Tinnitus

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is tinnitus?

Tinnitus is a noise in the ears. Most tinnitus is subjective meaning the patient has the perception of sound in the absence of an acoustic stimulus. Objective tinnitus is noise generated by structures near the ear.

Common symptoms reported by people with tinnitus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with tinnitus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
10
Tried for
pain (10)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
8
Tried for
pain (8)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
7
Tried for
anxious mood (7) depressed mood (4)
1 more
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
7
Tried for
depressed mood (6) pain (2)
2 more
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
6
Tried for
pain (6)
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
5
Tried for
anxious mood (4) pain (4)
2 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
5
Tried for
pain (5) depressed mood (1)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (5)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
4
Tried for
anxious mood (3) pain (2)
1 more

Data from patients with tinnitus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with tinnitus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (11 evaluations)
Side effects
burning sensation constipation 14 more
Total evaluations
12
Tried for
pain (10)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (8)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (8 evaluations)
Side effects
sleepiness
Total evaluations
8
Tried for
anxious mood (7) depressed mood (4)
1 more
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (7 evaluations)
Side effects
depressed mood difficulty with orgasm 2 more
Total evaluations
8
Tried for
depressed mood (6) pain (2)
2 more
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for pain (4 evaluations)
Side effects
stomach pain
Total evaluations
3
Tried for
pain (6)
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
2
Tried for
anxious mood (4) pain (4)
2 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (5) depressed mood (1)
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (5 evaluations)
Side effects
nausea weight gain
Total evaluations
5
Tried for
depressed mood (5)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (4 evaluations)
Side effects
dry mouth intoxicated feeling 3 more
Total evaluations
5
Tried for
pain (4)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
dry mouth hunger 1 more
Total evaluations
3
Tried for
anxious mood (3) pain (2)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with tinnitus, who reported starting treatments within the last 5 years.
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Who has tinnitus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 3
20s 50
30s 137
40s 221
50s 311
60s 278
70+ 97
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 100
20-29 years 101
30-39 years 104
40-49 years 114
50-59 years 81
60-69 years 22
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 426
Female 680

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 536
Not Diagnosed 159

These charts show data from tinnitus patients who have completed their condition history
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