Cholangiocarcinoma
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is cholangiocarcinoma?
Cholangiocarcinoma is a cancerous growth in one of the tubes (ducts) that carries bile from the liver to the small intestine. Bile is a substance that is created by the body to digest fats in foods and helps the body get rid of waste material.
Common symptoms reported by people with cholangiocarcinoma
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with cholangiocarcinoma
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Liver resection
Type
Surgery
How many have tried
1
Tried for
cholangiocarcinoma
(1)
Data from patients with cholangiocarcinoma, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with cholangiocarcinoma
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Liver resection
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
cholangiocarcinoma
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with cholangiocarcinoma, who reported starting treatments within the last 5 years.
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Who has cholangiocarcinoma on PatientsLikeMe?
- 78 patients have this condition
- 1 new patients joined this month
- 73 say cholangiocarcinoma is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 4 | |
| 40s | 10 | |
| 50s | 14 | |
| 60s | 21 | |
| 70+ | 14 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 0 | |
| 20-29 years | 1 | |
| 30-39 years | 0 | |
| 40-49 years | 4 | |
| 50-59 years | 5 | |
| 60-69 years | 2 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 24 | |
| Female | 41 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 23 | |
| Not Diagnosed | 0 |
These charts show data from cholangiocarcinoma patients who have completed their condition history
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