1. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    star earnedstar not earnedstar not earned jeanmck lost a star

  2. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck was feeling very bad

    Ed died on June 22, 2013.

  3. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck updated his bio

  4. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck completed the QOL survey

  5. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck completed the FRS survey

    • FRS: 0
    • severe Head
    • severe Arms
    • severe Torso
    • severe Legs
  6. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck completed the FRS survey

    • FRS: 0
    • severe Head
    • severe Arms
    • severe Torso
    • severe Legs
  7. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck completed the FRS survey

    • FRS: 3
    • moderate Head
    • severe Arms
    • severe Torso
    • severe Legs
  8. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    Stopped Non-invasive Ventilator

    • Stopped:
    • Reasons: Other
  9. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck completed the FRS survey

    • FRS: 6
    • mild Head
    • severe Arms
    • severe Torso
    • severe Legs
  10. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS
  11. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck added the treatment Tracheostomy

    • Started: ?
  12. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck completed the FRS survey

    • FRS: 13
    • none Head
    • severe Arms
    • moderate Torso
    • severe Legs
  13. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    star earnedstar earnedstar not earned jeanmck earned a star!

  14. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    star earnedstar not earnedstar not earned jeanmck lost a star

  15. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    star earnedstar earnedstar not earned jeanmck earned a star!

  16. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck completed the FRS survey

    • FRS: 13
    • none Head
    • severe Arms
    • moderate Torso
    • severe Legs
  17. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck was feeling good

    Wonderful friends!

  18. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck was feeling good

    Developing hopeful plan. Deciding to get a trach and vent and try to keep job.

  19. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck was feeling bad

    tired, discouraged, scared

  20. Portrait_default_thumb
    jeanmck
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: severe
    Legs: severe
    I am: vb
    I have:
    ALS

    jeanmck was feeling bad

    wife crying a lot. worried about family.

  21. Show more