What is Alexander disease?

Alexander disease is a condition affecting the white matter of the brain and the destruction of myelin. Myelin is the covering that insulates nerve fibers and allows for the rapid transmission of nerve impulses. Some symptoms include seizures, and loss of motor and intellectual disabilities.

How do members experience Alexander disease?

Top 5 symptoms reported by people with Alexander disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Alexander disease*

Who has Alexander disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 2
30s 3
40s 2
50s 0
60s 0
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 4
Female 3