What is desmin myopathy?
Desmin myopathy is a rare condition involving the muscles, it is characterized as the accumulation of a protein called desmin within the muscles. A common symptom is the slow progression of muscle weakness.
How do members experience desmin myopathy?
Top 5 symptoms reported by people with desmin myopathy*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for desmin myopathy*
Who has desmin myopathy on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 0 | |
| 40s | 0 | |
| 50s | 4 | |
| 60s | 1 | |
| 70+ | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 5 | |
| Female | 0 |