What is PHACE syndrome?

PHACE syndrome is a grouping of medical conditions, the acronym stands for: Posterior fossa, hemangioma, arterial lesions, cardiac abnormalities/aortic coarctation, eye abnormalities. Sometimes an S is added making it PHACES syndrome, the S stands for Sternal defects and/or Supraumbilical raphe.

How do members experience PHACE syndrome?

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.