What is multiple endocrine neoplasia type 1?

Multiple endocrine neoplasia type 1 are inherited tumors with various involvement of endocrine and nonendocrine organs such as the, parathyroid, pituitary, skin, and pancreas. Treatment options will vary based on the presentation of the condition.

How do members experience multiple endocrine neoplasia type 1?

Top 5 symptoms reported by people with multiple endocrine neoplasia type 1*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for multiple endocrine neoplasia type 1*

Who has multiple endocrine neoplasia type 1 on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 2
30s 9
40s 6
50s 20
60s 6
70+ 3

Distribution of sex

Sex

Sex Proportion # of patients
Male 10
Female 35

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What is multiple endocrine neoplasia type 1?

Multiple endocrine neoplasia type 1 are inherited tumors with various involvement of endocrine and nonendocrine organs such as the, parathyroid, pituitary, skin, and pancreas. Treatment options will vary based on the presentation of the condition.



Common symptoms reported by people with multiple endocrine neoplasia type 1

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for multiple endocrine neoplasia type 1

Let’s build this page together! When you share what it’s like to have multiple endocrine neoplasia type 1 through your profile, those stories and data appear here too.

Got a question about living with multiple endocrine neoplasia type 1? Members in the forum might have the answers.


Compare treatments taken by people with multiple endocrine neoplasia type 1

Let’s build this page together! When you share what it’s like to have multiple endocrine neoplasia type 1 through your profile, those stories and data appear here too.

Got a question about living with multiple endocrine neoplasia type 1? Members in the forum might have the answers.



Who has multiple endocrine neoplasia type 1 on PatientsLikeMe?

  • 0 new patients joined this month
  • 39 say multiple endocrine neoplasia type 1 is their primary condition

Age
Age Proportion # of patients
<20 0
20s 2
30s 9
40s 6
50s 20
60s 6
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 4
30-39 years 2
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 10
Female 35

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 14
Not Diagnosed 2

These charts show data from multiple endocrine neoplasia type 1 patients who have completed their condition history
Last updated: