Desmin myopathy
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What is desmin myopathy?
Desmin myopathy is a rare condition involving the muscles, it is characterized as the accumulation of a protein called desmin within the muscles. A common symptom is the slow progression of muscle weakness.
Common symptoms reported by people with desmin myopathy
Treatments taken by people with desmin myopathy
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Compare treatments taken by people with desmin myopathy
Let’s build this page together! When you share what it’s like to have desmin myopathy through your profile, those stories and data appear here too.
Got a question about living with desmin myopathy? Members in the forum might have the answers.
Who has desmin myopathy on PatientsLikeMe?
- 2 patients have this condition
- 0 new patients joined this month
- 1 say desmin myopathy is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 0 | |
| 40s | 1 | |
| 50s | 1 | |
| 60s | 0 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 0 | |
| 20-29 years | 1 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 2 | |
| Female | 0 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 1 | |
| Not Diagnosed | 0 |
Let’s build this page together! When you share what it’s like to have desmin myopathy through your profile, those stories and data appear here too.
Got a question about living with desmin myopathy? Members in the forum might have the answers.