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Desmin myopathy is a rare condition involving the muscles, it is characterized as the accumulation of a protein called desmin within the muscles. A common symptom is the slow progression of muscle weakness.
How do members experience desmin myopathy?
Top 5 symptoms reported by people with desmin myopathy*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for desmin myopathy*
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Desmin myopathy is a rare condition involving the muscles, it is characterized as the accumulation of a protein called desmin within the muscles. A common symptom is the slow progression of muscle weakness.
Common symptoms reported by people with desmin myopathy
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people for desmin myopathy
Let’s build this page together! When you share what it’s like to have desmin myopathy through your profile, those stories and data appear here too.
Got a question about living with desmin myopathy? Members in the forum might have the answers.
Compare treatments taken by people with desmin myopathy
Let’s build this page together! When you share what it’s like to have desmin myopathy through your profile, those stories and data appear here too.
Got a question about living with desmin myopathy? Members in the forum might have the answers.