Tethered cord syndrome

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What is tethered cord syndrome?

Tethered spinal cord syndrome is a neurological disorder caused by tissue attachments that limit the movement of the spinal cord within the spinal column. These attachments cause an abnormal stretching of the spinal cord. The course of the disorder is progressive.

Common symptoms reported by people with tethered cord syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with tethered cord syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)
Type
Equipment
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Nuedexta)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)
Type
Surgery
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with tethered cord syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with tethered cord syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (4 evaluations)
Side effects
bowel urgency dark colored urine 4 more
Total evaluations
4
Tried for
pain (2)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)
Perceived effectiveness
for pain (1 evaluation)
Side effects
bruising
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Nuedexta)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Hospitalization pain
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Zoloft)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with tethered cord syndrome, who reported starting treatments within the last 5 years.
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Who has tethered cord syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 10
20s 6
30s 22
40s 19
50s 18
60s 12
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 19
20-29 years 9
30-39 years 4
40-49 years 8
50-59 years 3
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 18
Female 74

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 55
Not Diagnosed 2

These charts show data from tethered cord syndrome patients who have completed their condition history
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