Alexander disease
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What is Alexander disease?
Alexander disease is a condition affecting the white matter of the brain and the destruction of myelin. Myelin is the covering that insulates nerve fibers and allows for the rapid transmission of nerve impulses. Some symptoms include seizures, and loss of motor and intellectual disabilities.
Common symptoms reported by people with Alexander disease
Treatments taken by people with Alexander disease
Let’s build this page together! When you share what it’s like to have Alexander disease through your profile, those stories and data appear here too.
Got a question about living with Alexander disease? Members in the forum might have the answers.
Compare treatments taken by people with Alexander disease
Let’s build this page together! When you share what it’s like to have Alexander disease through your profile, those stories and data appear here too.
Got a question about living with Alexander disease? Members in the forum might have the answers.
Who has Alexander disease on PatientsLikeMe?
- 0 new patients joined this month
- 5 say Alexander disease is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 3 | |
| 30s | 3 | |
| 40s | 0 | |
| 50s | 0 | |
| 60s | 0 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 4 | |
| 20-29 years | 1 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3 | |
| Female | 3 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 5 | |
| Not Diagnosed | 0 |
Let’s build this page together! When you share what it’s like to have Alexander disease through your profile, those stories and data appear here too.
Got a question about living with Alexander disease? Members in the forum might have the answers.