Macular edema
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is macular edema?
Macular edema is swelling of the macula, the small area of the retina responsible for central vision, of which the central 5% of the retina is most critical to vision. The edema is caused by fluid leaking from retinal blood vessels.
Common symptoms reported by people with macular edema
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with macular edema
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Neuromuscular Electrical Stimulation
(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
1
Tried for
pain
(1)
Data from patients with macular edema, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with macular edema
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for pain (2 evaluations)
Side effects
drowsiness
Total evaluations
2
Tried for
pain
(2)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood
(1)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood
(1)
pain
(1)
Perceived effectiveness
for pain (3 evaluations)
Side effects
constipation
Total evaluations
3
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
macular edema
(1)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
anxious mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood
(1)
Treatment name(s)
Neuromuscular Electrical Stimulation
(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with macular edema, who reported starting treatments within the last 5 years.
Last updated:
Who has macular edema on PatientsLikeMe?
- 52 patients have this condition
- 0 new patients joined this month
- 19 say macular edema is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 0 | |
| 30s | 7 | |
| 40s | 10 | |
| 50s | 12 | |
| 60s | 11 | |
| 70+ | 8 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 0 | |
| 30-39 years | 1 | |
| 40-49 years | 4 | |
| 50-59 years | 3 | |
| 60-69 years | 2 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 15 | |
| Female | 35 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 16 | |
| Not Diagnosed | 2 |
These charts show data from macular edema patients who have completed their condition history
Last updated: