1. Portrait default thumb
    Christina22222
    Data Quality: 1 star
    • Gender: F
    • Age: 44
    Condition: TBI 2 additional condition(s)
    Quality of life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 was feeling very good

  2. Portrait default thumb
    Christina22222
    Data Quality: 1 star
    • Gender: F
    • Age: 44
    Condition: TBI 2 additional condition(s)
    Quality of life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI
    I suffered a traumatic brain injury and as a result suffer with Parkinson symptoms. This Long Bio was my guide line for being the quest speaker in classes. I used to talk to Occupational Therapy, Physical Therapy, Neuro Science, etc. I have not done it in a while.  This used to be beginning of my speach.                          October 5, 1992 - horse back riding alone, lied in a field for about 3 hours, my collie, lead my husband at the time, directly to me, he took me to McGee Memorial, in Loveland, Colorado.  The emergency room Doctors sent me to the neuroscience center at Poudre Valley, in Fort Collins - temp 92, but age 18-25 and sex.  I had less than 20% chance of living, never walk or talk, sub-dural hematoma.   If interested in knowing more, please let me know.   My story is too long for this box. 
    3 comments from other members. Only showing public users' comments. Sign up to see all comments!
    • Portrait default thumb
      Christina22222
      Data Quality: 1 star
      • Gender: F
      • Age: 44
      Condition: TBI 2 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: None
      I am: vg
      I have:
      TBI

      Christina22222 started taking Carbidopa-Levodopa CR

      Dosage50 mg-200 mg daily (was 50 mg-200 mg daily until )
    • Portrait default thumb
      Christina22222
      Data Quality: 1 star
      • Gender: F
      • Age: 44
      Condition: TBI 2 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: None
      I am: vg
      I have:
      TBI

      Christina22222 increased her Rytary XR dosage

      Dosage14 tablet(s) daily (was 13 tablet(s) daily until )
    • Portrait default thumb
      Christina22222
      Data Quality: 1 star
      • Gender: F
      • Age: 44
      Condition: TBI 2 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: None
      I am: vg
      I have:
      TBI
    • Portrait default thumb
      Christina22222
      Data Quality: 1 star
      • Gender: F
      • Age: 44
      Condition: TBI 2 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: None
      I am: vg
      I have:
      TBI

      Christina22222 decreased her Carbidopa-Levodopa dosage

      Dosage6 x 25 mg-100 mg daily (was 9 x 25 mg-100 mg daily until )
    • Portrait default thumb
      Christina22222
      Data Quality: 1 star
      • Gender: F
      • Age: 44
      Condition: TBI 2 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: None
      I am: vg
      I have:
      TBI

      Christina22222 changed her Rytary XR dosage

      Dosage13 tablet(s) daily (was 9 mg daily until )
    • Portrait default thumb
      Christina22222
      Data Quality: 1 star
      • Gender: F
      • Age: 44
      Condition: TBI 2 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: None
      I am: vg
      I have:
      TBI

      Christina22222 updated her weight

      • Weight: 121 lb
      • BMI: 20.1
    • Portrait default thumb
      Christina22222
      Data Quality: 1 star
      • Gender: F
      • Age: 44
      Condition: TBI 2 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: None
      I am: vg
      I have:
      TBI

      Christina22222 updated her weight for

      • Weight: 122 lb
      • BMI: 20.3
    • Portrait default thumb
      Christina22222
      Data Quality: 1 star
      • Gender: F
      • Age: 44
      Condition: TBI 2 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: None
      I am: vg
      I have:
      TBI

      Christina22222 started taking Carbidopa-Levodopa

      Dosage9 x 25 mg-100 mg daily (was 12.1 x 25 mg-100 mg daily until )
    • Portrait default thumb
      Christina22222
      Data Quality: 1 star
      • Gender: F
      • Age: 44
      Condition: TBI 2 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: None
      I am: vg
      I have:
      TBI

      Christina22222 started taking Rytary XR

      Dosage9 mg daily (was 4 capsule(s) daily until )
    • Portrait default thumb
      Christina22222
      Data Quality: 1 star
      • Gender: F
      • Age: 44
      Condition: TBI 2 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: None
      I am: vg
      I have:
      TBI

      Christina22222 updated the condition Osteoporosis

      • First symptom: ?
      • Diagnosis: December 28, 2008
    • Portrait default thumb
      Christina22222
      Data Quality: 1 star
      • Gender: F
      • Age: 44
      Condition: TBI 2 additional condition(s)
      Quality of life:
      • Mental: None
      • Physical: None
      I am: vg
      I have:
      TBI

      Christina22222 was feeling very good

      1 comment from other members. Only showing public users' comments. Sign up to see all comments!
      • Portrait default thumb
        Christina22222
        Data Quality: 1 star
        • Gender: F
        • Age: 44
        Condition: TBI 2 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: None
        I am: vg
        I have:
        TBI

        I suffered a traumatic brain injury on October 5, 1992 from a horseback riding accident. I have a very long story.

        This was my guide line for being the quest speaker in classes. I used to talk to Occupational Therapy, Physical Therapy, Message Therapy, Neuro Science, etc. I have not done it in a while. If you have any questions, just let me know.

        October 5, 1992 - horseback riding alone, field 3 hours, collie led my husband (at the time) to me, McGee Memorial, emergency room Doctors sent me to the neuroscience center at Poudre Valley - temp 92, but age 18-25, sex

        less than 20% chance of living, never walk or talk
        sub-dural hematoma

        covered entire left hemisphere

        small areas of permanent damage

        top of my basal ganglia

        my left temporal lobe

        -controls communication

        was seen on the MRI - midline over 1 inch

        talk - 4 months

        walk - 5 months

        after 3 months Dr's in Santa Fe - nursing home

        in coma - for 4 months after - no memory
        - very glad because I was bald and so unfunctional
        hospitalized - 6 months
        tracheotomy - 8 weeks
        stomach tube - 8 months
        after 4 months of lying in bed, casts feet, left hand
        -24hrs-6 weeks and then bed-6 months after
        bathroom 4 months - often - casts bed, whistle

        it was 1 month before wheelchair, 5 months walker
        didn't eat 4 months, started ate slow, liquid thickener
        still eat a little slow, wish eat faster, talk slower

        My recovery was always much better than the doctors ever expected.

        First, I wasn't expected to even live long enough for the surgery or to survive the craniotomy. Second, when the doctors realized that I would live, they thought that I would never walk or talk again. They also didn't know when I would ever come out of the deep coma. On a daily basis my speech and movement bother me, but I have acquired a special appreciation for all the basics in life.

        Improvements
        shower - sat - 9 months

        dressed - shoes - 1 year

        brushing my teeth - 10 months

        could not lift my arms above

        or reach my back

        get my watch on

        earrings, necklace

        clip my nails, wasn't well coordinated

        drying my hair - 18 months

        curling my hair - 22 months

        24 hour care - more than 1 1/2 years

        movies

        more than 2 1/2 years before I could laugh

        tie my shoes standing

        stand on one-foot

        writing my first name, 36 sec - 5 sec, average 8

        journal - 4 1/2 years
        - everything
        - ate, where went, what did, how felt
        - writing, memory
        - wave, feet
        almost 2 years after the accident I returned to CSU
        Animal Science major, graduated 3 years, had transfer credits form before the accident
        intern CDHIA computer records, collecting milk samples
        CU Boulder diabetes research mice, grant ended after 2 1/2 years
        State Rep./Senate Ron Tupa, survey 2000, bus
        Carmel Community Living - day program coordinator
        CU Denver, diabetes research mice, bus (125X safer)

        Laboratory Medical Center - histology -Las Vegas
        Christmas 2006-Unipath - Histology Laboratory Assistant - Denver - Access a Ride for 41/2 years - now drive 12 miles and ride bus, train and bus

        stews, sweet bread, and cookies - my continuous therapy
        motor skills, following steps, coordinating, after done we get to enjoy the therapy

        score and record sleep, energy, walking and speech on scale a 0-10
        time and record showers, getting dressed and changes in medication
        Spring 1995 Dr. Christopher O'Brien - left for research - Dr. Kumar - Movement Disorder Center for Colorado Neurology in Swedish Medical Center and Craig Rehabilitation Hospital

        in January 2001 and in September 2008, Dr. Kumar did MRI and EEG, saw all the permanent damage

        top of my basal ganglia damaged, substantia nigra, produces dopamine
        dopamine - chemical that facilitates nerve connections
        allows you to make smooth controlled movements
        Simenet helps the brain produce dopamine, been on sinemet since shortly after the accident

        Fall 1997- to January 2007synthetic dopamine (Permax )-decreased sinemet to less 1/4 of what I used to take-natural-bed Permax was discontinued so I tried Mirapex and then Requip, November 2008
        Most people on Requip take 4 to 6 mg/day, I was up to 24 mg (the maximum dose) in 6 weeks
        hard time adjusting my dose of Sinemet, little to much wild, little to little slow and stiff
        I take 3 times the average daily dose because my brain makes no dopamine at all.
        October 2012, gradually decreased Requip and gradually increased Neupro patches
        January 2013 off Requip, by February 2013 on 12mg Neupro, 8mg is for Advanced Parkinson disease, I was on 12mg, causes patients to lean to the right so I cut back to 6mg
        asked Dr. O'Brien's nurse if other patients had a hard time adjusting the dose - no Parkinson disease

        brains chemical balances always changes
        more than 3 years after the accident - 24 hour flu - went to the Health Center for an IV, couldn't keep medication down - whole body turned stiff as a board, slow almost 2 months - immune system - automatic toothbrush - now flu shot
        dystonia - abnormal muscle tone-wrong signal, effects left side - spasticity rigidity of muscles -right side
        right toes - since casts - standing they curl, sitting , lying down still painful, thalamus controls pain signals
        left toes - straight, cross, early in morning, when sick thought they would break off
        left arm stiffens when my left toes curl, early morning and late at night, my left side slow
        January 2002 - surgery on my second right toe
        January 2008 started on Comtan to keep Sinemet in my system longer, stopped, March 2011.
        2 alarm clocks -6 different exact times a day - 32 pills/day from 4 prescriptions -
        if I am up to 15 minutes late at any time, my brain and body will slow down drastically

        Oculormotor nerve damaged from pressure of hematoma , which controls eye movement
        double vision after the accident, saw 2 of everything, strongest prisms on my glasses and could still only read with one eye - eye surgery 1 1/2 weeks before returned to school, surgeon said red 3 weeks, red for 3 months
        double vision started getting worse about 11/2 years after surgery
        - writing behind my hand and reading sometimes - varies
        - eyes get stuck shut occasionally due to oculormotor nerve damage
        - dilate my eyes, my vision gets much better
        - don't drink enough, tunnel vision and spots disappear
        2 1/2 yeas after surgery, weak prisms, finger
        tried glue on prism for reading, but writing and stairs after MRI in 2003, I woke up, no prisms needed but stronger prescription in 2011 weak prisms needed and stronger prescription

        Still Problems
        speech varies - social

        memory

        slow in general

        remembering name

        right hand typing - spasticity

        arms and hands don't naturally relax - dystonia
        left hand shaky - dystonia
        walk slow, feet drag
        loud walker

        food stuck - lower my chin to drink

        Miscellaneous
        3-4 years destructive thoughts

        swimming - 1 year after sank - next year whole lap

        skiing - helmet - breathing

        biking - almost 4 years

        cold shiver - jump - seizure?

        little noises - jump

        smell, taste, after 5 years cravings

        cough signal was disconnected

        no headaches
        no dreams for over 20 years
        note takers
        tutors
        extra time on tests - computer - orally
        Bovine AI, Disabled Student Office, smell
        physical therapist, workout - row, weights, stretches
        row-knees, healthier, immune, vitamin C, flu shot

        Braiden Hall - realize now
        now, I am very glad I went to CSU, very glad I'm done

        Division of Vocational Rehabilitation
        recommended by occupational therapist at CSU

        job placement and in a number of ways to help me achieve my goals,
        referred me to the Brain Injury Recovery Program, for driving lessons with a special adaptation, left gas pedal, if someone else drives it pops out, I get a kick out of it, "so simple it's ingenious," very glad I didn't remember how good the independence felt and I am very glad there was no rush because I used to dream of crashing
        They are always available to help me to find a new job, when I need it - Community Based Assessment (CBA) - subsidize

        A study showed that for every $1 state tax dollar put into Division of Vocational Rehabilitation, $10 more
        state tax dollars returns to the state by us getting out and earning money and paying taxes.

        Involved in the Brain Injury Association
        great place where I have made many good friends
        in Colorado they referred me to CU Boulder for speech therapy

        Recommendations:
        if someone just lies in bed - avoid casts - move them to music
        Vocational Rehabilitation for people with disabilities
        medication checklist or alarm clock
        journal
        energy sheet
        health insurance
        encourage family to be supportive
        focus on what you can do, not what you can't do

        enjoy continuous therapy - cooking, working out, hiking, skiing, giving speeches, etc.
        wear a helmet, several friends broke their helmets - heads fine
        kids tell me "wear a helmet, you are totally cool and respected"

        my endless list of reasons to wear a helmet:
        my toes
        my right side
        my vision
        my speech
        3 craters in my head
        hospitalized for 6 months
        4 prescriptions, 32 pills and 1 patch each day at 6 exact times

        if you enjoy eating, breathing, walking and talking
        etc.

        Brain Injury Association of Colorado facts:
        - every 15 seconds in America a person sustains a traumatic brain injury (TBI)
        - every 5 minutes one of these people will die AND another will be become permanently disabled

        - over 2 million TBI in the US per year, 500,000 severe enough to require hospitalization
        - as many people die each year from a TBI as in the entire Vietnam War
        - motor vehicles accidents cause-50%, falls-21%, violence-12%, sports-10%
        - TBI is the number one killer of American youth
        - wearing a bike helmet reduces the chance of a TBI by 88%
        -after surviving one TBI we have a 50% chance of having a second TBI

        Christina Snyder

        3 comments from other members. Only showing public users' comments. Sign up to see all comments!
          Portrait default thumb
          Christina22222 about 1 year ago

          Hi Suzanne,
          How did you have your brain injury? Everyday I stay positive by focusing on what I can do and not on what I can not do. That is very helpful to keep me positive. What did you think of my story?
          Christina

      • Portrait default thumb
        Christina22222
        Data Quality: 1 star
        • Gender: F
        • Age: 44
        Condition: TBI 2 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: None
        I am: vg
        I have:
        TBI

        Christina22222 was feeling very good

      • Portrait default thumb
        Christina22222
        Data Quality: 1 star
        • Gender: F
        • Age: 44
        Condition: TBI 2 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: None
        I am: vg
        I have:
        TBI

        Christina22222 increased her Rytary XR dosage

        Dosage4 capsule(s) daily (was 3 capsule(s) daily until )
      • Portrait default thumb
        Christina22222
        Data Quality: 1 star
        • Gender: F
        • Age: 44
        Condition: TBI 2 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: None
        I am: vg
        I have:
        TBI
      • Portrait default thumb
        Christina22222
        Data Quality: 1 star
        • Gender: F
        • Age: 44
        Condition: TBI 2 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: None
        I am: vg
        I have:
        TBI

        Christina22222 was feeling very good

      • Portrait default thumb
        Christina22222
        Data Quality: 1 star
        • Gender: F
        • Age: 44
        Condition: TBI 2 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: None
        I am: vg
        I have:
        TBI

        Christina22222 updated her labs and tests

        • Steps30 on
        • Source: FITBIT®
      • Portrait default thumb
        Christina22222
        Data Quality: 1 star
        • Gender: F
        • Age: 44
        Condition: TBI 2 additional condition(s)
        Quality of life:
        • Mental: None
        • Physical: None
        I am: vg
        I have:
        TBI
      • Show more