1. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph was feeling bad

    Still having flare but I can walk now. Very exhausting.,

  2. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph updated his symptoms

    Back pain BetterBack pain, Burning sensation, Burning and tight band feeling in torso and chest area (MS hug), Burning sensation in skin
  3. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph updated his symptoms for

    Nerve pain (neuralgia) BetterNerve pain (neuralgia), Burning and tight band feeling in torso and chest area (MS hug), Pain in shoulders, Burning sensation in skin, Neck pain See more
    Emotional lability WorseEmotional lability, Brain fog, Memory lapses (brain blinks), Tired for a few hours after treatment, Excessive daytime sleepiness (somnolence) See more
  4. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph updated the condition Neuromyelitis Optica

    • First symptom:
    • Diagnosis:
  5. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph completed the MSRS survey

    • MSRS: 57
    • Mild disability but not requiring help from others Cognition
    • Total disability and help always required Vision
    • Aware of symptoms but no functional disability Speech
    • Aware of symptoms but no functional disability Swallowing
    • Mild disability but not requiring help from others Upper limb
    • Moderate disability that requires some help from others Walking
    • Moderate disability that requires some help from others Sensation
  6. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph updated his weight

  7. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph completed the NMORS survey

    • NMORS: 59
    • Mild disability but not requiring help from others Cognition
    • Total disability and help always required Left vision
    • Moderate disability that requires some help from others Right vision
    • Aware of symptoms but no functional disability Speech
    • Aware of symptoms but no functional disability Swallowing
    • Mild disability but not requiring help from others Upper limb
    • Moderate disability that requires some help from others Walking
    • Moderate disability that requires some help from others Sensation
  8. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph updated his symptoms

    Complete exhaustion BetterComplete exhaustion, Pain
    Back pain WorseBack pain
  9. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph updated his symptoms for

    Abdominal bloating BetterAbdominal bloating, Insomnia, Difficulty sleeping through night, Sleep problems
    Pain WorsePain, Stiffness/Spasticity, Complete exhaustion, Balance problems, Burning sensation See more
  10. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph updated the condition Multiple Sclerosis

    • First symptom:
    • Diagnosis:
  11. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph completed the MSRS survey

    • MSRS: 53
    • Mild disability but not requiring help from others Cognition
    • Total disability and help always required Vision
    • Mild disability but not requiring help from others Speech
    • Aware of symptoms but no functional disability Swallowing
    • Mild disability but not requiring help from others Upper limb
    • Mild disability but not requiring help from others Walking
    • Mild disability but not requiring help from others Sensation
  12. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph updated his weight

  13. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph added a treatment evaluation for Vitamin D

    • Perceived effectiveness for Vitamin D deficiency: Major
    • Perceived effectiveness for Osteopenia: Major
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 2000 intl units Daily
    • Advice & Tips: As of Monday my vitamin D level was perfect according to the labs!
  14. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph updated his symptoms

    Balance problems BetterBalance problems, Bowel problems, Burning and tight band feeling in torso and chest area (MS hug), Burning sensation, Complete exhaustion See more
    Abdominal bloating WorseAbdominal bloating, Anxious mood, Blind spot in right eye, Burning sensation in skin, Buzzing vibration sensation See more
  15. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph updated the treatment Vitamin D

    • Evaluated
    • Restarted
      • Dosage: 2000 intl units daily
      • May 15, 2013
    • Evaluated
    • Stopped
      • Date: Sep 29, 2009
      • Reason: Side effects too severe
      • Sep 29, 2009
    • Added
      • Started: Jul 13, 2009
      • Dosage: 4800 intl units daily
      • Purpose: Osteopenia, Vitamin D deficiency, and I am actually taking 5000 IU daily
      • Jul 13, 2009
  16. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    star earnedstar earnedstar earned philiph earned a star!

  17. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    star earnedstar earnedstar not earned philiph lost a star

  18. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    star earnedstar earnedstar earned philiph earned a star!

  19. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    star earnedstar earnedstar not earned philiph lost a star

  20. 1990-thumb
    philiph
    Sex: M
    Data Quality: 3 stars
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: severe
    Speech: mild
    Swallowing: mild
    Upper limb: moderate
    Walking: moderate
    I am: b
    I have:
    MS

    philiph was feeling good

    Just not feelimg bad. LOL

    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 1990-thumb
      philiph about 3 months ago

      I have also been on a slow steroid taper. I was at 25mg a day down to 22mg a day. I am doing on mg a month wanting to get to 10mg a day. So far doing ok. Thank you God.

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