • Maximum Inspiratory Pressure-24 cm water on
  3. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: b
    I have:
    PLS

    janik updated her labs and tests

    • Peak Expiratory Flow319.8 Liters/min on
    • Expiratory Reserve Volume0.66 Liters on
    • Maximum Expiratory Pressure35 cm water on
    • Maximum Inspiratory Pressure-24 cm water on
    • FEV1/FVC Percentage96 % on
    • Functional Residual Capacity3.36 Liters on
    • Carbon Monoxide Diffusing Capacity5.41 % on
    • Residual Volume2.44 Liters on
    • Total Lung Capacity4.79 Liters (L) on
    • Forced Vital Capacity2.22 Liters on
    • Forced Expiratory Volume 12.12 Liters on
  4. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: b
    I have:
    PLS

    janik completed the QOL survey

  5. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: b
    I have:
    PLS

    janik completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  6. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: b
    I have:
    PLS

    janik evaluated Strontium Bone Maker

    • StartedOct 30, 2012
    • Dosage340 mg Daily
    • Effectiveness Slight (for Osteoporosis)
    • Side effects None
    • Adherence Always
    • Burden Not at all hard to take
    • Cost< $25 monthly
    • Advice & TipsAfter years of going downhill on osteoporosis drugs on the market I started taking this 3 years ago with the approval of my doctor. Each bone density scan since then showed minor improvements each time. My new doctor last year said, "Whatever I'm doing, keep doing it and we'll check again in 2 years."
    • View complete treatment history
  7. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: b
    I have:
    PLS
  8. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: b
    I have:
    PLS

    janik was feeling bad

    Extremely weak legs today after discovering a bathroom sink leak at 10:30 pm last night. So had to get on the floor and clean up the water and shut off the leak enough it wouldn't overflow bucket. Got to bed at 12:30 am. Not a happy puppy right now with all the crawling around and over doing it getting back up off the floor and to bed last night. Murphy's Law!

    3 comments from other members. Only showing public users' comments. Sign up to see all comments!
    • 3694 thumb
      janik
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: moderate
      Chest: none
      Legs: moderate
      I am: b
      I have:
      PLS
    • 3694 thumb
      janik
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: moderate
      Chest: none
      Legs: moderate
      I am: b
      I have:
      PLS

      janik evaluated Pneumococcal Vaccine from

      • StartedMay 15, 2001
      • DosageOne time
      • Effectiveness Can’t tell (for General health)
      • Side effects None
      • Adherence Always
      • Burden Somewhat hard to take
      • Cost< $25 monthly
      • Advice & TipsThis was a new version with added strains of pneumonia protection which the doctor thought I needed.
      • View complete treatment history
    • 3694 thumb
      janik
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: moderate
      Chest: none
      Legs: moderate
      I am: b
      I have:
      PLS

      janik updated her weight

      • Weight: 125 lb 8 oz
      • BMI: 19.1
    • 3694 thumb
      janik
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: moderate
      Chest: none
      Legs: moderate
      I am: b
      I have:
      PLS

      janik became a 3 star data donor! star earnedstar earnedstar earned

    • 3694 thumb
      janik
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: moderate
      Chest: none
      Legs: moderate
      I am: b
      I have:
      PLS

      janik completed the FRS survey

      • FRS: 29
      • mild Head
      • moderate Arms
      • none Torso
      • moderate Legs
    • 3694 thumb
      janik
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: moderate
      Chest: none
      Legs: moderate
      I am: b
      I have:
      PLS

      janik was feeling good

      My sweet neighbors shovel my walk and driveway after a snow storm which we received this morning. 

    • 3694 thumb
      janik
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: moderate
      Chest: none
      Legs: moderate
      I am: b
      I have:
      PLS

      janik completed the Mood Map survey

      • Function
      • Distress
      • External Stress
      • Depression
      • Emotional
      • Compulsion
      • Anxiety
      • Mania
    • 3694 thumb
      janik
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: moderate
      Chest: none
      Legs: moderate
      I am: b
      I have:
      PLS

      janik completed the QOL survey

    • 3694 thumb
      janik
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: moderate
      Chest: none
      Legs: moderate
      I am: b
      I have:
      PLS

      janik updated her symptoms

      BetterWeakness in legs, Sweating, Shortness of breath (dyspnea), Anxious mood
      WorseInsomnia, Constipation
    • 3694 thumb
      janik
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: moderate
      Chest: none
      Legs: moderate
      I am: b
      I have:
      PLS

      janik updated her weight

      • Weight: 125 lb
      • BMI: 19.0
    • 3694 thumb
      janik
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: moderate
      Chest: none
      Legs: moderate
      I am: b
      I have:
      PLS

      janik stopped taking Botox

      ReasonOther (last 2 treatments weren't as effective and last one was a bit too much which caused weakness in one leg. I'm waiting until it is totally out of my system so i can see if my disease is progressing. probably won't have more because i need to get used to my stiffness as it is now.)
    • 3694 thumb
      janik
      Sex: F
      Data Quality: 3 stars
      Bulbar: mild
      Arms: moderate
      Chest: none
      Legs: moderate
      I am: b
      I have:
      PLS

      janik evaluated Botox from

      • StartedOct 23, 2013
      • Dosage150 units Every 3 months
      • Effectiveness Can’t tell (for Stiffness/Spasticity)
      • Side effects Mild
      • Adherence Usually
      • Burden Somewhat hard to take
      • Cost$100-199 monthly
      • Advice & Tipsit is worth the try, if you are early in your disease progression it can help a lot.
      • View complete treatment history
    • Show more