1. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik became a 3 star data donor! star earnedstar earnedstar earned

  2. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her symptoms

    BetterEmotional lability, Depressed mood, Anxious mood, Pain
    WorseConstipation, Weakness in legs, Sweating, Panic attacks, Fatigue
  3. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her weight

    • Weight: 120 lb
    • BMI: 18.2
  4. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the FRS survey

    • FRS: 28
    • mild Head
    • moderate Arms
    • none Torso
    • moderate Legs
  5. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the QOL survey

  6. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her labs and tests

    • Creatinine, blood0.9 mg/dL on
    • Blood Urea Nitrogen22 mg/dL on
    • Chloride, blood105 mEq/L on
    • Carbon Dioxide, Bicarbonate27 mmol/L on
    • Potassium5.5 mEq/L on
    • Sodium, blood144 mEq/L on
    • Total Protein, blood6.8 g/dL on
    • Calcium, blood9.8 mg/dL on
    • Glucose, blood - Glucose level86 mg/dL on
    • Bilirubin Total0.6 mg/dL on
    • Aspartate Aminotransferase41 U/L on
    • Alanine Aminotransferase52 U/L on
    • Alkaline Phosphatase98 U/L on
    • Albumin, blood4.1 g/dL on
  7. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  8. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik was feeling neutral

  9. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated the condition PLS (Primary Lateral Sclerosis)

    • First symptom: May 1, 1996
    • Diagnosis: September 1, 1997
  10. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik became a 3 star data donor! star earnedstar earnedstar earned

  11. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her profile picture

  12. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her weight

    • Weight: 119 lb 8 oz
    • BMI: 18.2
  13. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik started doing Stretching

    Schedule10 min 3 times a week (was 50 min 2 times a week until )
  14. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik evaluated Stretching

    • StartedJul 16, 1997
    • Dosage10 min 3 times a week
    • Effectiveness Slight (for Stiffness/Spasticity)
    • Side effects Mild
    • Adherence Sometimes
    • Burden Somewhat hard to take
    • Cost< $25 monthly
    • View complete treatment history
  15. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik became a 3 star data donor! star earnedstar earnedstar earned

  16. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik started taking Baclofen

    Dosage10 mg twice daily (was 10 mg daily until )
  17. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her symptoms

    BetterWeakness in legs, Excess saliva, Constipation, Bowel problems
    WorseDepressed mood, Anxious mood
  18. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the QOL survey

  19. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik updated her weight

    • Weight: 120 lb
    • BMI: 18.2
  20. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: n
    I have:
    PLS

    janik completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  21. Show more