Lupus profundus
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is lupus profundus?
Lupus profundus is a chronic form of cutaneous lupus erythematosus characterized by the presence of discoid skin plaques with varying degrees of swelling, redness, scaliness, and skin atrophy. This co-occurs with panniculitis; the inflammation of the panniculus, the fat under the skin.
Common symptoms reported by people with lupus profundus
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with lupus profundus
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with lupus profundus, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with lupus profundus
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood
(1)
depressed mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
for lupus profundus (1 evaluation)
Side effects
Total evaluations
1
Tried for
lupus profundus
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with lupus profundus, who reported starting treatments within the last 5 years.
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Who has lupus profundus on PatientsLikeMe?
- 0 new patients joined this month
- 77 say lupus profundus is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 26 | |
| 30s | 78 | |
| 40s | 147 | |
| 50s | 118 | |
| 60s | 61 | |
| 70+ | 10 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 3 | |
| 20-29 years | 7 | |
| 30-39 years | 6 | |
| 40-49 years | 3 | |
| 50-59 years | 6 | |
| 60-69 years | 1 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 26 | |
| Female | 418 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 36 | |
| Not Diagnosed | 14 |
These charts show data from lupus profundus patients who have completed their condition history
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