1. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona was feeling neutral

  2. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona was feeling good

  3. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona stopped taking Cysteplus

    ReasonOther (Found out that it was the same thing as NAC which I was already taking. )
  4. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona was feeling neutral

  5. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona was feeling neutral

  6. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona was feeling neutral

  7. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona was feeling neutral

  8. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona became a 3 star data donor! star earnedstar earnedstar earned

  9. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona updated his symptoms

    BetterStiffness/Spasticity, Raynaud's phenomenon, Loss of energy
    WorseFasciculations, Back pain
  10. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona was feeling neutral

  11. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona was feeling good

  12. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona updated the condition Lichen Simplex Chronicus

    • First symptom: March 25, 2010
    • Diagnosis: January 7, 2012

  13. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona was feeling good

  14. 27310 thumb
    nacona
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: severe
    Chest: none
    Legs: moderate
    I am: n
    I have:
    ALS

    nacona was feeling neutral

    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona updated the condition High Cholesterol (Hypercholesterolemia)

      • First symptom: ?
      • Diagnosis: ?
    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona was feeling neutral

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona evaluated Interactive metranome

      • StartedFeb 8, 2011
      • Dosage3 hr Weekly
      • Effectiveness Major (for Support quality of life)
      • Side effects None
      • Adherence Usually
      • Burden A little hard to take
      • Cost< $25 monthly
      • Advice & TipsI still believe that Interactive Metronome is one of the best front line defenses against ALS for newly diagnosed or any patient with some degree of motor function there is. I have been doing this for five years and although I have progressed I believe that IM has slowed the progression dramatically. You can find the case study that IM did on me here http://www.interactivemetronome.com/images/larry-als-case-study.pdf
      • View complete treatment history
    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS
    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona was feeling neutral

      2 comments from other members. Only showing public users' comments. Sign up to see all comments!
        27310 thumb
        nacona 10 days ago

        Dragon Speech Recognition is great if you can still talk, used it for about 4 years. Otherwise I'd have to say Tobii eye go.

    • 27310 thumb
      nacona
      Sex: M
      Data Quality: 3 stars
      Bulbar: mild
      Arms: severe
      Chest: none
      Legs: moderate
      I am: n
      I have:
      ALS

      nacona updated the condition Degenerative Disc Disease

      • First symptom: ?
      • Diagnosis: ?
    • Show more