1. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    1 person posted in the ALS/MND forum

    TipaCow in Daily Devotional

    Monday, August 21, 2017 The Truth about Adversity "They encouraged them to continue in the faith, reminding them that we must suffer many hardships to enter the Kingdom of God." —Acts 14:22 Without question, the greatest life there is to live is...

  2. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    2 people posted in the ALS/MND forum

    Nese11 in Searchlight Support | Radicava™

    Skrogy, there is an ALS Hope & Help Symposium in Orlando this coming weekend. MT Pharma is supposed to be there. It will be interesting to see what response other PALS may say to MT Pharma given what some of us have already been shocked and...

    TipaCow in Daily Devotional

    Friday, August 18, 2017 The Message Proclaimed And how shall they hear without a preacher? And how shall they preach unless they are sent? As it is written: "How beautiful are the feet of those who preach the gospel of peace, who bring glad...

  3. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    2 people posted in the ALS/MND forum

    Latest posts:
    MikeB60 in Feeling Lost - Practical Concerns of a Caregiver of Newly Diagnosed

    My story is very similar. I work full time and have a caregiver for my husband while I am at work.  I care for him before work, after work and on the weekends. There is no easy answer and there are limited resources available. My husband's...

    MikeB60 in Feeling Lost - Practical Concerns of a Caregiver of Newly Diagnosed

    My story is very similar. I work full time and have a caregiver for my husband while I am at work.  I care for him before work, after work and on the weekends. There is no easy answer and there are limited resources available. My husband's...

    MikeB60 in What's the story with radicava??

    I received an email from Searchlight that it is now available. I was told I needed a prescription from my Doctor. I have contacted my Doctor and he is working on it.

  4. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    4 people posted in the ALS/MND forum

    Latest posts:
    JeanetteDeVita in My story, living with ALS.

    Look at you, Gus! Thanks for sharing, it's so nice to see your face. 

    MikeB60 in My story, living with ALS.

    Your last sentence hit home. The disease is moving rapidly in me.  In less than two years the only thing I can still do is chew and swallow. I am not saying this for any other reason but to say do everything you can to stay healthy. You don't want...

    Gusprieto in My story, living with ALS.

    Hi Mikeb60, Just keep on fighting, I so appreciate your words and comments. Blessings to you you, from a pALS, who cares. 

  5. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    1 person posted in the ALS/MND forum

    TipaCow in Daily Devotional

    Friday, August 4, 2017 Someone of Value "But we have this treasure in earthen vessels, that the excellence of the power may be of God and not of us." —2 Corinthians 4:7 When we think of the apostles, we think of holy men of God. And though they...

  6. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    3 people posted in the ALS/MND forum

    DawnB101 in Cannabis

    There are tincture drops that go under the tongue, or topical creams.

    Gill_G in Cannabis

    I use CBD oil. It is administered with a dropper sublingually. 

    TipaCow in Daily Devotional

    Monday, July 24, 2017 An Unlikely Leader And the LORD said to Gideon, "The people who are with you are too many for Me to give the Midianites into their hands, lest Israel claim glory for itself against Me, saying, 'My own hand has saved me.'"...

  7. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    TipaCow updated her profile picture

  8. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    1 person posted in the ALS/MND forum

    TipaCow in Daily Devotional

    Saturday, July 22, 2017 Power in Unity "Again I say to you that if two of you agree on earth concerning anything that they ask, it will be done for them by My Father in heaven." —Matthew 18:19 During World War II, a group of American pilots known...

  9. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    5 people posted in the ALS/MND forum

    Latest posts:
    PeterFingerlakes in new to PLS need help and advice

    Looking through your postings there have been a lot of suggested or established diagnoses.  While it is nice to have an answer, none of the diagnosis answers are good.  Yes, baclofen can cause fatigue.  Diazepam (Valium) does so as well. ...

    PeterFingerlakes in Free hoist ukv

    Sadly I cannot collect them from London, but I thank you for making the offer to others with a need.

    Zefer in Masitinib vs masivet

    My neurologist assistant also did not reccomend masivet.

  10. 22637 thumb
    TipaCow
    Sex: F
    Data Quality: 2 stars
    Bulbar: moderate
    Arms: moderate
    Chest: moderate
    Legs: moderate
    I have:
    ALS

    TipaCow updated # profile picture

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