1. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview was feeling good

  2. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview was feeling good

  3. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview was feeling neutral

    My legs were fine this morning in and not hurt me however about 2 o'clock my leg started tingling and freezing my legs are fine this morning and then not home in our about 2 o'clock my legs fun things going and freezing

  4. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    My legs have given me fits today. They have alternated between fine to tingling and freezing.

  5. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's
  6. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview completed the PDRS survey

    • PDRS: 42
    • On treatment
    • mild Mouth/throat
    • mild Arms
    • mild Chest
    • severe Legs
  7. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    From the beginning, I knew that Michael J. Fox and I had little in common. The meds never held me for more that 3-4 months at the time. Then my symptoms would return. Which led to an increase in medication which worked for 3-4 months ago. This has been a continuing cycle since 2008. Then my neuro referred me to another neuro. The new neuro (on my first visit) said that I definitely did not have plain, ole Parkinson's -- he just did not know what. This lead to every test known to man. All of which revealed nothing. The only deficiency was a low B-12 level. The neuro believed that I may have SupraNuclear Palsy or Multiple System Atrophy. We then agreed that a referral to Mayo was the answer. So I waited ... from April 2012 until December 2012 when Mayo in Florida could finally see me. In less than 3 weeks, my life turned around. Because I, at last, have a name to call "it" which is Lewy Body Disease. I don't have dementia or Alzeheimers (yet) but I do have mild/moderate cognitive abilities. I will continue to have good and bad days; without notice. But now I have a name to call it which is a relief. I had gotten to the point to where I honestly believed that I was making it up. Only my partner believed me. I am sure that the road ahead will be rough, but now I am happy just to have a name to call my ailment and that name is Lewy Body.

    However, circumstances have changed yet again at Mayo. I continue to   see my local neurologist regularly. Additionally I am seen annually  as part of a  Lewy Body Disease study (this was  last week).

    This time, my  neurologist became aware that my physical and cognitive were not progressing as he had expected : my cognitive levels have remained at the same level for 3 years; while my physical abilities seem to have had a rather quick decline.

    Now, they believe  that I may have either Multiple System Atrophy or Progressive Supra Nuclear  Palsy.



  8. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview updated his labs and tests

    • Estimated Average Glucose68 mg/dL on
  9. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    I go to the doctor at Mayo to finally find out my diagnosis. I have been waiting since 02/2007 and have gone through 4 diagnoses.

  10. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview updated his symptoms

    BetterAnxious mood, Difficulty sleeping through night, Erectile dysfunction, Lack of Hand Grasp, Pain See more
    WorseExcessive daytime sleepiness (somnolence), Back pain, Balance problems, Brain fog, Dependence on cane for walking See more
  11. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview was feeling neutral

  12. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview was feeling neutral

  13. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview was feeling good

  14. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview became a 3 star data donor! star earnedstar earnedstar earned

  15. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview completed the PDRS survey

    • PDRS: 42
    • On treatment
    • mild Mouth/throat
    • mild Arms
    • mild Chest
    • severe Legs
  16. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview updated his symptoms

    BetterBack pain, Compulsive behaviors, Drowsiness, Excessive daytime sleepiness (somnolence), Frequent urination See more
    WorseBrain fog, Constipation, Cramps in feet, Difficulty projecting voice, Difficulty sleeping through night See more
    NewDeteriorating mental ability (dementia)
  17. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview updated his weight for

  18. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview updated his weight

  19. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview updated the condition Parkinson's Disease

    • First symptom:
    • Diagnosis:
  20. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview updated his basic information

  21. Show more