1. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik was feeling good

    I had Botox shots yesterday and my daughter is coming for the weekend to visit me.

    2 comments from other members. Only showing public users' comments. Sign up to see all comments!
      3694 thumb
      janik 1 week ago

      Yes, Botox has worked for me since I began them over 1.5 years ago. My doctor started out low (25 units each leg) and I am now at 170 units divided between the two legs with my left one getting more, as it is more spastic. This time she said I had a lot less spasticity than when she first saw me, so it seems to now be having a true lasting effect instead of being back to full spasticity. I am hoping the next series in 3 more months will be my optimum dosage for continued maintenance and which allows me to walk straighter (with the help of my walker) and without the scissor effect I have without the shots.

  2. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik became a 3 star data donor! star earnedstar earnedstar earned

  3. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik updated her symptoms

    BetterWalking problems, Sweating, Slurred speech, Shortness of breath (dyspnea), Eye floaters
    WorsePain, Nerve pain (neuralgia), Fasciculations
  4. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik updated her weight

  5. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  6. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey for

    • FRS: 29
    • mild Head
    • moderate Arms
    • none Torso
    • moderate Legs
  7. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey for

    • FRS: 32
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  8. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey for

    • FRS: 32
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  9. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey for

    • FRS: 32
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  10. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey for

    • FRS: 32
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  11. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey for

    • FRS: 32
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  12. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey for

    • FRS: 32
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  13. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey for

    • FRS: 32
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  14. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey for

    • FRS: 32
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  15. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey for

    • FRS: 32
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  16. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey for

    • FRS: 32
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  17. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey for

    • FRS: 32
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  18. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey for

    • FRS: 32
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  19. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey for

    • FRS: 32
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  20. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: g
    I have:
    PLS

    janik completed the FRS survey for

    • FRS: 32
    • mild Head
    • mild Arms
    • none Torso
    • moderate Legs
  21. Show more