Indeterminate colitis

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What is indeterminate colitis?

Indeterminate colitis or colonic inflammatory bowel disease unclassified is a condition based on excluding the diagnosis of Crohn's disease or ulcerative colitis. It is a diagnosis used when the diagnostic work-up is unclear if it is Crohn's disease or ulcerative colitis.

Common symptoms reported by people with indeterminate colitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with indeterminate colitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
1 more
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
anxious mood (1) depressed mood (1)
1 more
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Pamelor)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)
Type
Equipment
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
fatigue (1)

Data from patients with indeterminate colitis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with indeterminate colitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (3 evaluations)
Side effects
cold sensation in hand(s) dizziness with disorientation 1 more
Total evaluations
3
Tried for
pain (2)
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) depressed mood (1)
1 more
Treatment name(s)

(Marijuana)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) depressed mood (1)
1 more
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Pamelor)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
anxious mood
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with indeterminate colitis, who reported starting treatments within the last 5 years.
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Who has indeterminate colitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 5
30s 13
40s 18
50s 27
60s 9
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 6
30-39 years 4
40-49 years 10
50-59 years 6
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 8
Female 73

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 33
Not Diagnosed 6

These charts show data from indeterminate colitis patients who have completed their condition history
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