Tarlov cyst
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Tarlov cyst?
Tarlov cysts are sacs filled with cerebrospinal fluid that most often affect nerve roots in the sacrum, the group of bones at the base of the spine.
Common symptoms reported by people with Tarlov cyst
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with Tarlov cyst
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with Tarlov cyst, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with Tarlov cyst
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for pain (2 evaluations)
Side effects
excessive daytime sleepiness (somnolence)
excessive dry mouth
Total evaluations
3
Tried for
pain
(2)
Perceived effectiveness
for pain (1 evaluation)
Side effects
constipation
Total evaluations
1
Tried for
pain
(2)
Perceived effectiveness
for pain (1 evaluation)
Side effects
muscle soreness
numbness in back
Total evaluations
1
Tried for
pain
(1)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
headaches
rebound migraines
Total evaluations
2
Tried for
fatigue
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood
(1)
depressed mood
(1)
Treatment name(s)
Carpal Tunnel Surgery
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with Tarlov cyst, who reported starting treatments within the last 5 years.
Last updated:
Who has Tarlov cyst on PatientsLikeMe?
- 229 patients have this condition
- 0 new patients joined this month
- 151 say Tarlov cyst is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 6 | |
| 30s | 32 | |
| 40s | 57 | |
| 50s | 58 | |
| 60s | 46 | |
| 70+ | 7 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 5 | |
| 20-29 years | 8 | |
| 30-39 years | 16 | |
| 40-49 years | 15 | |
| 50-59 years | 10 | |
| 60-69 years | 4 | |
| 70+ years | 1 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 14 | |
| Female | 202 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 80 | |
| Not Diagnosed | 1 |
These charts show data from Tarlov cyst patients who have completed their condition history
Last updated: