What is SAPHO syndrome?
The acronym SAPHO stands for synovitis (inflammation of the joint lining); acne; pustulosis (inflammation of skin characterized as large fluid-filled blister-like areas called pustules), hyperostosis (abnormal bone growth) and osteitis (bone inflammation).
How do members experience SAPHO syndrome?
Top 5 symptoms reported by people with SAPHO syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for SAPHO syndrome*
Who has SAPHO syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 6 | |
| 30s | 8 | |
| 40s | 24 | |
| 50s | 22 | |
| 60s | 16 | |
| 70+ | 3 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 10 | |
| Female | 70 |