1. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    cinéphile 94 updated the treatment Curcumin

    • Started:
    • Current Dosage: 2 cap(s) daily
    • Purpose: Inflammation
  2. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    cinéphile 94 updated the treatment Ashwagandha (Withania somnifera)

    • Changed Dosage
      • Dosage: 2 g daily
      • Jun 28, 2012
    • Evaluated
    • Changed Dosage
      • Dosage: 4 g daily
      • Jun 10, 2012
    • Added
      • Started: May 31, 2012
      • Dosage: 1 tps. daily
      • Purpose: ALS (Amyotrophic Lateral Sclerosis) and Inflammation
      • May 31, 2012
  3. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    cinéphile 94 updated the treatment Omega 3 EPA/DHA

    • Started:
    • Current Dosage: 620 mg daily
    • Purpose: Inflammation
  4. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    cinéphile 94 completed the FRS survey

    • FRS: 8
    • mild Head
    • severe Arms
    • moderate Torso
    • severe Legs
  5. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    cinéphile 94 added a treatment evaluation for Ashwagandha (Withania somnifera)

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Moderate
    • Side Effects: None
    • Adherence: Always
    • Burden: A little
    • Dosage: 4 g Daily
    • Advice & Tips: I'm taking it along with normast. It is sometime after taking ashwaganda that I was able to say a few words aloud the first times.
  6. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    cinéphile 94 added a treatment evaluation for Normast

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Major
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 1200 mg Daily
    • Advice & Tips: 4 weeks of normast+ashwaganda + stretching exercices Breathing : a little better. More and more, I can whisper , sometimes I can even say a few words aloud. It means that my diaphragm is getting stronger. Right arm and right thumb: a little stronger Left arm and legs: new connections ( beginning of new movements) So far it’s working. Will it last ? We’ll see…
  7. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    cinéphile 94 added a treatment evaluation for Magnetic healer from

    • Perceived effectiveness for Fatigue: None
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 10 min Weekly
    • Advice & Tips: didn't seem to work anymore
  8. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    Stopped Magnetic healer

    • Stopped:
    • Reasons: Did not seem to work
  9. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    Stopped Reishi

    • Stopped:
    • Reasons: Course of treatment ended
  10. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    Stopped Shitake Mushroom Powder

    • Stopped:
    • Reasons: Course of treatment ended
  11. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    Stopped Maitake Mushroom Powder

    • Stopped:
    • Reasons: Course of treatment ended
  12. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    star earnedstar earnedstar earned cinéphile 94 earned a star!

  13. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    cinéphile 94 updated his weight

  14. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    cinéphile 94 added a treatment evaluation for Normast from

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Major
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 1200 mg Daily
    • Advice & Tips: Ten days of normast (tablets 600 mg x 2) Early May ALS had taken over: my breathing got worse, I needed my Bi-Pap almost 24h/24, I had no more appetite, my voice got weak, my speech was no longer understandable, excess saliva… Normast not only put a hold but I’ve been experiencing some improvements: Breathing: slightly better, I can breathe again 20’ without my Bi-Pap , I eat a little more. My voice is stronger, my speech is better Excess saliva: I’ve got a small window in the morning, and another one of around 2 hours in the afternoon during which my saliva is back to normal Arms: a little stronger I now hope that it’s only the beginning. We’ll see. I add some Indian ginseng believing the combination of the two will be more powerfull
  15. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    cinéphile 94 added a treatment evaluation for Low Dose Naltrexone (LDN) from

    • Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Slight
    • Perceived effectiveness for Support immune health: Moderate
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 4.5 mg Daily
    • Advice & Tips: I had to stop in order to begin normast. Because LDN blocks opioid receptors throughout the body for three or four hours, people using medicine that is an opioid agonist, i.e. narcotic medication — such as Ultram (tramadol), morphine, Percocet, Duragesic patch or codeine-containing medication — should not take LDN until such medicine is completely out of one's system.
    • Cost: $25-49 monthly
  16. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    Stopped Low Dose Naltrexone (LDN)

    • Stopped:
    • Reasons: Other
  17. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    cinéphile 94 updated the treatment Normast

    • Evaluated
    • Evaluated
    • Added
      • Started: May 22, 2012
      • Dosage: 1200 mg daily
      • Purpose: ALS (Amyotrophic Lateral Sclerosis) and Inflammation
      • May 22, 2012
  18. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    star earnedstar earnedstar not earned cinéphile 94 lost a star

  19. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS
  20. 35670-thumb
    cinéphile 94
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: moderate
    Legs: severe
    I am: vg
    I have:
    ALS

    cinéphile 94 updated the treatment N-Acetylcysteine NAC

    • Started:
    • Current Dosage: 600 mg daily
    • Purpose: ALS
  21. Show more