What is Klippel-Trenaunay-Weber syndrome?
Klippel-Trenaunay-Weber syndrome (KTWS) is characterized by a reddish-purplish birthmark (port-wine stain) , swollen, twisted, and sometimes painful blood vessels (varicose veins); excessive growth of soft tissue and bone of the involved extremity (bony and soft tissue hypertrophy).
How do members experience Klippel-Trenaunay-Weber syndrome?
Top 5 symptoms reported by people with Klippel-Trenaunay-Weber syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Klippel-Trenaunay-Weber syndrome*
Who has Klippel-Trenaunay-Weber syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 0 | |
| 30s | 4 | |
| 40s | 0 | |
| 50s | 4 | |
| 60s | 1 | |
| 70+ | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3 | |
| Female | 7 |