What is Parkes-Weber syndrome?

Parkes Weber syndrome is characterized by vascular abnormalities (warm dilated veins, with a pulse), lymphedema, an enlarged limb, and skin discoloration.

How do members experience Parkes-Weber syndrome?

Top 5 symptoms reported by people with Parkes-Weber syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Parkes-Weber syndrome*

Who has Parkes-Weber syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 3
30s 0
40s 1
50s 0
60s 0
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 1
Female 3

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What is Parkes-Weber syndrome?

Parkes Weber syndrome is characterized by vascular abnormalities (warm dilated veins, with a pulse), lymphedema, an enlarged limb, and skin discoloration.



Common symptoms reported by people with Parkes-Weber syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Parkes-Weber syndrome

Let’s build this page together! When you share what it’s like to have Parkes-Weber syndrome through your profile, those stories and data appear here too.

Got a question about living with Parkes-Weber syndrome? Members in the forum might have the answers.


Compare treatments taken by people with Parkes-Weber syndrome

Let’s build this page together! When you share what it’s like to have Parkes-Weber syndrome through your profile, those stories and data appear here too.

Got a question about living with Parkes-Weber syndrome? Members in the forum might have the answers.



Who has Parkes-Weber syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 5 say Parkes-Weber syndrome is their primary condition

Age
Age Proportion # of patients
<20 0
20s 3
30s 0
40s 1
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 3

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 0
Not Diagnosed 0

These charts show data from Parkes-Weber syndrome patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have Parkes-Weber syndrome through your profile, those stories and data appear here too.

Got a question about living with Parkes-Weber syndrome? Members in the forum might have the answers.