What is Ullrich congenital muscular dystrophy?
Ullrich congenital muscular dystrophy (UCMD) is a type of congenital muscular dystrophy. Specific characteristics include hyper flexibility in hands and feet but tightness in other joints, such as elbows or hip. Often, they have a rigid/stiff spine and a tendency towards respiratory issues.
How do members experience Ullrich congenital muscular dystrophy?
Top 5 symptoms reported by people with Ullrich congenital muscular dystrophy*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Ullrich congenital muscular dystrophy*
Who has Ullrich congenital muscular dystrophy on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 2 | |
| 30s | 0 | |
| 40s | 1 | |
| 50s | 0 | |
| 60s | 1 | |
| 70+ | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 0 | |
| Female | 4 |