Ectodermal dysplasia
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What is ectodermal dysplasia?
The ectodermal dysplasias are inherited disorders that involve abnormalities of two or more ectodermal structures such as the hair, teeth, nails, sweat glands, cranial-facial structure, digits and other parts of the body. There are more than 150 different types.
Common symptoms reported by people with ectodermal dysplasia
Treatments taken by people with ectodermal dysplasia
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Compare treatments taken by people with ectodermal dysplasia
Let’s build this page together! When you share what it’s like to have ectodermal dysplasia through your profile, those stories and data appear here too.
Got a question about living with ectodermal dysplasia? Members in the forum might have the answers.
Who has ectodermal dysplasia on PatientsLikeMe?
- 9 patients have this condition
- 0 new patients joined this month
- 5 say ectodermal dysplasia is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 1 | |
| 30s | 2 | |
| 40s | 0 | |
| 50s | 0 | |
| 60s | 1 | |
| 70+ | 2 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 0 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 4 | |
| Female | 3 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 3 | |
| Not Diagnosed | 0 |
Let’s build this page together! When you share what it’s like to have ectodermal dysplasia through your profile, those stories and data appear here too.
Got a question about living with ectodermal dysplasia? Members in the forum might have the answers.