Facioscapulohumeral muscular dystrophy

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What is facioscapulohumeral muscular dystrophy?

Facioscapulohumeral muscular dystrophy An autosomal dominant disorder affecting the skeletal muscles of the face, scapula, and upper arm characterized by muscle weakness in these anatomic areas. The muscle weakness eventually spreads to other skeletal muscles as well.

Common symptoms reported by people with facioscapulohumeral muscular dystrophy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with facioscapulohumeral muscular dystrophy

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Compare treatments taken by people with facioscapulohumeral muscular dystrophy

Let’s build this page together! When you share what it’s like to have facioscapulohumeral muscular dystrophy through your profile, those stories and data appear here too.

Got a question about living with facioscapulohumeral muscular dystrophy? Members in the forum might have the answers.

Who has facioscapulohumeral muscular dystrophy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 8
30s 7
40s 8
50s 13
60s 9
70+ 8
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 17
20-29 years 3
30-39 years 5
40-49 years 1
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 28
Female 29

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 32
Not Diagnosed 1

These charts show data from facioscapulohumeral muscular dystrophy patients who have completed their condition history
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