Deep Brain Stimulation (DBS)

jazzfan's Deep Brain Stimulation (DBS) History (Ongoing)
One time Jun 28, 2010 - Last Update

jazzfan's Deep Brain Stimulation (DBS) is for…

  • Dystonia
  • Parkinson's Disease

jazzfan's side effects of Deep Brain Stimulation (DBS)…

  • Neck and shoulder muscle soreness Aug 18, 2010
  • Dizziness Aug 18, 2010


Jan 12, 2012

  • Perceived effectiveness for Parkinson's Disease: Major
  • Perceived effectiveness for Dystonia: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: One time
Advice & Tips: My DBS Neurostimulator FINALLY kicked in after close to one year of monthly programming visits to the DBS clinic at Robert Wood Johnson medical center. I am doing MUCH better now. I have not reduced my meds but that's OK. It has brought me back to life and some days I almost feel like my old self.
Cost: < $25 monthly

Nov 18, 2010

  • Perceived effectiveness for Dystonia: Can’t tell
  • Perceived effectiveness for Parkinson's Disease: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: One time
Advice & Tips: AS OF 11/2010: Right now I am in the middle of programming sessions for the IPG battery in my chest. I go once a month to a "DBS clinic" Robert Wood Johnsohn Medical Center in New Brunswick NJ, USA. I see the DBS programmer and a neurologist. Even though I only have PD on my left side, it is quite severe. Unfortunately, the neuro has INCREASED my meds and the DBS programming has been very very slow - each time I get the voltage increased the PD seems to "compensate" It has been 5 months since the surgery and so far the benefits have been minimal. One unexpected positive effect has been reduced sense of bladder urgency. The surgery itself was not bad since they only had to install the wire lead on the right side of my brain.

About Deep Brain Stimulation (DBS) (Equipment)

Deep brain stimulation (DBS) is a neurosurgical treatment which stimulates the brain with mild electrical signals. DBS is used to treat tremor and other motor symptoms of Parkinson’s disease. DBS has been applied to the thalamus, subthalamic nucleus and the pallidum areas of the brain.

Learn more about Deep Brain Stimulation (DBS) in our Deep Brain Stimulation (DBS) Community Report.