1. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Gender: F
    • Age: 45
    Condition: TBI 3 additional condition(s)
    Quality of life:
    • Mental: None
    • Physical: Mild
    I am: vg
    I have:
    TBI

    Christina22222 completed the Seizure meter for the week of May 21 – 27, 2017

  2. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Gender: F
    • Age: 45
    Condition: TBI 3 additional condition(s)
    Quality of life:
    • Mental: None
    • Physical: Mild
    I am: vg
    I have:
    TBI

    Christina22222 was feeling very good

    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • Portrait default thumb
      Christina22222
      Data Quality: 3 stars
      • Gender: F
      • Age: 45
      Condition: TBI 3 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: Mild
      I am: vg
      I have:
      TBI

      Christina22222 started taking Rytary XR

      Dosage2 x 61.25-245 mg three times daily (was 6 x 61.25-245 mg daily until )
    • Portrait default thumb
      Christina22222
      Data Quality: 3 stars
      • Gender: F
      • Age: 45
      Condition: TBI 3 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: Mild
      I am: vg
      I have:
      TBI

      Christina22222 increased her Levetiracetam dosage

      Dosage1125 mg twice daily (was 750 mg twice daily until )
    • Portrait default thumb
      Christina22222
      Data Quality: 3 stars
      • Gender: F
      • Age: 45
      Condition: TBI 3 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: Mild
      I am: vg
      I have:
      TBI

      Christina22222 stopped taking Lamictal

      ReasonSide effects too severe
    • Portrait default thumb
      Christina22222
      Data Quality: 3 stars
      • Gender: F
      • Age: 45
      Condition: TBI 3 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: Mild
      I am: vg
      I have:
      TBI

      Christina22222 evaluated Lamictal from

      • StartedDec 23, 2016
      • Dosage25 mg Twice daily
      • Effectiveness Slight (for Seizures)
      • Effectiveness Can’t tell (for Epilepsy)
      • Side effects Severe
      • Adherence Always
      • Burden Not at all hard to take
      • Cost$25-49 monthly
      • Advice & TipsI could barely walk when my dose got up to 2 tablets twice a day.
      • View complete treatment history
    • Portrait default thumb
      Christina22222
      Data Quality: 3 stars
      • Gender: F
      • Age: 45
      Condition: TBI 3 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: Mild
      I am: vg
      I have:
      TBI

      Christina22222 decreased her Baclofen dosage

      Dosage5 mg daily (was 10 mg daily until )
    • Portrait default thumb
      Christina22222
      Data Quality: 3 stars
      • Gender: F
      • Age: 45
      Condition: TBI 3 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: Mild
      I am: vg
      I have:
      TBI

      Christina22222 was feeling very good

    • Portrait default thumb
      Christina22222
      Data Quality: 3 stars
      • Gender: F
      • Age: 45
      Condition: TBI 3 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: Mild
      I am: vg
      I have:
      TBI

      Christina22222 completed the Seizure meter

      1 comment from other members. Only showing public users' comments. Sign up to see all comments!
      • Portrait default thumb
        Christina22222
        Data Quality: 3 stars
        • Gender: F
        • Age: 45
        Condition: TBI 3 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: Mild
        I am: vg
        I have:
        TBI

        Christina22222 decreased her Baclofen dosage

        Dosage10 mg daily (was 15 mg daily until )
      • Portrait default thumb
        Christina22222
        Data Quality: 3 stars
        • Gender: F
        • Age: 45
        Condition: TBI 3 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: Mild
        I am: vg
        I have:
        TBI

        Christina22222 updated the condition Epilepsy

        • First seizure: ?
        • Diagnosis: ?
      • Portrait default thumb
        Christina22222
        Data Quality: 3 stars
        • Gender: F
        • Age: 45
        Condition: TBI 3 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: Mild
        I am: vg
        I have:
        TBI
        I suffered a traumatic brain injury on October 5, 1992 from a horseback riding accident.  I have a very long story.

        This was my guide line for being the quest speaker in classes.  I used to talk to Occupational Therapy, Physical Therapy, Message Therapy, Neuro Science, etc.  I have not done it in a while.  If you have any questions, just let me know.

        October 5, 1992 - horseback riding alone, lied in a field for about 3 hours, my collie led my husband (at the time) directly to me, took me to McGee Memorial, emergency room Doctors sent me to the Neuroscience Center at Poudre Valley - temp 92, but age 18-25, sex 
         
        less than 20% chance of living, never walk or talk 
        sub-dural hematoma, covered entire left hemisphere  
        small areas of permanent damage  
              top of my basal ganglia  
              my left temporal lobe - controls communication  
        was seen on the first MRI - midline over 1 inch  
        talk - 4 months  
        walk - 5 months  
        after 3 months Dr's in Santa Fe - nursing home.  My Mom and sisters had me sent to a Rehab Hospital. 
        in coma - for 4 months after - no memory 
          - very glad because I was bald and so unfunctional 
        hospitalized - 6 months 
        tracheotomy - 8 weeks 
        stomach tube - 8 months 
        after 4 months of lying in bed, casts on my feet, left hand 
            -24hrs-6 weeks and then to bed for 6 more months 
        bathroom 4 months did not go –after I woke-up I remember going often – casts in bed needed a whistle  
        it was 1 month before I was put in a wheelchair, 5 months walker 
        didn't eat 4 months, started ate very slow, liquid thickener 
        still eat a little slow, wish eat faster, talk slower 
         
        My recovery was always much better than the doctors ever expected.  
        First, I wasn't expected to even live long enough for the surgery or to survive the craniotomy. Second, when the doctors realized that I would live, they thought that I would never walk or talk again. They also didn't know when I would ever come out of the deep coma. On a daily basis my speech and movement bother me, but I have acquired a special appreciation for all the basics in life. 
         
        Improvements 
        shower - sat - 9 months  
        dressed - shoes - 1 year  
        brushing my teeth - 10 months  
        could not lift my arms above or reach my back  
        get my watch on or earrings and necklace  
        clip my nails, wasn't well enough coordinated  
        drying my hair - 18 months  
        curling my hair - 22 months  
        24 hour care - more than 1 1/2 years  
        following movies  
        more than 2 1/2 years before I could laugh  
        tie my shoes standing  
        stand on one-foot  
        writing my first name, 36 sec - 5 sec, average 8 

        journal - 4 1/2 years 
        - recorded everything 
        - ate, where went, what did, how felt 
        - writing, memory 
        - wave, feet 
        almost 2 years after the accident, Fall 1994, I returned to CSU 
        Animal Science major, graduated in 1997, 3 years, had transfer credits from before the accident 
        intern CDHIA computer records, collecting milk samples 
        CU Boulder diabetes research - mice, grant ended after 2 1/2 years 
        State Rep./Senate Ron Tupa, survey 2000, bus 
        Carmel Community Living - day program coordinator 
        CU Denver, diabetes research mice, bus  (125X safer than driving for the average person)  

        Laboratory Medical Center - histology - Las Vegas

        Christmas 2006  Unipath - Histology Laboratory Assistant - Denver – first year I was driving and I was shaking away Access a Ride for 4 ½ years and I was cancelled – 2 ½ years carpooled -  now ride RTD bus-train-bus most of the way
        cookies, sweet bread, and stews - my continuous therapy 
        motor skills, following steps, coordinating, after I am done we get to enjoy my therapy 
          
        for about the first 8 years used to score and record sleep, energy, walking and speech on scale a 0-10 
        time and record showers, getting dressed and changes in medication 
        Spring 1995 Dr. Christopher O'Brien - left for research - Dr. Kumar - Movement Disorder Center for Colorado Neurology in Swedish Medical Center and Craig Rehabilitation Hospital    Now I see Dr. Kluger at the University of Colorado 
        September 2008, Dr. Kumar did MRI and EEG, saw all the permanent damage  
        top of my basal ganglia damaged, substantia nigra, which produces dopamine 
        dopamine - chemical that facilitates nerve connections, it allows you to make smooth controlled movements 
        Simenet helps the brain produce dopamine, been on sinemet since shortly after the accident   
        hard time adjusting my dose of Sinemet, little to much wild, little to little slow and stiff

        I take more then 3 times the average daily dose because my brain makes no dopamine at all. 

        I have been on and off of many medications for Parkinsons.

        2016 Rytary came out, a new form of dopamine, similar to Sinemet- very gradually doing the transition with Sinemet and  Rytary lasts 8 hours in most patients, lasts 2 ½ hours in me.  So still taking Sinemet.

        October 14, 2016 had a black out since then on 2 seizure medications
        brains chemical balances always changes 

        December 2016 started on Azilect to even out my dopamine levels.
        early morning and late at night, my left (fast) side slows even with dopamine in my system.

        more than 3 years after the accident and in December 2010 - 24 hour flu - went to the Health Center for an IV, couldn't keep medication down - whole body turned stiff as a board, slow almost 2 months after- immune system - automatic toothbrush – since then I always get the flu shot
        dystonia - abnormal muscle tone-wrong signal, effects left side - spasticity rigidity of muscles -right side 
        right toes - since casts - standing they curl, sitting , lying down still painful, thalamus controls pain signals 
        left toes – straight down, cross, early in morning or if I have not quit enough dopamine in my system, can’t walk. 

            -when sick thought they would break off 
        January 2002 - surgery on my second right toe 

         

        Have to take pills 8 different exact times a day - 43 pills/day from 7 prescriptions - if I am up to 10 minutes late at any time, my brain and body will slow down drastically -  at pill time I often can feel my chain saw start it’s engine.

          
        Oculormotor nerve damaged from pressure of hematoma , which controls eye movement 
        double vision after the accident, saw 2 of everything, strongest prisms on my glasses and could still only read with one eye - eye surgery August 1994 - 1 ½  weeks before returned to school, surgeon said red 3 weeks, red for 3 months 
        double vision started getting worse about 1 ½  years after surgery 
         - writing behind my hand and reading sometimes - varies 
         - eyes get stuck shut occasionally due to oculormotor nerve damage 
         - dilate my eyes, my vision gets much better 
         - don't drink enough, tunnel vision and big black spots appear 
        2 1/2 years after surgery, weak prisms
        tried glue on prism for reading, but did not help writing and stairs moved                                                                                                     after MRI in 2003, after work, feel asleep - I woke up, no prisms needed but stronger prescription                                                                        in 2011 weak prisms needed and stronger prescription

        Still Problems 
        speech varies - social  
        memory  
        slow in general  
        remembering name  
        right hand typing - spasticity  
        arms and hands don't naturally relax - dystonia 
        left hand shaky - dystonia 
        walk slow, feet drag 
        loud walker  
        food stuck - lower my chin to drink 
         
        Miscellaneous 
        3-4 years destructive thoughts  
        swimming - used to be on swim teams - 1 year after sank - next year whole lap  
        skiing - helmet - breathing  
        biking - almost 4 years  
        cold shiver - jump - seizure?  
        little noises - jump  
        smell, taste, after 5 years cravings  
        cough signal was disconnected  
        no headaches

        no dreams for over 20 years 
        note takers 
        tutors 
        extra time on tests - computer - orally 
        Bovine AI class the Disabled Student Office sent someone with me just to watch me, smell 
        physical therapist, workout - row, weights, stretches 
              row- knees, healthier, immune, vitamin C, flu shot  
        Braiden Hall - realize now 
        now, I am very glad I went to CSU, very glad I'm done 
         

        Division of Vocational Rehabilitation 
        recommended by occupational therapist at CSU,                                                                                                           

         job placement and in a number of ways to help me achieve my goals, 
        referred me to the Brain Injury Recovery Program, for driving lessons with a special adaptation, left gas pedal, if someone else drives it pops out, I get a kick out of it, "so simple it's ingenious," very glad I didn't remember how good the independence felt and I am very glad there was no rush because I used to dream of crashing 
        They are always available to help me to find a new job, when I need it - Community Based Assessment (CBA) -subsidize  
        A study showed that for every $1 state tax dollar put into Division of Vocational Rehabilitation, $10 more 
        state tax dollars returns to the state by us getting out and earning money and paying taxes.  
         

        Involved in the Brain Injury Association
        great place where I have made many good friends
        in Colorado they referred me to CU Boulder for speech therapy 
         

        Recommendations: 
        if someone just lies in bed - avoid casts - move them to music 
        Vocational Rehabilitation for people with disabilities 
        medication checklist or alarm clocks on cell phone
        journal 
        energy sheet 
        health insurance 
        encourage family to be supportive 
        focus on what you can do, not on what you can not do  
        enjoy continuous therapy - cooking, exercise, yoga, hiking, skiing, giving speeches, etc. 
        wear a helmet, several friends broke their helmets - heads fine

        kids tell me "wear a helmet, you are totally cool and respected"  

        my endless list of reasons to wear a helmet:

        my toes 

        my right side 

        my vision 
        my speech 

         3 craters in my head 

         hospitalized for 6 months 

        7 prescriptions, 43 pills each day at 8 exact times

         if you enjoy the basics like eating, breathing, walking, talking and laughing it is better to be safe than sorry

         etc. 
         
        Brain Injury Association of Colorado facts: 
        - every 23 seconds in America a person sustains a traumatic brain injury (TBI) 
        - every 5 minutes one of these people will die AND another will be become permanently disabled  
        - over 1.5 million TBI in the US per year, 500,000 severe enough to require hospitalization 
        - as many people die each year from a TBI as in the entire Vietnam War 
        - motor vehicles accidents cause-50%, falls-21%, violence-12%, sports-10% 
        - TBI is the number one killer of American youth 
        - wearing a bike helmet reduces the chance of a TBI by 88%
        -after surviving one TBI we have a 50% chance of having a second TBI
         

        Christina Snyder 

        5 comments from other members. Only showing public users' comments. Sign up to see all comments!
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          Christina22222 about 4 weeks ago

          Thanks for the comment. I have seen no one like me. I am so far past advanced Parkinson's I have made my own new category, Professional Parkinson's. If I am just 5 to 10 minutes late in any of my dopamine pills I will start shaking like I am riding a chain saw. I have my pills so exactly balanced it is scary. I am very lucky to say as long as I keep on exact schedule, which is always, I have my Parkinson's parked. What is bothering me the most is my whole body is tilted to the right. I do side lifts and try to lean right more but it has very little, to no effect. Any other ideas?

      • Portrait default thumb
        Christina22222
        Data Quality: 3 stars
        • Gender: F
        • Age: 45
        Condition: TBI 3 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: Mild
        I am: vg
        I have:
        TBI

        Christina22222 decreased her Carbidopa-Levodopa dosage

        Dosage8 x 25-100 mg daily (was 8.5 x 25-100 mg daily until )
      • Portrait default thumb
        Christina22222
        Data Quality: 3 stars
        • Gender: F
        • Age: 45
        Condition: TBI 3 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: Mild
        I am: vg
        I have:
        TBI

        Christina22222 completed the PDRS survey

        • PDRS: 22
        • On treatment
        • moderate Mouth/throat
        • mild Arms
        • mild Chest
        • mild Legs
      • Portrait default thumb
        Christina22222
        Data Quality: 3 stars
        • Gender: F
        • Age: 45
        Condition: TBI 3 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: Mild
        I am: vg
        I have:
        TBI

        Christina22222 was feeling very good

      • Portrait default thumb
        Christina22222
        Data Quality: 3 stars
        • Gender: F
        • Age: 45
        Condition: TBI 3 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: Mild
        I am: vg
        I have:
        TBI

        Christina22222 increased her Carbidopa-Levodopa dosage

        Dosage8.5 x 25-100 mg daily (was 8 x 25-100 mg daily until )
      • Portrait default thumb
        Christina22222
        Data Quality: 3 stars
        • Gender: F
        • Age: 45
        Condition: TBI 3 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: Mild
        I am: vg
        I have:
        TBI

        Christina22222 completed the Seizure meter for the week of Feb 26 – Mar 4, 2017

      • Portrait default thumb
        Christina22222
        Data Quality: 3 stars
        • Gender: F
        • Age: 45
        Condition: TBI 3 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: Mild
        I am: vg
        I have:
        TBI

        Christina22222 completed the Seizure meter for the week of Mar 5 – 11, 2017

      • Portrait default thumb
        Christina22222
        Data Quality: 3 stars
        • Gender: F
        • Age: 45
        Condition: TBI 3 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: Mild
        I am: vg
        I have:
        TBI

        Christina22222 completed the Seizure meter for the week of Mar 12 – 18, 2017

      • Portrait default thumb
        Christina22222
        Data Quality: 3 stars
        • Gender: F
        • Age: 45
        Condition: TBI 3 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: Mild
        I am: vg
        I have:
        TBI

        Christina22222 completed the Seizure meter for the week of Mar 19 – 25, 2017

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