1. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona became a 3 star data donor! star earnedstar earnedstar earned

  2. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS
  3. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona evaluated Triamcinolone topical

    • StartedSep 7, 2012
    • Dosage0.1 g Daily
    • Effectiveness Moderate (for Lichen Simplex Chronicus)
    • Side effects None
    • Adherence Always
    • Burden Somewhat hard to take
    • View complete treatment history
  4. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona updated his weight

    • Weight: 110 lb
    • BMI: 16.7
  5. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona completed the FRS survey

    • FRS: 25
    • mild Head
    • severe Arms
    • none Torso
    • moderate Legs
  6. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona updated his symptoms

    BetterFasciculations, Back pain
    WorseTemperature sensitivity to cold, Stiffness/Spasticity, Raynaud's phenomenon, Loss of energy, Constipation
  7. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona was feeling neutral

    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona became a 3 star data donor! star earnedstar earnedstar earned

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona updated his symptoms

      BetterStiffness/Spasticity, Insomnia, Back pain
    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona completed the QOL survey

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona became a 3 star data donor! star earnedstar earnedstar earned

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS
    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona evaluated N-Acetylcysteine NAC

      • StartedNov 15, 2015
      • Dosage600 mg Twice daily
      • Effectiveness Can’t tell (for ALS (Amyotrophic Lateral Sclerosis))
      • Side effects None
      • Adherence Always
      • Burden A little hard to take
      • View complete treatment history
    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona completed the FRS survey

      • FRS: 23
      • mild Head
      • severe Arms
      • none Torso
      • moderate Legs
    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona updated his weight

      • Weight: 115 lb
      • BMI: 17.5
    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona was feeling good

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona completed the QOL survey

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona was feeling neutral

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona was feeling good

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona was feeling good

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