What is ectodermal dysplasia?

The ectodermal dysplasias are inherited disorders that involve abnormalities of two or more ectodermal structures such as the hair, teeth, nails, sweat glands, cranial-facial structure, digits and other parts of the body. There are more than 150 different types.

How do members experience ectodermal dysplasia?

Top 5 symptoms reported by people with ectodermal dysplasia*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for ectodermal dysplasia*

Who has ectodermal dysplasia on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 2
40s 4
50s 0
60s 0
70+ 3

Distribution of sex

Sex

Sex Proportion # of patients
Male 5
Female 5

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What is ectodermal dysplasia?

The ectodermal dysplasias are inherited disorders that involve abnormalities of two or more ectodermal structures such as the hair, teeth, nails, sweat glands, cranial-facial structure, digits and other parts of the body. There are more than 150 different types.



Common symptoms reported by people with ectodermal dysplasia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for ectodermal dysplasia

Let’s build this page together! When you share what it’s like to have ectodermal dysplasia through your profile, those stories and data appear here too.

Got a question about living with ectodermal dysplasia? Members in the forum might have the answers.


Compare treatments taken by people with ectodermal dysplasia

Let’s build this page together! When you share what it’s like to have ectodermal dysplasia through your profile, those stories and data appear here too.

Got a question about living with ectodermal dysplasia? Members in the forum might have the answers.



Who has ectodermal dysplasia on PatientsLikeMe?

  • 0 new patients joined this month
  • 9 say ectodermal dysplasia is their primary condition

Age
Age Proportion # of patients
<20 0
20s 1
30s 2
40s 4
50s 0
60s 0
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 5
Female 5

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 0

These charts show data from ectodermal dysplasia patients who have completed their condition history
Last updated: