1. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 updated the condition Breast Cancer

    • First symptom: ?
    • Diagnosis:

    Diagnosed in November of 2009, my breast cancer was stage 0 but grade 3, which was aggressive. I opted for a bilateral mastectomy due to family history. I was offered the option of a lumpectomy (with a 45% prognosis that the cancer would return) and felt with MS and family history, I wanted to be as far down the road to remission as possible, not wanting to wait for the possibility of cancer returning, having to have additional surgeries, and most likely ending up with a mastectomy in the end. At one point, one of my doctors said i would have to go off the inteferon I was on at the time as there was a "possible" link between breast cancer and that particular MS treatment - more mis-information. I was accidentally overdosed with pain meds while recovering in the hospital, causing me unnecessary trauma which still rears its ugly head, 5 years later. The mastectomy and reconstruction have their own set of challenges; the brain trauma from the overdose was an added setback.

  2. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS
  3. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 added a treatment evaluation for Baclofen from

    • Perceived effectiveness for Multiple Sclerosis: Moderate
    • Side Effects: Mild
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 30 mg Daily
    • Advice & Tips: I was on Baclofen for a year and a half. I didn't think it was working and I wanted to started eliminating some of the prescriptions I'm on so over a month, i weaned myself off of it. Within 3 days, horrendous lag and calf cramps started, severe enough to wake me up in the middle of the night. I tried tonic water, increased my stretching - all to no avail. At my next neurologist's appointment, I got a new prescription and within 2 days the cramps were reduced to manageable.
    • Cost: Not specified monthly
  4. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 updated the condition Multiple Sclerosis

    • First symptom:
    • Diagnosis:
  5. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 completed the MSRS survey

    • MSRS: 57
    • Moderate disability that requires some help from others Cognition
    • Mild disability but not requiring help from others Vision
    • Mild disability but not requiring help from others Speech
    • Mild disability but not requiring help from others Swallowing
    • Mild disability but not requiring help from others Upper limb
    • Mild disability but not requiring help from others Walking
    • Moderate disability that requires some help from others Sensation

    Vertigo impacts my daily activities significantly.

  6. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 completed the QOL survey

  7. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 stopped taking Natural Progesterone Cream

    ReasonDid not seem to work
  8. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 added a treatment evaluation for Natural Progesterone Cream from

    • Perceived effectiveness for Menopause: None
    • Side Effects: None
    • Adherence: Never
    • Burden: Not at all
    • Dosage: 1 other Daily
  9. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 updated the condition Menopause

    • First symptom: ?
    • Diagnosis: ?
  10. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS
  11. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 added a treatment evaluation for Estriol topical from

    • Perceived effectiveness for Hormone replacement: None
    • Side Effects: None
    • Adherence: Usually
    • Burden: Not at all
    • Dosage: 8 mg Daily
  12. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 started taking Baclofen

    Dosage30 mg daily (was 10 mg daily until )
  13. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 updated her symptoms

    BetterBlurry vision
    WorseVertigo, Sexual dysfunction, Insomnia, Fatigue, Excessive daytime sleepiness (somnolence), Difficulty sleeping through night
  14. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 updated her symptoms

    BetterMS hug (tight chest or torso), Emotional lability, Difficulty sleeping through night, Insomnia
    NewBlurry vision
  15. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 completed the QOL survey

  16. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 became a 3 star data donor! star earnedstar earnedstar earned

  17. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 updated her weight

  18. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 updated her symptoms

    BetterDouble vision (diplopia), Excessive daytime sleepiness (somnolence)
    WorseMS hug (tight chest or torso), Emotional lability, Anxious mood, Difficulty sleeping through night, Mood swings, Depressed mood
    NewElevated blood pressure, Menopause
  19. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 updated her symptoms for

    NewVertigo
  20. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 had a moderate relapse

    Date
    -
  21. Show more