1. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    Marshview was feeling good

    Legs don't hurt and walking is to-do

  2. 5346 thumb
    Marshview
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: mild
    Arms: mild
    Chest: mild
    Legs: severe
    I am: g
    I have:
    Parkinson's

    My legs hurt and it is difficult to Walt

    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      Marshview was feeling neutral

    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      Marshview was feeling neutral

    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      Marshview was feeling good

    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      Marshview was feeling neutral

    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      Marshview was feeling good

    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      Marshview was feeling good

    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      Marshview was feeling good

    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      Marshview was feeling neutral

      My legs were fine this morning in and not hurt me however about 2 o'clock my leg started tingling and freezing my legs are fine this morning and then not home in our about 2 o'clock my legs fun things going and freezing

    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      My legs have given me fits today. They have alternated between fine to tingling and freezing.

    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's
    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      Marshview completed the PDRS survey

      • PDRS: 42
      • On treatment
      • mild Mouth/throat
      • mild Arms
      • mild Chest
      • severe Legs
    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      From the beginning, I knew that Michael J. Fox and I had little in common. The meds never held me for more that 3-4 months at the time. Then my symptoms would return. Which led to an increase in medication which worked for 3-4 months ago. This has been a continuing cycle since 2008. Then my neuro referred me to another neuro. The new neuro (on my first visit) said that I definitely did not have plain, ole Parkinson's -- he just did not know what. This lead to every test known to man. All of which revealed nothing. The only deficiency was a low B-12 level. The neuro believed that I may have SupraNuclear Palsy or Multiple System Atrophy. We then agreed that a referral to Mayo was the answer. So I waited ... from April 2012 until December 2012 when Mayo in Florida could finally see me. In less than 3 weeks, my life turned around. Because I, at last, have a name to call "it" which is Lewy Body Disease. I don't have dementia or Alzeheimers (yet) but I do have mild/moderate cognitive abilities. I will continue to have good and bad days; without notice. But now I have a name to call it which is a relief. I had gotten to the point to where I honestly believed that I was making it up. Only my partner believed me. I am sure that the road ahead will be rough, but now I am happy just to have a name to call my ailment and that name is Lewy Body.

      However, circumstances have changed yet again at Mayo. I continue to   see my local neurologist regularly. Additionally I am seen annually  as part of a  Lewy Body Disease study (this was  last week).

      This time, my  neurologist became aware that my physical and cognitive were not progressing as he had expected : my cognitive levels have remained at the same level for 3 years; while my physical abilities seem to have had a rather quick decline.

      Now, they believe  that I may have either Multiple System Atrophy or Progressive Supra Nuclear  Palsy.



    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      Marshview updated his labs and tests

      • Estimated Average Glucose68 mg/dL on
    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      I go to the doctor at Mayo to finally find out my diagnosis. I have been waiting since 02/2007 and have gone through 4 diagnoses.

    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      Marshview updated his symptoms

      BetterTremor in left wrist, Tremor in left hand, Tremor in left arm, Tremor in hands, Stiff left ankle when "off" See more
      WorseVivid dreams, Visual disturbance, Tongue tied (decreased verbal fluency), Tired arms, Symptoms worsened See more
    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      Marshview was feeling neutral

    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      Marshview was feeling neutral

    • 5346 thumb
      Marshview
      Sex: M
      Data Quality: 2 stars
      On
      Mouth/throat: mild
      Arms: mild
      Chest: mild
      Legs: severe
      I am: g
      I have:
      Parkinson's

      Marshview was feeling good

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