Tinnitus

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is tinnitus?

Tinnitus is a noise in the ears. Most tinnitus is subjective meaning the patient has the perception of sound in the absence of an acoustic stimulus. Objective tinnitus is noise generated by structures near the ear.

Common symptoms reported by people with tinnitus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with tinnitus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
9
Tried for
pain (9)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
8
Tried for
pain (8)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
8
Tried for
anxious mood (8) depressed mood (5)
1 more
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
7
Tried for
depressed mood (6) pain (2)
2 more
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
6
Tried for
pain (6)
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
5
Tried for
anxious mood (4) pain (4)
2 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
5
Tried for
pain (5) depressed mood (1)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (5)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (5)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)

Data from patients with tinnitus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with tinnitus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (9 evaluations)
Side effects
burning sensation constipation 13 more
Total evaluations
11
Tried for
pain (9)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (8)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (8 evaluations)
Side effects
sleepiness
Total evaluations
8
Tried for
anxious mood (8) depressed mood (5)
1 more
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (7 evaluations)
Side effects
depressed mood difficulty with orgasm 2 more
Total evaluations
8
Tried for
depressed mood (6) pain (2)
2 more
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for pain (4 evaluations)
Side effects
stomach pain
Total evaluations
3
Tried for
pain (6)
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
2
Tried for
anxious mood (4) pain (4)
2 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (1 evaluation)
Side effects
tiredness
Total evaluations
1
Tried for
pain (5) depressed mood (1)
Treatment name(s)

(Prozac)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
decreased sex drive (libido) diarrhea 1 more
Total evaluations
3
Tried for
depressed mood (5)
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (5 evaluations)
Side effects
nausea weight gain
Total evaluations
5
Tried for
depressed mood (5)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (4 evaluations)
Side effects
dry mouth intoxicated feeling 3 more
Total evaluations
5
Tried for
pain (4)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with tinnitus, who reported starting treatments within the last 5 years.
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Who has tinnitus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 53
30s 137
40s 220
50s 325
60s 287
70+ 105
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 101
20-29 years 103
30-39 years 107
40-49 years 116
50-59 years 80
60-69 years 23
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 438
Female 702

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 543
Not Diagnosed 162

These charts show data from tinnitus patients who have completed their condition history
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