Multiple exostoses

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What is multiple exostoses?

Hereditary multiple exostoses is a condition in which people develop multiple benign (noncancerous) bone tumors called exostoses, most often by the time they are 12 years old. The number of exostoses and the bones on which they are located vary greatly among affected individuals.

Common symptoms reported by people with multiple exostoses

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple exostoses

Let’s build this page together! When you share what it’s like to have multiple exostoses through your profile, those stories and data appear here too.

Got a question about living with multiple exostoses? Members in the forum might have the answers.

Compare treatments taken by people with multiple exostoses

Let’s build this page together! When you share what it’s like to have multiple exostoses through your profile, those stories and data appear here too.

Got a question about living with multiple exostoses? Members in the forum might have the answers.

Who has multiple exostoses on PatientsLikeMe?


Age
Age Proportion # of patients
<20 7
20s 16
30s 15
40s 12
50s 12
60s 5
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 25
20-29 years 0
30-39 years 1
40-49 years 0
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 21
Female 46

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 29
Not Diagnosed 1

These charts show data from multiple exostoses patients who have completed their condition history
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