Leukodystrophy NOS
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is leukodystrophy NOS?
Leukodystrophy NOS is a condition affecting the white matter of the brain, especially the cerebral hemispheres. Some symptoms include a gradual decline in movement, speech, vision, hearing, and behavior.
Common symptoms reported by people with leukodystrophy NOS
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with leukodystrophy NOS
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with leukodystrophy NOS, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with leukodystrophy NOS
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with leukodystrophy NOS, who reported starting treatments within the last 5 years.
Last updated:
Who has leukodystrophy NOS on PatientsLikeMe?
- 8 patients have this condition
- 0 new patients joined this month
- 5 say leukodystrophy NOS is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 0 | |
| 30s | 0 | |
| 40s | 1 | |
| 50s | 4 | |
| 60s | 0 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 0 | |
| 30-39 years | 1 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 2 | |
| Female | 5 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 2 | |
| Not Diagnosed | 0 |
These charts show data from leukodystrophy NOS patients who have completed their condition history
Last updated:
Let’s build this page together! When you share what it’s like to have leukodystrophy NOS through your profile, those stories and data appear here too.
Got a question about living with leukodystrophy NOS? Members in the forum might have the answers.