1. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik updated her labs and tests

    • Forced Vital Capacity1.75 Liters on
  2. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik was feeling very good

    got Botox to my legs today after 4 months, and my brother came to visit

  3. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik updated her weight

  4. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik updated her labs and tests

    • Forced Vital Capacity1.6 Liters on
  5. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik increased her Botox dosage

    increase better Dosage200 units every 3 months (was 100 units every 3 months until )
  6. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik completed the QOL survey

  7. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  8. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik updated her weight

  9. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik completed the FRS survey

    • FRS: 28
    • mild Head
    • moderate Arms
    • none Torso
    • moderate Legs
  10. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik updated her symptoms

    decrease better BetterNerve pain (neuralgia), Pain
    increase worse WorseBalance problems, Depressed mood, Shortness of breath (dyspnea), Slurred speech, Weakness in legs
  11. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik was feeling good

  12. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik became a 3 star data donor! star earnedstar earnedstar earned

  13. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik updated the condition ALS (Amyotrophic Lateral Sclerosis)

    • First symptom: ?
    • Diagnosis: ?
  14. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik updated the condition PLS (Primary Lateral Sclerosis)

    • First symptom:
    • Diagnosis:
  15. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik added a new Aspartate Aminotransferase value for

    • Aspartate Aminotransferase43 U/L on
  16. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik added a new Alanine Aminotransferase value for

    • Alanine Aminotransferase60 U/L on
  17. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik added a new Forced Vital Capacity value for

    • Forced Vital Capacity1.7 Liters on
  18. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik was feeling good

    step-daughter visiting

  19. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik updated her weight

  20. 3694 thumb
    janik
    Sex: F
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: none
    Legs: moderate
    I am: vg
    I have:
    PLS

    janik completed the QOL survey

  21. Show more