1. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck was feeling very bad

    Ed died on June 22, 2013.

  2. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck updated his bio

    Ed passed away on June 22, 2013

  3. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck completed the QOL survey

  4. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck completed the FRS survey

    • FRS: 0
    • severe Head
    • severe Arms
    • severe Torso
    • severe Legs
  5. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck completed the FRS survey

    • FRS: 0
    • severe Head
    • severe Arms
    • severe Torso
    • severe Legs
  6. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck completed the FRS survey

    • FRS: 3
    • moderate Head
    • severe Arms
    • severe Torso
    • severe Legs
  7. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    Stopped Non-invasive Ventilator

    • Stopped:
    • Reasons: Other
  8. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck completed the FRS survey

    • FRS: 6
    • mild Head
    • severe Arms
    • severe Torso
    • severe Legs
  9. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck completed the FRS survey

    • FRS: 13
    • none Head
    • severe Arms
    • moderate Torso
    • severe Legs
  10. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck completed the FRS survey

    • FRS: 13
    • none Head
    • severe Arms
    • moderate Torso
    • severe Legs
  11. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck was feeling good

    Wonderful friends!

  12. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck was feeling good

    Developing hopeful plan. Deciding to get a trach and vent and try to keep job.

  13. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck was feeling bad

    tired, discouraged, scared

  14. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck was feeling bad

    wife crying a lot. worried about family.

  15. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck was feeling good

    less pain lastnight.Better positioning

  16. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck was feeling good

    less pain lastnight.Better positioning

  17. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck was feeling bad

    Physically okay, but mentally down. Worried about loss of income, insuffient insurance, future of family, discomfort to come.

  18. Portrait default thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck was feeling neutral

    couldn't put bottle back up on bedside table.Down.